Information needs of the informal carers of women treated for breast cancer

Beaver, Kinta; Witham, Gary

doi:10.1016/j.ejon.2006.01.006

Cited by 53 publications

(57 citation statements)

References 24 publications

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“…Hence, carers need to be acknowledged as valuable providers of support but also as needing support themselves to deal with the emotional impact of the diagnosis and treatment. Carers of women with breast cancer have been shown to have similar needs for information to those diagnosed and treated for breast cancer (Beaver & Witham 2007), indicating that discussions about care and treatment should involve close family members. As recall and retention of information are limited at the time of initial diagnosis, having family members in attendance at consultations and engaging with them as a unit of care may enable information to be better recalled and retained.…”

Section: Discussionmentioning

confidence: 99%

Exploring patient experiences of neo-adjuvant chemotherapy for breast cancer

Beaver

Williamson

Briggs

2016

European Journal of Oncology Nursing

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Section: Discussionmentioning

confidence: 99%

Exploring patient experiences of neo-adjuvant chemotherapy for breast cancer

Beaver

Williamson

Briggs

2016

European Journal of Oncology Nursing

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“…Sources of information were obtained using a framework similar to Beaver and Witham [21] in which a list of potential sources of information were presented including professional sources (clinic nurse, general practitioner, radiation therapy technologists (RTs), media sources (magazines, newspapers, television/radio), written information (leaflets, medical books), other patients and family/friends). Participants indicated whether they had received information from a particular source (yes or no).…”

Section: Data Collectionmentioning

confidence: 99%

The Experience of Symptoms and Information Needs of Cancer Patients Undergoing Radiotherapy

2011

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The aim was to determine the symptoms and information needs of cancer patients undergoing radiotherapy (RT). The study population consisted of 345 RT patients accrued over 6 months. Patients' needs for information, sources of information, levels of satisfaction with information, symptoms and demographic factors were assessed by questionnaire and personal interview. Chi-square tests were used to test the correlation between patient variables and information needs/experiences. Most patients (80.9%) experienced RT side effects--fatigue, nausea, vomiting and loss of appetite were the most frequent. More than half of the patients had not received information about RT; however, patients (83.2%) who had problems during the treatment wanted to have information (P < 0.05). The majority of the patients receiving information identified doctors as the primary source. The patients' prioritized needs for information were all the aspects of their diagnosis and treatment and side effects of RT. Overall, the results indicate that most patients require information about their treatment and also experienced a variety of symptoms.

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“…FCs felt they were responsible for gathering information about the disease [61], and described becoming researchers, emphasizing the benefits of and necessity for being informed caregivers [66]. FCs reported a need for more information about diagnosis, treatments, and management of symptoms, side effects, and physical care, particularly regarding home care after discharge [60,67,68]. Often the FCs described not knowing what their information needs were until a crisis occurred.…”

Section: Social Problems and The Need For Informationmentioning

confidence: 99%

Review of the literature on the effects of caring for a patient with cancer

2009

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Objective: To adequately help family caregivers (FCs) of cancer patients, clinicians need to understand the complexity of the problems and responsibilities associated with cancer patients illness that FCs experience.Methods: This systematic review identified the types of problems and burdens that FCs of cancer patients experience during the patient's illness. We also analyzed the language caregivers use to communicate their problems and responsibilities related to caregiving for the cancer patient.Results: Of 2845 titles identified, 192 articles met the inclusion criteria and are included in this review. Of these, 164 were research-based. In addition to FC responsibilities and the impact of being a caregiver on daily life, a number of other physical, social, and emotional problems related to caregiving for these FCs were identified.Conclusion: A substantial evidence base supports the conclusion that FCs experience many difficult problems and increased responsibilities during and after the patient is undergoing treatment and rehabilitation for cancer. The insights gained from this review will help researchers and clinicians to understand the complexity of problems and responsibilities FCs experience. This understanding may encourage them to include support for FCs as part of total or holistic patient care. However, more research is needed to better understand the variations in caregiving experiences over time; how the caregiving perspective is influenced by different cultural, ethnic, or socioeconomic backgrounds as well as gender and age; and how problems and responsibilities related to caregiving interfere with daily life.

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Information needs of the informal carers of women treated for breast cancer

Cited by 53 publications

References 24 publications

Exploring patient experiences of neo-adjuvant chemotherapy for breast cancer

Exploring patient experiences of neo-adjuvant chemotherapy for breast cancer

The Experience of Symptoms and Information Needs of Cancer Patients Undergoing Radiotherapy

Review of the literature on the effects of caring for a patient with cancer

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