From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

Piekema, Lotte; ten Brug, Annet; Waninge, Aly; van der Putten, Annette

doi:10.1111/jar.13181

Cited by 3 publications

(1 citation statement)

References 126 publications

(240 reference statements)

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“…Consequently, further research is warranted to discern potential disparities in their viewpoints compared to those of other healthcare professionals and parents. Another limitation includes the formulation of the central prompt as it did not retrieve statements on hindering or promoting factors regarding the utilisation of the support strategies, considering that previous research suggest that some support strategies identified in the current study have specific limitations in practice (Kruithof et al, 2024;Nicholson et al, 2023;Piekema et al, 2024). Furthermore, this study utilised the Self-determination Theory (SDT) to guide participants' responses to the central prompt.…”

Section: Limitationsmentioning

confidence: 99%

Supporting self‐determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study

Kúld,

Frielink,

Schuengel

et al. 2024

Research Intellect Disabil

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BackgroundThis study aimed to identify perspectives of relatives and healthcare professionals regarding self‐determination support for people with severe or profound intellectual and multiple disabilities, highlighting agreements and differences in their viewpoints.MethodFollowing a concept mapping study, online focus group meetings yielded statements on self‐determination support from relatives (residential facilities: n = 6, family homes: n = 7) and healthcare professionals (residential facilities: n = 9, family home: n = 5). Participants clustered and rated statements, resulting in four concept maps interpreted by experts (N = 6).ResultsThe 285 statements were categorised into 5–7 clusters per map, revealing key strategies for self‐determination support: communication and choice making (facilitated by aids), sensitivity, familiarity, and collaboration among involved parties.ConclusionEach group placed different emphasis on these strategies, highlighting importance of continuous support in their implementation. Future research should prioritise practical implementations of these strategies to enhance self‐determination.

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Section: Limitationsmentioning

confidence: 99%

Supporting self‐determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study

Kúld,

Frielink,

Schuengel

et al. 2024

Research Intellect Disabil

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Attitudes of support people: a key element when implementing technologies for people with intellectual and visual disabilities

Piekema,

ten Brug,

Waninge

et al. 2024

Disability and Rehabilitation: Assistive Technology

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A Technology-Aided Program to Help People with Profound Intellectual and Multiple Disabilities Access Preferred Stimulation and Exercise Motor Responses and Visual Orientation

Lancioni,

Alberti,

Filippini

et al. 2024

OBM Neurobiol

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People with profound intellectual and multiple disabilities (PIMD) are generally isolated, with a high risk of reduced stimulation input and physical inactivity. One of the strategies available to mitigate this situation relies on using technology-aided programs delivering stimulation contingent on people’s basic responses/activation. The two studies reported here were intended to extend the evidence available in this area. Specifically, Study I assessed whether a technology-aided program, which enabled participants to obtain preferred stimulation by touching an illuminated square (response target) changing position on a touch screen, would effectively increase their responding and, consequently, their stimulation input. Study II served as (a) a replication of Study I and (b) a means to assess whether responding in relation to a target changing position would increase the participants’ visual orientation/attention compared to responding in relation to a static target. Seven participants were included, three in Study I and four in Study II. Each study was conducted using a single-case research methodology. The results of both studies showed that the participants increased their responding and, thus, their stimulation input using the technology-aided programs. The program involving a response target changing position required differentiation of the response schemes (probably increasing the level of physical activation) and also tended to improve visual orientation, compared to the program using a fixed response target. Thus, the program involving a changing position of the response target may be considered a preferable tool for helping people with PIMD.

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From assistive to inclusive? A systematic review of the uses and effects of technology to support people with pervasive support needs

Cited by 3 publications

References 126 publications

Supporting self‐determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study

Supporting self‐determination of individuals with severe or profound intellectual and multiple disabilities according to relatives and healthcare professionals: A concept mapping study

Attitudes of support people: a key element when implementing technologies for people with intellectual and visual disabilities

A Technology-Aided Program to Help People with Profound Intellectual and Multiple Disabilities Access Preferred Stimulation and Exercise Motor Responses and Visual Orientation

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