Abstract:BackgroundIndividuals with intellectual disability experience higher rates of physical and mental health conditions compared with the general population, yet have inequitable access to health care services. Improving the workplace capacity of medical professionals to meet the needs of this population is one way to reduce barriers to care and improve health outcomes. Using diverse pedagogy appropriate to learning outcomes to teach medical students about intellectual disability is a necessary step in improving f… Show more
“…We sent an email to every member of the working group and to others who have worked closely on one or more of our co-produced initiatives, including a novel service user advisory course for residents [12,16], an initiative to include service users in recruitment and selection for our psychiatry residency program, and new service user-led activities for medical students, to invite them to join the manuscript writing process if they were interested, willing, and able. Those who agreed to be part of the manuscript writing process are the authors of this paper.…”
Section: Methodsmentioning
confidence: 99%
“…We can learn from the experiences and pedagogies [14] of psychiatric survivors [15], people with disabilities [16], and Indigenous communities [17] as they have advocated for the recognition that their members hold legitimate knowledge and expertise that are valuable in their own right. While there are many differences between and within these communities, they share a common goal of liberation from social injustices, including epistemic injustice, which refers to the harms done when people are unfairly reduced as non-knowers, often because of prejudice [18].…”
Objective Co-production involves service providers and service users collaborating to design and deliver services together and is gaining attention as a means to improve provision of care. Aiming to extend this model to an educational context, the authors assembled a diverse group to develop co-produced education for psychiatry residents and medical students at the University of Toronto over several years. The authors describe the dynamics involved in co-producing psychiatric education as experienced in their work. Methods A collaborative autobiographical case study approach provides a snapshot of the collective experiences of working to write a manuscript about paying service users for their contributions to co-produced education. Data were collected from two inperson meetings, personal communications, emails, and online comments to capture the fullest possible range of perspectives from the group about payment. Results The juxtaposition of the vision for an inclusive process against the budgetary constraints that the authors faced led them to reflect deeply on the many meanings of paying service user educators for their contributions to academic initiatives. These reflections revealed that payment had implications at personal, organizational, and social levels. Conclusion Paying mental health service user educators for their contributions is an ethical imperative for the authors. However, unless payment is accompanied by other forms of demonstrating respect, it aligns with organizational structures and practices, and it is connected to a larger goal of achieving social justice, the role of service users as legitimate knowers and educators and ultimately their impact on learners will be limited.
“…We sent an email to every member of the working group and to others who have worked closely on one or more of our co-produced initiatives, including a novel service user advisory course for residents [12,16], an initiative to include service users in recruitment and selection for our psychiatry residency program, and new service user-led activities for medical students, to invite them to join the manuscript writing process if they were interested, willing, and able. Those who agreed to be part of the manuscript writing process are the authors of this paper.…”
Section: Methodsmentioning
confidence: 99%
“…We can learn from the experiences and pedagogies [14] of psychiatric survivors [15], people with disabilities [16], and Indigenous communities [17] as they have advocated for the recognition that their members hold legitimate knowledge and expertise that are valuable in their own right. While there are many differences between and within these communities, they share a common goal of liberation from social injustices, including epistemic injustice, which refers to the harms done when people are unfairly reduced as non-knowers, often because of prejudice [18].…”
Objective Co-production involves service providers and service users collaborating to design and deliver services together and is gaining attention as a means to improve provision of care. Aiming to extend this model to an educational context, the authors assembled a diverse group to develop co-produced education for psychiatry residents and medical students at the University of Toronto over several years. The authors describe the dynamics involved in co-producing psychiatric education as experienced in their work. Methods A collaborative autobiographical case study approach provides a snapshot of the collective experiences of working to write a manuscript about paying service users for their contributions to co-produced education. Data were collected from two inperson meetings, personal communications, emails, and online comments to capture the fullest possible range of perspectives from the group about payment. Results The juxtaposition of the vision for an inclusive process against the budgetary constraints that the authors faced led them to reflect deeply on the many meanings of paying service user educators for their contributions to academic initiatives. These reflections revealed that payment had implications at personal, organizational, and social levels. Conclusion Paying mental health service user educators for their contributions is an ethical imperative for the authors. However, unless payment is accompanied by other forms of demonstrating respect, it aligns with organizational structures and practices, and it is connected to a larger goal of achieving social justice, the role of service users as legitimate knowers and educators and ultimately their impact on learners will be limited.
“…Professionals' limited knowledge about mental health and stigmatizing attitudes toward mental illness can delay the diagnosis of autism [76] and other disorders, such as IDD (so-called intellectual disability), which can result in inequitable access to health care services [77] that may be due to a poor communication process. In our study, the percentage of mental healthcare professionals with a positive attitude toward and high knowledge about ASD and ADHD was 29.4% and 22.7% respectively, while that for IDD was lower (15.5%); this results could be explained by the fact that IDD is not clearly perceived as a pathological condition and, to an even greater degree, it is not considered a public health problem in Mexico.…”
AbstractBackground: Paternalism/overprotection limits communication between healthcare professionals and patients and does not promote shared therapeutic decision-making. In the global north, communication patterns have been regulated to promote autonomy, whereas in the global south, they reflect the physician’s personal choices. The goal of this work was contribute to knowledge of the communication patterns used in clinical practice in Mexico and to identify the determinants that favour a doctor-patient relationship characterized by low paternalism/autonomism. Methods: A self-report study of communication patterns within a sample of 761 mental healthcare professionals in Central and Western Mexico was conducted. Multiple ordinal logistic regression models were performed to analyse paternalism and associated factors. Results: A high prevalence (68.7% [95% CI 60.0-70.5]) of paternalism was observed among mental healthcare professionals in Mexico. The main determinants of low paternalism/autonomism were medical specialty (OR 1.67 [95% CI 1.16-2.40]) and gender, with female physicians more likely to explicitly share diagnoses and therapeutic strategies with patients and their families (OR 1.57 [95% CI 1.11-2.22]). A pattern of highly explicit communication was strongly associated with low paternalism/autonomism (OR 12.13 [95% CI 7.71-19.05]). Finally, a modifying effect of age strata on the association between communication pattern or specialty and low paternalism/autonomism was observed. Conclusions: Among mental healthcare professionals in Mexico, an elevated paternalism prevailed. Gender, specialty, and a pattern of open communication were closely associated with low paternalism/autonomism. Strengthening the competencies of health professionals and promoting explicit communication could contribute to the transition towards more autonomist communication in clinical practice in Mexico. The ethical implications will need to be resolved in the near future.
“…Professionals' limited knowledge about mental health and stigmatizing attitudes toward mental illness can delay the diagnosis of autism [73] and other disorders, such as IDD (so-called intellectual disability), which can result in inequitable access to health care services [74] that may be due to a poor communication process. In our study, the percentage of mental healthcare professionals with a positive attitude toward and high knowledge about ASD and ADHD was 29.4% and 22.7% respectively, while that for IDD was lower (15.5%); these results could be explained by the fact that IDD is not clearly perceived as a pathological condition and, to an even greater degree, it is not considered a public health problem in Mexico.…”
Background: Paternalism/overprotection limits communication between healthcare professionals and patients and does not promote shared therapeutic decision-making. In the global north, communication patterns have been regulated to promote autonomy, whereas in the global south, they reflect the physician’s personal choices. The goal of this work was contribute to knowledge of the communication patterns used in clinical practice in Mexico and to identify the determinants that favour a doctor-patient relationship characterized by low paternalism/autonomy.Methods: A self-report study of communication patterns within a sample of 761 mental healthcare professionals in Central and Western Mexico was conducted. Multiple ordinal logistic regression models were performed to analyse paternalism and associated factors. Results: A high prevalence (68.7% [95% CI 60.0-70.5]) of paternalism was observed among mental healthcare professionals in Mexico. The main determinants of low paternalism/autonomy were medical specialty (OR 1.67 [95% CI 1.16-2.40]) and gender, with female physicians more likely to explicitly share diagnoses and therapeutic strategies with patients and their families (OR 1.57 [95% CI 1.11-2.22]). A pattern of highly explicit communication was strongly associated with low paternalism/autonomy (OR 12.13 [95% CI 7.71-19.05]). Finally, a modifying effect of age strata on the association between communication pattern or specialty and low paternalism/autonomy was observed.Conclusions: Among mental healthcare professionals in Mexico, an elevated paternalism prevailed. Gender, specialty, and a pattern of open communication were closely associated with low paternalism/autonomy. Strengthening the competencies of health professionals and promoting explicit communication could contribute to the transition towards more autonomist communication in clinical practice in Mexico. The ethical implications will need to be resolved in the near future.
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