Is a family‐centred initiative a family‐centred service? A case of a Conductive Education setting for children with cerebral palsy

Schenker, Rony; Parush, Shula; Rosenbaum, Peter; Rigbi, Amihai; Yochman, Aviva

doi:10.1111/cch.12354

Cited by 20 publications

(13 citation statements)

References 41 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A multisite, population‐based national registry for the most prevalent physical disability encountered in childhood, cerebral palsy (CP), offers an opportunity to objectively assess, with an appropriate standardized and validated measure, the family‐centredness of care delivered to this vulnerable population. Using validated instruments such as the Measures of Processes of Care (MPOC‐56 and MPOC‐20), families with CP consistently report receiving respectful and supportive care, while the provision of general information requires improvement . For the most part, few studies to date have identified intrinsic or extrinsic factors that may influence the process of care provided to children in the early years after diagnosis.…”

mentioning

confidence: 99%

“…Using validated instruments such as the Measures of Processes of Care (MPOC-56 and MPOC-20), families with CP consistently report receiving respectful and supportive care, while the provision of general information requires improvement. [10][11][12][13][14] For the most part, few studies to date have identified intrinsic or extrinsic factors that may influence the process of care provided to children in the early years after diagnosis. Molinaro et al found an association between perceptions of family-centred service delivery and lower socio-economic status.…”

mentioning

confidence: 99%

See 1 more Smart Citation

Family‐centred health care for children with cerebral palsy

Shevell

Oskoui

Wood

et al. 2018

Develop Med Child Neuro

View full text Add to dashboard Cite

Aim To identify characteristics of young children with cerebral palsy (CP), and intrinsic and extrinsic factors, that may be associated with parental perceptions regarding family‐centred health care services. Method We conducted a cross‐sectional study, drawing our sample from the Canadian Cerebral Palsy Registry (CCPR). Parents rated the extent of family‐centred care provided by their child's health care teams using the 56‐item Measures of Process of Care (MPOC) questionnaire. Environmental and CP phenotypic variables were extracted from the CCPR for group comparisons. Low and high MPOC‐56 raters were also compared. Results Valid responses were obtained from 282 families (90%). All MPOC‐56 subscales were highly rated (median ≥6.0), indicating satisfaction with health care services, with the exception of the Providing General Information subscale (median 4.8, interquartile range 3.2–6.0). Parents from Nova Scotia rated all subscales significantly higher than parents from other regions. CP subtype and severity were not significantly associated with MPOC‐56 subscale scores. Higher socio‐economic status was associated with lower MPOC‐56 subscale scores. Higher paternal educational attainment and household income were significantly associated with lower scores on the Providing General Information and Providing Specific Information about the Child subscales respectively. Interpretation Participants affirmed the provision of family‐centred services from Canadian pediatric rehabilitation centres. Sociodemographic factors were associated with parental perceptions of family‐centred services. What this paper adds Sociodemographic factors were associated with parental perceptions of family‐centred care. Factors intrinsic to the child's cerebral palsy were not associated with parental perceptions.

show abstract

mentioning

confidence: 99%

mentioning

confidence: 99%

Family‐centred health care for children with cerebral palsy

Shevell

Oskoui

Wood

et al. 2018

Develop Med Child Neuro

View full text Add to dashboard Cite

show abstract

“…Families perceived the current service to be more familycentred than professionals in Providing Specific Information. This finding is similar to another study that used MPOC-20 and MPOC-SP to explore the family-centredness of services for children with cerebral palsy, and suggests that professionals might be more critical than family members about Communicating Specific Information (Schenker, Parush, Rosenbaum, Rigbi, & Yochman, 2016). In addition, the professionals ranked Treating People Respectfully higher than families did on Respectful and Supportive Care.…”

Section: Quantitative Componentssupporting

confidence: 84%

Supporting families of children with hearing loss transitioning to early intervention

Nickbakht¹

View full text Add to dashboard Cite

Family-centred care (FCC) has long been acknowledged as best practice for meeting the needs of families of children with hearing loss (HL) and improving early intervention (EI) outcomes. Although the literature has reported some gaps in service provision to families of children with HL, and the period from the time of diagnosis to enrolment in EI has been identified as a significant decision-making period, there is a lack of in-depth knowledge regarding families' needs during this period. In addition, no study has addressed the current gaps in FCC for children with HL with or without additional disabilities transitioning to EI. Therefore, the overarching aim of this thesis was to develop a family-centred intervention to support families of children with HL transitioning to EI, using an implementation science approach. The specific aims of this thesis were: (1) to explore families' needs in the transition to EI after diagnosis of HL from both families' and professionals' perspectives; (2) to investigate families' and professionals' perspectives on the provision of FCC in the transition to EI; and (3) to develop a family-centred intervention for children with HL-with or without additional disabilities-transitioning to EI. Chapter 2 describes the overarching framework applied throughout this thesis, the Behaviour Change Wheel (BCW). The BCW is a step-by-step guide for planning interventions that involves three tasks, including (a) understanding the behaviour that needs to be changed (Chapters 3 and 4), (b) identifying intervention options (Chapter 5), and (c) identifying implementation options and content of the intervention (Chapter 6). Chapter 3 explored families' needs in the transition to EI using a qualitative approach incorporating semi-structured interviews with families and professionals. Four major themes were identified from the interviews: (1) families require information that meet their specific xi Financial support This research was supported by an Australian Government Research Training Program Scholarship. The authors acknowledge the financial support of the HEARing CRC, established under the Australian Government's Cooperative Research Centres (CRC) Program. The CRC Program supports industry-led collaborations between industry, researchers and the community.

show abstract

“…Through validation by a multidisciplinary expert group, a previous study determined the MPOC‐SP Hebrew version to be culturally relevant to the Israeli context (Schenker et al, ). The MPOC‐SP had good internal consistency (Cronbach's α range = .76–.88 in the original and .65–.89 in the Hebrew version).…”

Section: Methodsmentioning

confidence: 99%

“…In the present study, posttest measures revealed significant enhancement in three of four MPOC‐SP factors, suggesting its sensitivity to change following training. Conducted in Israel, this study used the Hebrew version of the MPOC‐SP, formally translated and validated for cultural and contextual adaptability by a multidisciplinary group of experts (Schenker, Parush, Rosenbaum, Rigbi, & Yochman, ). Previously, the measure had not been used as an outcome measure in Israel.…”

Section: Introductionmentioning

confidence: 99%

Evaluating change: Using the Measure of Processes of Care‐Service Provider as an outcome measure for performance and confidence in family‐centred care

Lachter

Josman

Ben‐Sasson

2019

Child

View full text Add to dashboard Cite

Background: Family-centred care (FCC) is considered the best practice in paediatric care but it is not always implemented sufficiently. Effective training programmes that enhance health care providers' knowledge and self-efficacy have the potential to improve FCC implementation in their daily practice. The goal of the study was to evaluate the sensitivity of the measure of processes of care (MPOC)-service provider (MPOC-SP) version and MPOC confidence (MPOC-Con) in detecting changes following an FCC training.Methods: The MPOC-Con was developed for this study as a sequel to MPOC-SP to measure self-efficacy related to specific FCC practices. Twenty-four health care providers (occupational and physical therapists, speech pathologist, and special education teacher) participated in a 6-month FCC provider training. The training included 30 contact hours on FCC principles and techniques through experiential learning, reflective exercises, peer mentoring, and case-study analyses. The MPOC-SP and MPOC-Con were administered preparticipation and postparticipation.Results: Repeated multivariate analysis of variance and reliable change index (RCI) analyses indicated a significant group increase in performance and confidence following the training in two of the four MPOC-SP factors and in all MPOC-Con factors, F (1, 7) = 5.17, P = .003, η 2 = .68; RCI > 1.96. Individual change patterns in FCC performance indicated patterns of increased, decreased, or stable performance, with the highest increased performances reported for treating people respectfully (79%) and communicating specific information (71%), mostly stable performance in providing general information (75%) and similar levels of increase and stability (41% and 39%, respectively) for interpersonal sensitivity. The Pearson's correlation between MPOC-SP and MPOC-Con were significant, moderate-strong, and positive (r = .42-.69, P < .05).Conclusions: The MPOC-SP and the MPOC-Con are sensitive measures suitable for evaluating individual and group changes following training. When designing professional development programmes, managers and educators should consider the interrelation between self-efficacy and implementing acquired knowledge and skills in FCC.

show abstract

Is a family‐centred initiative a family‐centred service? A case of a Conductive Education setting for children with cerebral palsy

Abstract: The current study, which is the first to examine family-centred service provision in a conductive special education setting, from the perspectives of both parents and conductors, provides significant evidence for high-quality services in these settings.

Cited by 20 publications

References 41 publications

Family‐centred health care for children with cerebral palsy

Family‐centred health care for children with cerebral palsy

Supporting families of children with hearing loss transitioning to early intervention

Evaluating change: Using the Measure of Processes of Care‐Service Provider as an outcome measure for performance and confidence in family‐centred care

Contact Info

Product

Resources

About