Inpatients with Severe Anorexia Nervosa and Their Siblings: Non‐shared Experiences and Family Functioning

Dimitropoulos, Gina; Freeman, Victoria; Bellai, Kaitlin; Olmsted, Marion P.

doi:10.1002/erv.2230

Cited by 28 publications

(35 citation statements)

References 107 publications

(162 reference statements)

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“…Such studies provided fairly convergent findings, especially with regard to the characteristics associated with family functioning among individuals with ED. These characteristics include, in general, dysfunctional relationship patterns, parental overload, conflicts related to the role of caregiver, difficulties in dealing with the stigma in one’s own family regarding the affected member, reunion or family breakdown, social isolation, financial difficulties, among others 20,26,28,32,34–37,39…”

Section: Resultsmentioning

confidence: 99%

“…However, in contrast to their siblings, patients perceived themselves as having lower levels of social support. The authors discuss these results as being due to impaired social cognition, which explains that individuals with ED perceive less social support through their inability to accurately process social stimuli 39. It is also possible that caregivers and siblings attempt to provide support, which is misinterpreted or rejected by the patient because of their impaired social cognition and, in turn, the quality and quantity of social support may diminish over time.…”

Section: Discussionmentioning

confidence: 99%

“…Another study sought to examine the differential factors between individuals with AN and their siblings 39. Results showed that individuals with AN and their siblings did not report any significant differences in terms of maternal and paternal affection and control.…”

Section: Discussionmentioning

confidence: 99%

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Social support networks and eating disorders: an integrative review of the literature

Leonidas¹,

Santos²

2014

NDT

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AimsThis study aimed to analyze the scientific literature about social networks and social support in eating disorders (ED).MethodsBy combining keywords, an integrative review was performed. It included publications from 2006–2013, retrieved from the MEDLINE, LILACS, PsycINFO, and CINAHL databases. The selection of articles was based on preestablished inclusion and exclusion criteria.ResultsA total of 24 articles were selected for data extraction. There was a predominance of studies that used nonexperimental and descriptive designs, and which were published in international journals. This review provided evidence of the fact that fully consolidated literature regarding social support and social networks in patients with ED is not available, given the small number of studies dedicated to the subject. We identified evidence that the family social network of patients with ED has been widely explored by the literature, although there is a lack of studies about other networks and sources of social support outside the family.ConclusionThe evidence presented in this study shows the need to include other social networks in health care. This expansion beyond family networks would include significant others – such as friends, colleagues, neighbors, people from religious groups, among others – who could help the individual coping with the disorder. The study also highlights the need for future research on this topic, as well as a need for greater investment in publications on the various dimensions of social support and social networks.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Social support networks and eating disorders: an integrative review of the literature

Leonidas¹,

Santos²

2014

NDT

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“…Having a family member who suffers from an ED has a profound effect on family relationships and causes conflicts in the family 4–8. Siblings report worrying in silence and fear that the ill sibling might die,4–7 and they may feel uncomfortable to express feelings that would bring attention to themselves and adopt a role as an undemanding child7 or take on a role as a mediator between the ill sibling and the parents 9…”

Section: Introductionmentioning

confidence: 99%

Living with a sibling who suffers from an eating disorder: a pilot interview study

Callio¹,

Gustafsson²

2016

JMDH

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Background and objectiveHaving a sibling who suffers from an eating disorder (ED) has a profound effect on healthy siblings’ own health, quality of life and family relationships, yet siblings have been an excluded group within health care, and there is a lack of knowledge regarding healthy siblings’ needs and wishes for information and support. Thus, the aim of this study was to examine adolescents’ experiences of living with a sibling who suffers from an ED.MethodIn this small-scale pilot study, three boys and two girls aged 15–20 years were interviewed, and the interviews were analyzed by qualitative content analysis.ResultsThis study confirms prior knowledge of adolescents’ experiences of living with a sibling who is suffering from an ED. The adolescents were concerned about their siblings and lacked information about their siblings’ illness and treatment progress. The girls described that their everyday life had been heavily influenced by their sisters’ illness, while the boys described that their everyday life with friends and activities were not affected to such a great extent. One new result that emerged as something positive was that some informants described that although the ED was a source of conflict in the family, it had led to greater awareness of the importance of gaining sufficient energy and had contributed to better meal situations in the family.ConclusionHaving a sibling with an ED had a profound and negative effect on family relationships, and was often a source of conflict, especially around mealtime. However, it appeared that if parents were able to organize family meals and create an open and supportive climate, the negative effects for the family could be reduced. The health care professionals need to acknowledge the siblings’ need for information and support, and support parents in their important role of caring for well siblings.

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“…125 Additionally, the disorder is externalized from the child to release blame toward the child for their disorder. 114 FBT progresses through 3 phases that target the goals of treatment in children and adolescents with EDs: physical, behavioral and psychological recovery.…”

Section: Treatment Modalitiesmentioning

confidence: 99%

Eating Disorders in Children and Adolescents: State of the Art Review

2014

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This is the 3rd in our series on Adolescent Health. abstract Despite their high prevalence, associated morbidity and mortality, and available treatment options, eating disorders (EDs) continue to be underdiagnosed by pediatric professionals. Many adolescents go untreated, do not recover, or reach only partial recovery. Higher rates of EDs are seen now in younger children, boys, and minority groups; EDs are increasingly recognized in patients with previous histories of obesity. Medical complications are common in both full and subthreshold EDs and affect every organ system. No single cause of EDs has emerged, although neurobiological and genetic predispositions are emerging as important. Recent treatment paradigms acknowledge that they are not caused by families or chosen by patients. EDs present differently in pediatric populations, and providers should have a high index of suspicion using new Diagnostic and Statistical Manual, 5th edition diagnostic criteria because early intervention can affect prognosis. Outpatient family-based treatment focused on weight restoration, reducing blame, and empowering caregivers has emerged as particularly effective; cognitive behavioral therapy, individual therapy, and higher levels of care may also be appropriate. Pharmacotherapy is useful in specific contexts. Full weight restoration is critical, often involves high-calorie diets, and must allow for continued growth and development; weight maintenance is typically inappropriate in pediatric populations. Physical, nutritional, behavioral, and psychological health are all metrics of a full recovery, and pediatric EDs have a good prognosis with appropriate care. ED prevention efforts should work toward aligning with families and understanding the impact of antiobesity efforts. Primary care providers can be key players in treatment success.

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Inpatients with Severe Anorexia Nervosa and Their Siblings: Non‐shared Experiences and Family Functioning

Abstract: Family-based and sibling-based interventions that aim to reduce the effects of the illness on the sibling relationship and the family are recommended.

Cited by 28 publications

References 107 publications

Social support networks and eating disorders: an integrative review of the literature

Social support networks and eating disorders: an integrative review of the literature

Living with a sibling who suffers from an eating disorder: a pilot interview study

Eating Disorders in Children and Adolescents: State of the Art Review

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