Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities

Hanzen, Gineke; Waninge, Aly; Nispen, Ruth M. A. van; Vlaskamp, Carla; Post, Wendy J.; Putten, Annette van der

doi:10.1111/jar.12792

Cited by 7 publications

(15 citation statements)

References 22 publications

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“…Second, CFP+ may simply not lead to an improvement in the participation of adults with VSPID. However, this finding is not supported by findings in our earlier studies, which revealed that the range of activities that encouraged the social relations, inclusion and autonomy of participating adults with VSPID had increased (Hanzen et al, 2016;Hanzen et al, 2020b). In addition, the increases in the active involvement of the individuals with VSPID and in the DSPs' initiatives in the CFP+ group, relative to the control groups, as shown in the current study, were indicative of the positive effects of CFP+ on the participation of the target group.…”

Section: Discussioncontrasting

confidence: 73%

“…DSPs in the second control group provided care as usual. A process evaluation conducted for the above study revealed that DSPs applied CFP+ when attempting to develop new roles and activities for the targeted individuals and to promote their self-management, autonomy, and active involvement in existing activities (Hanzen et al, 2020b). The evaluation further revealed that the DSPs' attitudes toward participation improved after they had received CFP+ training.…”

Section: Introductionmentioning

confidence: 91%

“…It is based on the "Boston Psychiatric Rehabilitation Approach" that was developed to identify and aid efforts to meet the participation needs of individuals with psychiatric disorders (Anthony, Cohen, Farkas, & Gagne, 2002). This method was subsequently adjusted for adults with VSPID in the CFP+ intervention (Hanzen et al, 2016;Hanzen et al, 2020b). CFP+ also includes the definition and operationalization of the concept of participation for the target group provided in the PMM (Hanzen et al, 2017).…”

Section: Care For Participation+mentioning

confidence: 99%

“…CFP+ includes a training program for DSPs, with exercises directly aimed at enhancing the participation of the persons with VSPID (Hanzen et al, 2020b). To improve these individuals' participation, DSPs also include their legal representatives (LRs) or family and other team members.…”

Section: Care For Participation+mentioning

confidence: 99%

“…Although the outcomes were less convincing than expected, a positive trend was evident in terms of DSPs' changed attitudes regarding leisure and recreation and their ability to act to address the participation needs of the targeted group. Moreover, DSPs were less focused on the disabilities and limitations of the adults with VSPID (Hanzen et al, 2020b). In light of the above studies in which the impacts of CFP+ on DSPs' attitudes were assessed, our aim in the current study was to focus on adults with VSPID, evaluating the effects of CFP+ on their participation.…”

Section: Introductionmentioning

confidence: 99%

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Effects of the “Care for Participation+” Intervention on the Participation of Adults With Visual and Severe or Profound Intellectual Disabilities: A Nonrandomized Controlled Trial

Hanzen

Waninge

Nispen

et al. 2021

Policy Practice Intel Disabi

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Background The “Care for Participation+” (CFP+) intervention was developed in order to change the attitudes of direct support professionals (DSPs) regarding the participation of adults with visual and severe or profound ID (VSPID). Aims The aim of this study was to evaluate the effects of CFP+ on the participation of the target group. Methods We performed a pilot nonrandomized controlled trial with three arms. The effect of CFP+ on participation was compared to a usual care control group (n = 13), and a control group in which one element of CFP+ was implemented (n = 14). Participation was measured using specific domains of the Quality Of Life of People with Profound Multiple Disabilities (QOL‐PMD) questionnaire that was completed by the legal representatives and DSPs of adults with VSPID, and video‐observations of (initiatives for prompting) active involvement within 10 dyads comprising adults with VSPID and DSPs. Findings The effects of CFP+ on the QOL‐PMD were very small and not statistically significant. Qualitative analyses showed that in the CFP+ group, active involvement in activities of adults with VSPID and number of DSPs' initiatives to stimulate active involvement exceeded those within the two control groups. Discussion CFP+ has positive effects on the active involvement of individuals with VSPID and on DSPs' initiatives to enhance this involvement. The unexpected small effects of CFP+ on the participation of these adults could be explained by several factors such as small sample size, ceiling effects, response shift, changes in the control group, and implementation barriers. Accordingly, the most effective elements of CFP+ could be further developed and investigated in combination with an improved implementation strategy.

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Section: Discussioncontrasting

confidence: 73%

Section: Introductionmentioning

confidence: 91%

Section: Care For Participation+mentioning

confidence: 99%

Section: Care For Participation+mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Effects of the “Care for Participation+” Intervention on the Participation of Adults With Visual and Severe or Profound Intellectual Disabilities: A Nonrandomized Controlled Trial

Hanzen

Waninge

Nispen

et al. 2021

Policy Practice Intel Disabi

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From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

Piekema,

ten Brug,

Waninge

et al. 2024

Research Intellect Disabil

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BackgroundAlthough particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic.MethodA search of four databases yielded 64 studies. Data were extracted on their general characteristics, methods and sample characteristics as well as the technology types, QoL domains and application within ecological systems. A narrative synthesis was subsequently developed.ResultsMost of the studies applied assistive technology (AT) and focused on personal development and self‐determination on an individual level.ConclusionsTechnology can enhance the QoL of people with pervasive support needs. There are indications that although MT and UD‐based technology are used in practice, few studies have examined these technologies. Therefore, there is a knowledge gap regarding the kinds of technology that are used in practice.

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Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic

Bakkum,

Piekema,

Douma

et al. 2023

J Intellect Disabil

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During the COVID-19 pandemic, many people with intellectual disabilities living in care facilities could not receive visitors. Health authorities suggested the use of digital social contact as an alternative for in-person visits. We examined how people with intellectual disabilities living in care facilities experienced the use of digital social contact with their informal social network throughout 2020. Residents, their relatives, volunteer visitors, direct support staff, and care facility managers ( N = 283) completed an online questionnaire, of whom 35 participated in an interview. Video calling and in-person visits were among the most common forms of staying in touch. Experiences with digital social contact depended on residents’ abilities and support needs, and on preconditions, such as staff availability. The first phases of the pandemic led to experiences of possibilities and benefits of using digital social contact as complementary to in-person contact for people with different levels of intellectual disability, also after the pandemic.

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Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities

Abstract: Participation is a human right for people with disabilities (UN General Assembly, 2013), including adults with visual and severe or profound intellectual disabilities (VSPID). Participation enhances the quality of

Cited by 7 publications

References 22 publications

Effects of the “Care for Participation+” Intervention on the Participation of Adults With Visual and Severe or Profound Intellectual Disabilities: A Nonrandomized Controlled Trial

Effects of the “Care for Participation+” Intervention on the Participation of Adults With Visual and Severe or Profound Intellectual Disabilities: A Nonrandomized Controlled Trial

From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic

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