Relatives’ Experiences of Mental Health Care, Family Burden and Family Stigma: Does Participation in Patient-Appointed Resource Group Assertive Community Treatment (RACT) Make a Difference?

Sjöström, Nils; Wærn, Margda; Johansson, Anita; Weimand, Bente; Johansson, Ola; Ewertzon, Mats

doi:10.1080/01612840.2021.1924322

Cited by 7 publications

(5 citation statements)

References 37 publications

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“…The participants' experience of alienation in this study is in agreement with other studies conducted in the context of psychiatric outpatient care in Sweden [33] and Norway [32].…”

Section: Discussionsupporting

confidence: 91%

“…more autonomous than elderly people in nursing homes, which may lead to them not wanting family members to be involved in the care [52]. The participants' experience of alienation in this study is in agreement with other studies conducted in the context of psychiatric outpatient care in Sweden [33] and Norway [32].…”

Section: Of Little Importancesupporting

confidence: 88%

“…As in previous studies using the FIAQ-R [20,32,33], data analysis was performed using rank-based, nonparametric statistical methods [34,35]. To describe the distributions of the response profiles, the median level (Md) and quartiles (Q 1 , Q 3 ) were used.…”

Section: Discussionmentioning

confidence: 99%

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A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care

Momeni

Årestedt

Alvariza

et al. 2022

Scandinavian Caring Sciences

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The aim of this study was to describe and compare family members' experiences of approach in encounters with healthcare professionals and possible feelings of alienation in the professional care within four care contexts: the care of older people, psychiatric care, palliative care and diabetes care. The design was an explorative cross‐sectional survey study. Data were collected in Sweden using the Family Involvement and Alienation Questionnaire‐Revised (FIAQ‐R). It measures family members' experiences of the healthcare professionals' approach and the family members' feeling of alienation from the provision of professional care. A total of 1047 questionnaires were distributed to family members using convenient sampling method, of which 294 were included. Data were analysed using rank‐based, non‐parametric statistical methods. The results indicated that most respondents experienced a positive actual approach from the healthcare professionals. Many participants rated the importance of approach at a higher level than their actual experience. Participants in the context of diabetes care reported a more negative actual approach from the healthcare professionals than did participants in the other contexts and considered the healthcare professionals' approach towards them as being less important. The results for the entire group indicated that the participants felt a low level of alienation from the professional care. Participants in the context of the care of older people reported significantly lower level of feeling of being alienated than did participants in the contexts of psychiatric care and diabetes care. The differences between participants in diabetes care and other care contexts can possibly be explained by a more fully implemented self‐care approach among the patients in diabetes care than in the other care contexts. Even though the results are quite positive, it is still important that nurses consider a family‐centred approach to better adapt to the needs of both the family members and the patients.

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“…The participants' experience of alienation in this study is in agreement with other studies conducted in the context of psychiatric outpatient care in Sweden [33] and Norway [32].…”

Section: Discussionsupporting

confidence: 91%

Section: Of Little Importancesupporting

confidence: 88%

See 1 more Smart Citation

A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care

Momeni

Årestedt

Alvariza

et al. 2022

Scandinavian Caring Sciences

View full text Add to dashboard Cite

show abstract

“…The assessments in the FIAQ-R are subjective and the data consists of ordered categories. As in previous studies using the FIAQ or the FIAQ-R [10][11][12][17][18][19] data were analyzed using rank-based, non-parametric statistical methods. 20 The median level (Md) and quartiles (Q 1 ;Q 3 ) were used to describe the response profiles.…”

Section: Data Analysis Statistical Analysesmentioning

confidence: 99%

Family Members’ Experiences with the Healthcare Professionals in Nursing Homes – A Survey Study

Momeni¹,

Ewertzon²,

Årestedt³

et al. 2022

NRR

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The purpose was to investigate family members' experiences of the healthcare professionals' approach and feeling of alienation in nursing homes. Methods: This study had a cross-sectional design collecting data from seven nursing homes in Sweden using the Family Involvement and Alienation Questionnaire -Revised (FIAQ-R). The final sample consisted 133 family members (response rate 42.6%). Data were analyzed with a variety of rank-based, non-parametric statistical methods. Results: Family members in general experienced a positive approach from the healthcare professionals and considered that as being of the very highest importance. This could be explained by the skewed sociodemographic characteristics of the sample. The concept of continuity generated the most comments of a negative character indicating the importance of organizational factors in nursing homes. Conclusion:The results indicate the need to improve continuity in the care of older persons in nursing homes by limiting the amount of different health care professionals surrounding the older person. Also, it highlights the importance of having a specific contact person assigned to each older person living in nursing homes.

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“…The Sexuality Information and Education Council of the United States (SIECUS) believe that sex education is an inalienable right for all human beings [14]. Sex education has sometimes been neglected in patients with severe mental illness (SMI) [4,28,30,33,34,40].…”

Section: Introductionmentioning

confidence: 99%

Evaluating family knowledge about sexual health in patients with severe mental illness: a qualitative study in Iran

et al. 2022

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Introduction Although paying more attention to sex education in patients with severe mental illness is recommended in the literature, the role of families has not been specifically clarified. Aim This study aims to explore family knowledge about sexual health in patients with severe mental illness in Iran. Methods We conducted a total number of 21 interviews with 4 patients, 5 families, 7 psychiatrists, 1 general practitioner, 2 nurses, and 2 psychologists through purposive sampling. The text was analyzed using conventional qualitative content analysis. Results The family knowledge about patients’ sexual health is described in three subcategories: ‘informal sources for knowledge acquisition’, ‘common myths, and ‘inappropriate reaction to the patients’ needs”. Conclusions Family sex education should be integrated into a comprehensive rehabilitation program to promote sexual health in patients with severe mental illness. Family members should be aware of the necessity of accurate information about patients’ sexual concerns.

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Relatives’ Experiences of Mental Health Care, Family Burden and Family Stigma: Does Participation in Patient-Appointed Resource Group Assertive Community Treatment (RACT) Make a Difference?

Cited by 7 publications

References 37 publications

A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care

A survey study of family members' encounters with healthcare services within the care of older people, psychiatric care, palliative care and diabetes care

Family Members’ Experiences with the Healthcare Professionals in Nursing Homes – A Survey Study

Evaluating family knowledge about sexual health in patients with severe mental illness: a qualitative study in Iran

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