Inpatient Psychiatric Care: Families’ Expectations and Perceptions of Support Received From Health Professionals

Stigma toward families with members managing mental health problems remains underresearched in Latino communities. Using community-based surveys on mental health stigma and help-seeking attitudes, this study examined the associations between family-level stigma and participant sociodemographic characteristics. Only education level and spirituality significantly predicted family-level stigma. Individuals with higher education levels exhibited lower stigma scores. High spirituality levels were associated with minimal increases in stigma. The study underscores the influence of education on family-level stigma among Latino individuals. Given the importance of family in Latino culture, reshaping community narratives around mental health to support affected families can promote inclusivity and support, reducing stigmatization.

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Family involvement and patient-experienced improvement and satisfaction with care: a nationwide cross-sectional study in Danish psychiatric hospitals

Svendsen

Ellegaard

Jeppesen

et al. 2021

BMC Psychiatry

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Background Randomised controlled trials suggest that family therapy has a positive effect on the course of depression, schizophrenia and anorexia nervosa. However, it is largely unknown whether a positive link also exists between caregiver involvement and patient outcome in everyday psychiatric hospital care, using information reported directly from patients, i.e. patient-reported experience measures (PREM), and their caregivers. The objective of this study is to examine whether caregiver-reported involvement is associated with PREM regarding patient improvement and overall satisfaction with care. Methods Using data from the National Survey of Psychiatric Patient Experiences 2018, we conducted a nationwide cross-sectional study in Danish psychiatric hospitals including patients and their caregivers who had been in contact with the hospital (n = 940 patients, n = 1008 caregivers). A unique patient identifier on the two distinct questionnaires for the patient and their caregiver enabled unambiguous linkage of data. In relation to PREM, five aspects of caregiver involvement were analysed using logistic regression with adjustment for patient age, sex and diagnosis. Results We consistently find that high caregiver-reported involvement is statistically significantly associated with high patient-reported improvement and overall satisfaction with care with odds ratios (OR) ranging from 1.69 (95% confidence interval (CI) 0.95–2.99) to 4.09 (95% CI 2.48–6.76). This applies to the following aspects of caregiver-reported involvement: support for the patient-caregiver relationship, caregiver information, consideration for caregiver experiences and the involvement of caregivers in decision making. No statistically significant association is observed regarding whether caregivers talk to the staff about their expectations for the hospital contact. Conclusion This nationwide study implies that caregiver involvement focusing on the patient-caregiver relationship is positively associated with patient improvement and overall satisfaction with care in everyday psychiatric hospital care.

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Inpatient Psychiatric Care: Families’ Expectations and Perceptions of Support Received From Health Professionals

Abstract: Nurses are well positioned to educate, advocate, and support overburdened families. Greater knowledge of families' challenges would enable nurses to anticipate and meet their needs.

Cited by 5 publications

References 19 publications

Relatives’ Experiences of Mental Health Care, Family Burden and Family Stigma: Does Participation in Patient-Appointed Resource Group Assertive Community Treatment (RACT) Make a Difference?

Relatives’ Experiences of Mental Health Care, Family Burden and Family Stigma: Does Participation in Patient-Appointed Resource Group Assertive Community Treatment (RACT) Make a Difference?

Stigma Toward Families With Mental Health Problems in Latino Communities

Family involvement and patient-experienced improvement and satisfaction with care: a nationwide cross-sectional study in Danish psychiatric hospitals

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