International child health. Measuring health-related quality of life in a child population

Verrips, Erik; Vogels, T.; Koopman, Hendrik M.; Theunissen, N.C.M.; Kamphuis, R.P.; Fekkes, Minne; Wit, Jan M.; Verloove-Vanhorick, S.P.

doi:10.1093/eurpub/9.3.188

Cited by 101 publications

(96 citation statements)

References 16 publications

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“…HRQOL of the childhood cancer patients was assessed with the TNO-AZL Preschool Quality of Life questionnaire for children aged 1-5 years (TAPQOL) [19,20], and with the TNO-AZL Children's Quality of Life questionnaire; Parent Form for children aged 6-11 years (TACQOL-PF) [21] and Child Form for children aged 8-15 years (TACQOL-CF), [22,23]. These questionnaires are generic Dutch instruments that measure health status problems weighted by the impact of the health status problems on well-being.…”

Section: Methodsmentioning

confidence: 99%

“…Norm data from the general Dutch population were available. The instruments measure HRQOL on group level in a reliable and valid way [19][20][21][22][23][24].…”

Section: Methodsmentioning

confidence: 99%

“…The Cronbach alphas, in our study population, were moderate to good. Norm data were collected via the Centers for Preventive Youth Health Care all over The Netherlands, via stratified random sampling [21][22][23]25].…”

Section: Methodsmentioning

confidence: 99%

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Health‐related quality of life in children and emotional reactions of parents following completion of cancer treatment

Stam

Grootenhuis

Brons

et al. 2005

Pediatric Blood & Cancer

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BackgroundCompleting therapy is one of the major transitions in care in the practice of pediatric oncology and, therefore, deserves special consideration. The purpose of the study was to investigate health‐related quality of life (HRQOL) of pediatric patients, and emotional reactions of their parents, shortly after the end of successful treatment.MethodsHRQOL of 126 patients, aged 1–15 years, on average 2 months after the end of successful treatment, was assessed with the TNO‐AZL Pre‐school Quality of life Questionnaire and the TNO‐AZL Children's Quality of life Questionnaire. Emotional adjustment of 124 mothers and 111 fathers was assessed with the General Health Questionnaire and the Situation Specific Emotional Reaction Questionnaire. The outcomes of the patients and parents were compared with norm data by means of one sample t‐tests, one sample sign‐tests or binomial tests.ResultsAll age groups, except patients aged 8–11 years, experienced worse HRQOL than the norm with respect to motor functioning. In addition, pre‐school patients were rated worse on sleeping, appetite, stomach, skin, problem behavior, anxiety, and liveliness, and patients aged 6–7 years on autonomy and cognitive functioning. Parents reported more psychological distress than the norm. Compared to parents whose children were 1–5 years after cancer treatment, they suffered more from feelings of loneliness, helplessness, and uncertainty.ConclusionsA few months after the end of successful cancer treatment, both patients and parents appeared to experience worse well‐being than the norm to a clinically relevant extent. Supporting patients and parents should not stop when treatment ends. Pediatr Blood Cancer 2006;47:312–319. © 2005 Wiley‐Liss, Inc.

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Section: Methodsmentioning

confidence: 99%

“…Norm data from the general Dutch population were available. The instruments measure HRQOL on group level in a reliable and valid way [19][20][21][22][23][24].…”

Section: Methodsmentioning

confidence: 99%

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Health‐related quality of life in children and emotional reactions of parents following completion of cancer treatment

Stam

Grootenhuis

Brons

et al. 2005

Pediatric Blood & Cancer

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“…Research Academic Medical Centre) Children's Quality of Life rating scale (TACQOL) [26], a generic measure for HRQoL in medical research. In the TACQOL, HRQoL is determined as a functional status weighted by the emotional reaction, resulting in a HRQoL status.…”

Section: Hrqol Was Measured By the Tno-azl (Netherlands Organisation mentioning

confidence: 99%

“…The TACQOL is validated in the Dutch population. Reference data are available from 1048 healthy Dutch children [26,27]. The TACQOL is an excellent instrument to assess HRQoL in chronically ill or children surviving a brain tumor and compare findings with the reference population.…”

Section: Hrqol Was Measured By the Tno-azl (Netherlands Organisation mentioning

confidence: 99%

Health-related quality of life and emotional problems in children surviving brain tumor treatment: A descriptive study of 2 cohorts

Dessens

Herwerden

Aarsen

et al. 2016

Pediatric Hematology and Oncology

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KEYWORDSBrain diseases; brain neoplasms; child behavior disorders; cohort study; quality of life ABSTRACTThe survival of childhood brain tumors has improved in the past 30 years, but acquired brain injury due to damage caused by tumor invasion and side effects of different treatment modalities frequently occurs. This study focused on residual impairments, health-related quality of life (HRQoL), and emotional and behavioral problems in 2 cohorts of survivors diagnosed and treated for various types of brain tumors. In the 2014 cohort, children reported less negative emotions than healthy children. No increase in emotional or behavioral problems were reported by children in both cohorts, whereas parents reported problems in social functioning and isolation related to a delay in emotional development. Children surviving brain tumor treatment have a reduced quality of life. The authors therefore recommend regular screening of HRQoL and emotional and behavioral problems and referral to specific aftercare.

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Vinorelbine, doxorubicin, and prednisone in androgen‐independent prostate cancer

Borden

Clark

Lovato

et al. 2006

Cancer

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Background To examine the practical applicability, internal consistency, and validity of the Bt‐DUX, a disease‐specific Health Related Quality of Life (HRQoL) instrument. The Bt‐Dux was developed to examine patients' individual values of their life after a malignant bone tumor of the lower extremity at four domains (cosmetic, social, emotional, and functional). Procedure Patients were eligible for this cross‐sectional, multicenter study if they underwent surgery for a malignant tumor of the leg in a period ranging between 12 and 60 months before the recruitment. Assessments included: Bt‐DUX, Toronto Extremity Salvage Score (TESS) Short Form (SF)‐36, TNO‐AZL Questionnaire for Adult's Quality of Life (TAAQOL), and TNO‐AZL Children's Quality of Life Questionnaire (TACQOL). Results Seventy‐two patients (35 male, 37 female), mean age 17 (SD 4) years were included. Limb sparing surgery took place in 32 patients and ablative surgery in 40 patients. The Bt‐DUX was completed in less than 5 min and easy to comprehend. The mean Bt‐DUX score was 69.8 (SD 15.5), with Cronbach's alpha being 0.92. Domain–total correlations ranged between 0.84 and 0.88 (P < 0.01). Correlations between Bt‐DUX Total score and TESS, SF‐36 Physical and Mental Component Summary scales and selected TACQOL and TAAQOL scores were statistically significant (P < 0.05), except for the social scale of the TACQOL. The Bt‐DUX was able to discriminate between patients with higher and lower TESS scores (P < 0.05). Conclusion The Bt‐DUX was found to be a practical and valid instrument. Its added value compared with existing HRQoL measures needs to be further established. Pediatr Blood Cancer 2009;53:348–355. © 2009 Wiley‐Liss, Inc.

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International child health. Measuring health-related quality of life in a child population

Cited by 101 publications

References 16 publications

Health‐related quality of life in children and emotional reactions of parents following completion of cancer treatment

Health‐related quality of life in children and emotional reactions of parents following completion of cancer treatment

Health-related quality of life and emotional problems in children surviving brain tumor treatment: A descriptive study of 2 cohorts

Vinorelbine, doxorubicin, and prednisone in androgen‐independent prostate cancer

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