Integrating intersectionality into autonomy: Reflections on feminist bioethics and egg freezing

Proost, Michiel De

doi:10.21825/digest.v7i2.16532

Cited by 6 publications

(5 citation statements)

References 39 publications

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“…B. Grzanka et al 2016;Wilson et al 2019;de Proost 2021). Insgesamt findet es jedoch noch kaum Berücksichtigung; vor allem in der deutschsprachigen Medizinethik wird es selten genutzt (Kalendar 2010;Verdonk et al 2020;Weßel 2021).…”

Section: Drei Thesen Zu Feministischen Perspektiven In Der Medizinethikunclassified

Feminist perspectives in German-language medical ethics: a review and three hypotheses

et al. 2022

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ZusammenfassungIm internationalen Diskurs sind feministische Perspektiven auf die Medizinethik bereits etabliert. Demgegenüber scheinen diese bislang nur vereinzelt in den deutschsprachigen medizinethischen Diskurs eingebracht zu werden. In diesem Artikel untersuchen wir, welche feministischen Perspektiven im deutschsprachigen medizinethischen Diskurs vertreten sind, und schlagen weitere Ansätze für eine feministische Medizinethik vor.Zu diesem Zweck zeichnen wir mittels einer systematisierten Literaturrecherche feministische Perspektiven im deutschsprachigen medizinethischen Diskurs seit der Etablierung der Medizinethik als eigenständiger institutionalisierter Disziplin nach. Wir analysieren, welche Themen bereits innerhalb der Medizinethik aus einer feministischen Perspektive untersucht worden sind, und identifizieren Leerstellen. Basierend auf der Literaturrecherche, unseren eigenen Vorarbeiten sowie der Zusammenarbeit in der Arbeitsgruppe in der Akademie für Ethik in der Medizin „Feministische Perspektiven in der Bio- und Medizinethik“ stellen wir drei Thesen vor, die aus unserer Sicht einer Weiterentwicklung des deutschsprachigen medizinethischen Diskurses dienen können. Die erste These bezieht sich auf die Ziele feministischer Medizinethiken und besagt, dass diese (epistemische) Gerechtigkeit anstreben. Die zweite These stellt zentrale Eigenschaften von feministischen Medizinethiken als kritisch und kontext-sensibel heraus. In der dritten These diskutieren wir Intersektionalität und Postkolonialismus als theoretische Ansätze, die zu einer epistemisch gerechten, kritischen und kontext-sensiblen Medizinethik beitragen können. Wir argumentieren, dass feministische Perspektiven grundständig verankert werden sollten. Der Artikel schließt mit einem Ausblick auf die Arbeit der im letzten Jahr gegründeten Arbeitsgruppe in der Akademie für Ethik in der Medizin „Feministische Perspektiven in der Bio- und Medizinethik“.

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Section: Drei Thesen Zu Feministischen Perspektiven In Der Medizinethikunclassified

Feminist perspectives in German-language medical ethics: a review and three hypotheses

et al. 2022

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“…Various scholars criticize that bioethics do not sufficiently address issues of social justice, including intersectional perspectives [ 32 , 42 , 86 ]. This criticism comes e.g.…”

Section: Introductionmentioning

confidence: 99%

“…from feminist perspectives arguing that conceptions of justice need to address “real-life contemporary forms of structural injustice” and look at how forms of oppression and domination are also sometimes exacerbated by health policies and practices in healthcare [ 42 ]. De Proost [ 32 ] adds to such feminist perspectives with her critique of principlism as focusing on individuals instead of power relations and social justice, arguing that an intersectional approach could inform theorizing. Further criticism comes from Black Bioethics, which could “help reshape how bioethicists apply basic principles like justice” to consider Black peoples lived realities in a complex, intersectional way [ 86 ].…”

Section: Introductionmentioning

confidence: 99%

The concept of intersectionality in bioethics: a systematic review

Brünig,

Kahrass,

Salloch

2024

BMC Med Ethics

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Background Intersectionality is a concept that originated in Black feminist movements in the US-American context of the 1970s and 1980s, particularly in the work of feminist scholar and lawyer Kimberlé W. Crenshaw. Intersectional approaches aim to highlight the interconnectedness of gender and sexuality with other social categories, such as race, class, age, and ability to look at how individuals are discriminated against and privileged in institutions and societal power structures. Intersectionality is a “traveling concept”, which also made its way into bioethical research. Methods We conducted a systematic review to answer the question of where and how the concept of intersectionality is applied in bioethical research. The PubMed and Web of Science databases were systematically searched and 192 articles addressing bioethical topics and intersectionality were finally included. Results The qualitative analysis resulted in a category system with five main categories: (1) application purpose and function, (2) social dimensions, (3) levels, (4) health-care disciplines and academic fields, and (5) challenges, limitations, and critique. The variety of academic fields and health-care disciplines working with the concept ranges from psychology, through gynaecology to palliative care and deaf studies. Important functions that the concept of intersectionality fulfils in bioethical research are making inequities visible, creating better health data collections and embracing self-reflection. Intersectionality is also a critical praxis and fits neatly into the overarching goal of bioethics to work toward social justice in health care. Intersectionality aims at making research results relevant for respective communities and patients, and informs the development of policies. Conclusions This systematic review is, to the best of our knowledge, the first one to provide a full overview of the reference to intersectionality in bioethical scholarship. It creates a basis for future research that applies intersectionality as a theoretical and methodical tool for analysing bioethical questions.

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“…However, inequality of access to this reproductive technology is not limited to costs. Broader, established social hierarchies such as racial identity and sexual orientation may play a vital role in access to SEF [ 30 ]. Therefore, the question remains open as to who is likely to benefit from the implementation of reimbursement.…”

Section: Introductionmentioning

confidence: 99%

‘I feel that injustice is being done to me’: a qualitative study of women’s viewpoints on the (lack of) reimbursement for social egg freezing

Proost

Coene

Nekkebroeck³

et al. 2022

BMC Med Ethics

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Background During the last decade, the possibility for women to cryopreserve oocytes in anticipation of age-related fertility loss, also referred to as social egg freezing, has become an established practice at fertility clinics around the globe. In Europe, there is extensive variation in the costs for this procedure, with the common denominator that there are almost no funding arrangements or reimbursement policies. This is the first qualitative study that specifically explores viewpoints on the (lack of) reimbursement for women who had considered to uptake at least one social egg freezing cycle in Belgium. Methods To understand the moral considerations of these women, drawing from twenty-one interviews, this paper integrates elements of a symbiotic empirical ethics approach and thematic analysis. Results We identify four themes: (1) being confronted with unclear information; (2) financial costs as ongoing concern; (3) necessity of coverage; (4) extent of reimbursement. In the first theme, we found that some women were concerned about the lack of clear information about the cost of social egg freezing. In the second theme, we report moral sentiments of injustice and discrimination which some women attributed to their struggles and needs not being recognised. The third theme illustrates diverse views on reimbursement, ranging from viewing social egg freezing as an elective treatment not appropriate for reimbursement to preferences for greater public responsibility and wider access. Finally, we describe the participants’ varying proposals for partial reimbursement and the idea that it should not be made available for free. Conclusions This research adds important empirical insights to the bioethics debate on social egg freezing, in particular by presenting (potential) users’ views on the lack of reimbursement. While there is much more to say about the ethical and political complexities of the reimbursement of this procedure, our study highlighted the voices of (potential) users and showed that at least some of them would welcome the coverage of SEF through the public healthcare insurance.

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Integrating intersectionality into autonomy: Reflections on feminist bioethics and egg freezing

Cited by 6 publications

References 39 publications

Feminist perspectives in German-language medical ethics: a review and three hypotheses

Feminist perspectives in German-language medical ethics: a review and three hypotheses

The concept of intersectionality in bioethics: a systematic review

‘I feel that injustice is being done to me’: a qualitative study of women’s viewpoints on the (lack of) reimbursement for social egg freezing

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