Interaction Between the Severely Demented Patient and His Caregiver during Feeding

Athlin, Elsy; Norberg, Astrid

doi:10.1111/j.1471-6712.1987.tb00612.x

Cited by 53 publications

(40 citation statements)

References 37 publications

(27 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…What is known about eating impairment in AD is primarily limited to institutional settings [11][12][13][14][15][16][17]. As many as 50% of nursing home residents may require feeding assistance ranging from organizing and setting up the meal to total assistance, and 32% of nursing home residents have been reported to have swallowing problems [7].…”

mentioning

confidence: 99%

Eating Changes in Mild-Stage Alzheimer's Disease: A Pilot Study

1997

View full text Add to dashboard Cite

Eating impairment is well documented in the late stage of Alzheimer's disease (AD) but when these eating changes actually begin in the disease process is not known. Eating was defined as consisting of two components, self-feeding and swallowing. Self-feeding and swallowing of healthy elderly were compared with a group of individuals with mild AD. AD subjects received significantly more partner-initiated cues or direct assistance than controls. In addition, subject-initiated cued behaviors occurred more frequently in the AD group. AD subjects demonstrated significantly prolonged swallow durations for the oral transit duration (cookie), pharyngeal response duration (liquid), and total swallow duration (liquid). This pilot study suggests that self-feeding and swallowing changes may occur early in the course of AD.

show abstract

mentioning

confidence: 99%

Eating Changes in Mild-Stage Alzheimer's Disease: A Pilot Study

1997

View full text Add to dashboard Cite

show abstract

“…In order to achieve this subtle cooperation, the people involved must be able to perceive and interpret each other's verbal and non-verbal behaviour. According to Athlin and Norberg (1987), the main responsibility for this cooperation lies with caregivers, whose experiences, educational background and personal beliefs may influence the course of the mealtime.…”

Section: Introductionmentioning

confidence: 99%

The meaning of assisted feeding for people living with spinal cord injury: a phenomenological study

Martinsen

Harder

Biering‐Sørensen

2008

Journal of Advanced Nursing

View full text Add to dashboard Cite

Title. The meaning of assisted feeding for people living with spinal cord injury: a phenomenological study. Aim. This paper is a report of a study to explore the meaning of assisted feeding through the experiences of people with high cervical spinal cord injury. Background. Eating difficulties are known to affect a person's self-image and transform social lives. Little is known about the experience of assisted feeding as a permanent situation. Method. Sixteen people with high cervical spinal cord injury were interviewed twice within a period of 18 months in [2005][2006]. The second interview was combined with observation. Transcriptions of interviews and notes from the observations were analysed using the phenomenological guidelines by Dahlberg and colleagues. Findings. The essence of the phenomenon assisted feeding was described as a constructed pattern based on coordinated attention between the person with high cervical spinal cord injury and the helper. The constituents of the essence were: paralysis as a condition of life, facing the altered meal, reconciling with diminished bodily anchoring, sensitive cooperation between self and helper, realization of own values around meals, balanced use of meal-related devices and negotiating relationship with helpers. Conclusion. Assisted feeding should be adjusted to each individual person. Fixed procedures or routines should be avoided and assistive devices used with care. We recommend that continuity in the cooperation between the parties involved in assisted feeding is given priority, and that personal standard and social norms around meals are acknowledged.

show abstract

“…A good part of this was realized by nursing professionals, with institutionalized patients, and the most frequent themes were: ethical factors, interpretation of the feeding difficulties and saciety 4 , interventions and description of the feeding problems in a nutritional state. Most of the studies make use of questionnaires directed at health professionals in order to characterize the feeding situation, while few differentiate the phases of dementia and are not directed at swallowing.…”

Section: Discussionmentioning

confidence: 99%

“…Many studies have been directed to the feeding problems in people with dementia, principally when there is Swallowing in Alzheimer's disease Correia et al a dependence on the caregiver for the offering of food 4,12 . A good part of this was realized by nursing professionals, with institutionalized patients, and the most frequent themes were: ethical factors, interpretation of the feeding difficulties and saciety 4 , interventions and description of the feeding problems in a nutritional state.…”

Section: Discussionmentioning

confidence: 99%

“…Motor deficits, in more advanced phases of the disease 2 , result from its expansion to the frontal regions. There are reports of difficulties in swallowing management during the initial phases, although the most expressive problems are found in the moderate and severe phases of AD [3][4][5] . Thus, the objective of this study was to characterize the problems of feeding and swallowing in individuals with moderate and severe AD and correlate these with other functional aspects.…”

mentioning

confidence: 99%

See 1 more Smart Citation

Swallowing in moderate and severe phases of Alzheimer's disease

Correia

Morillo

2010

Arq. Neuro-Psiquiatr.

View full text Add to dashboard Cite

Objective: To characterize the problems of feeding and swallowing in individuals with moderate and severe Alzheimer´s disease (AD) and to correlate these with functional aspects. Method: Fifty patients with AD and their caregivers participated in this study. The instruments used were: Clinical Dementia Rating (CDR), Mini-Mental State Examination, Index of Activities of Daily Living, Assessment of Feeding and Swallowing Difficulties in Dementia, Functional Outcome Questionnaire for Aphasia, and Swallowing Rating Scale. Results: Problems with passivity, distraction and refusal to eat were encountered in the CDR2 group. Distraction, passivity and inappropriate feeding velocity were predominant in the CDR3 group. The problems were correlated with communication, swallowing severity of AD individuals and caregiver schooling. Conclusion: Given the inexorable functional alterations during the course of the disease, it is vital to observe these in patients with a compromised feeding and swallowing mechanism. The present study supplies the instruments to orient caregivers and professionals. Key words: swallowing disorders, Alzheimer's disease, caregivers.A deglutição nas fases moderada e grave da doença de Alzheimer RESUMO Objetivo: Caracterizar os problemas de alimentação e deglutição em indivíduos com doença de Alzheimer (DA) em fases moderada e grave e correlacioná-las com os aspectos funcionais. Método: Participaram do estudo 50 pacientes com DA e seus 50 cuidadores. Os instrumentos utilizados foram: Estadiamento clínico da demência (CDR), Mini-Exame do Estado Mental, Índice das Atividades de Vida Diária, Questionário de Habilidades de Alimentação e Deglutição, Questionário para Avaliação da Comunicação Funcional na Afasia, Escala de Gravidade da Deglutição. Resultados: No grupo CDR2 foram encontrados problemas como passividade, distração e recusa do alimento. No grupo CDR3 predominou a distração, passividade e velocidade de alimentação inapropriada que se correlacionaram com comunicação, gravidade da deglutição e escolaridade. Conclusão: Dadas as alterações funcionais inexoráveis no curso da doença, é imprescindível a sua observação em pacientes com prejuízos na alimentação e nos mecanismos da deglutição. O presente estudo fornece instrumentos para orientar cuidadores e profissionais. Palavras-chave: transtornos da deglutição, doença de Alzheimer, cuidadores. Correspondence

show abstract

Interaction Between the Severely Demented Patient and His Caregiver during Feeding

Cited by 53 publications

References 37 publications

Eating Changes in Mild-Stage Alzheimer's Disease: A Pilot Study

Eating Changes in Mild-Stage Alzheimer's Disease: A Pilot Study

The meaning of assisted feeding for people living with spinal cord injury: a phenomenological study

Swallowing in moderate and severe phases of Alzheimer's disease

Contact Info

Product

Resources

About