Health‐related quality of life in children and emotional reactions of parents following completion of cancer treatment

Stam, Heleen; Grootenhuis, Martha A.; Brons, Paul; Caron, Huib N.

doi:10.1002/pbc.20661

Cited by 69 publications

(76 citation statements)

References 27 publications

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“…Los resultados encontrados confirmaron que los CPI de niños con cáncer en la mayoría de los casos de la ciudad de Mé-xico, es la madre tal como se ha observado en otros estudios (11,14,17,18,20,24,(43)(44)(45)(46)(47)(48) . Posiblemente porque, la madre en general, cree que "nadie está a la altura para cuidar, proteger y atender las necesidades de su hijo" como ella lo hace (49,50) , así mismo, la maternidad es un componente principal de la identidad femenina que regula la vida de las mujeres; y aunque estas adoptan cada vez más roles fuera del hogar, la relación emocional con sus hijos sigue siendo fuerte y la abnegación maternal las coloca en primer lugar (51) .…”

Section: Discussionunclassified

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Pardo¹,

Cárdenas²,

Venegas³

2015

Psicooncología

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ResumenEl propósito del estudio fue identificar las variables psicológicas y las características del cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de niños con cáncer, en un hospital de la ciudad de México. La muestra no probabilística constó de 100 participantes, quienes contestaron una batería integrada por la encuesta de salud para el CPI, la escala de carga del cuidador de Zarit, los inventarios de ansiedad y depresión de Beck, la escala de apoyo familiar para CPI y la escala de modos de afrontamiento al estrés de Lazarus y Folkman. Los resultados confirmaron que las mujeres (en la mayoría de los casos la madre del paciente) actúan como CPI de niños con cáncer. Las variables predictoras de la carga en el modelo de regresión múltiple por pasos fueron la depresión (R 2 =0,228), el número de áreas afectadas en la vida del cuidador (R 2 =0,319) y la ansiedad (R 2 =0,348). En total las tres variables explicaron el 34% de la varianza. Mientras que el estilo de afrontamiento, el apoyo familiar, el tiempo de cuidado del paciente, las horas diarias de cuidado de éste y el número de actividades que realiza no resultaron variables relevantes en la predicción de la carga. Los hallazgos podrían ser útiles para diseñar intervenciones que promuevan el bienestar físico, social y emocional de esta población, previniendo que los cuidadores se conviertan en pacientes.Palabras clave: Niños con cáncer, cuidadores, carga, ansiedad y depresión. AbstractThe purpose of the study was to identify the psychological characteristics and care variables that predict the onset of primary informal caregivers burden (CPI) of children with cancer, in a hospital in Mexico City. The nonrandom sample consisted of 100 participants, who answered an integrated battery conformed by a health interview for the CPI, the load scale for the Zarit caregiver, the anxiety and depression of Beck inventory, the family support for the CPI scale and the scale modes of coping with stress by Lazarus and Folkman. The results confirmed that women react as CPI to children with cancer, and in most cases the patient's mother. The variables of burden model stepwise multiple regressions were depression (R 2 =0.228), the number of affected areas in the caregiver's life (R 2 =0.319) and anxiety (R 2 =0.348). In all the three variables explained 34% of variance. While coping style, family support, time to patient care, daily care hours and the number of activities carried out were not significant variables in predicting overload. The findings of this study could be useful for designing interventions that promote physical, social and emotional wellbeing of this population, preventing the patient from becoming caregivers.

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Section: Discussionunclassified

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Pardo¹,

Cárdenas²,

Venegas³

2015

Psicooncología

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“…Family life changes dramatically when a child is diagnosed with cancer (Stam et al, 2006). Parents had most difficulties coping with their child's disease and some felt depressed.…”

Section: Discussionmentioning

confidence: 99%

Socio-economic Status Plays Important Roles in Childhood Cancer Treatment Outcome in Indonesia

Mostert¹,

Gunawan²,

Wolters³

et al. 2012

Asian Pacific Journal of Cancer Prevention

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“…4,6-10 Although many of the studies suggest that psychosexual development and sexual experiences of survivors are affected negatively by the cancer experience, 4,6,7,9 the data are inconsistent and limited by small sample sizes. Therefore, understanding the prevalence of and risk factors for psychosexual sequelae among female young adult survivors of childhood cancer is essential to provide optimal care and to develop…”

Section: Introductionmentioning

confidence: 99%

Psychosexual Functioning Among Adult Female Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study

Ford

Kawashima

Whitton

et al. 2014

JCO

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A B S T R A C T PurposeChildhood cancer survivors may be at risk for impaired psychosexual functioning as a direct result of their cancer or its treatments, psychosocial difficulties, and/or diminished quality of life. Patients and MethodsTwo thousand one hundred seventy-eight female adult survivors of childhood cancer and 408 female siblings from the Childhood Cancer Survivor Study (CCSS) completed a self-report questionnaire about their psychosexual functioning and quality of life. On average, participants were age 29 years (range, 18 to 51 years) at the time of the survey, had been diagnosed with cancer at a median age of 8.5 years (range, 0 to 20) and were most commonly diagnosed with leukemia (33.2%) and Hodgkin lymphoma (15.4%). ResultsMultivariable analyses suggested that after controlling for sociodemographic differences, survivors reported significantly lower sexual functioning (mean difference [MnD], Ϫ0.2; P ϭ .01), lower sexual interest (MnD, Ϫ0.2; P Ͻ .01), lower sexual desire (MnD, Ϫ0.3; P Ͻ .01), lower sexual arousal (MnD, Ϫ0.3; P Ͻ .01), lower sexual satisfaction (MnD, Ϫ0.2; P ϭ .01), and lower sexual activity (MnD, Ϫ0.1; P ϭ .02) compared with siblings. Risk factors for poorer psychosexual functioning among survivors included older age at assessment, ovarian failure at a younger age, treatment with cranial radiation, and cancer diagnosis during adolescence. ConclusionDecreased sexual functioning among female survivors of childhood cancers seems to be unrelated to emotional factors and is likely to be an underaddressed issue. Several risk factors among survivors have been identified that assist in defining high-risk subgroups who may benefit from targeted screening and interventions.

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Health‐related quality of life in children and emotional reactions of parents following completion of cancer treatment

Cited by 69 publications

References 27 publications

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Socio-economic Status Plays Important Roles in Childhood Cancer Treatment Outcome in Indonesia

Psychosexual Functioning Among Adult Female Survivors of Childhood Cancer: A Report From the Childhood Cancer Survivor Study

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