“…Participants who sought or accepted help described doing so as a means to normalise emotions and to seek “others’ ‘wisdom’ to navigate the path ahead or re‐envision their future” (Wenger & Oliffe, , p. 117) to create a “new normal” after cancer (Beaver, Williamson & Briggs, , p. 83). Seeking help enabled some participants to share and benchmark their distress and coping strategies through a variety of formal support services; for some this led to a sense of empowerment, improved outlook and a perception of wellness:While the types of services varied, they were generally perceived as helpful for reducing uncertainty, fear and loneliness, normalising patients’ experiences and in some cases encouraging a more positive outlook on their illness.…”
Section: Resultsmentioning
confidence: 99%
“…The depiction of an overwhelming deficit in the needs‐support gap sanctioning engagement with services was described by some individuals. This tipping point was sometimes clearly demarcated and conveyed by the use of emotive terms such as “desperate” (Harley et al., ; Steele & Fitch, ), “overwhelmed” (Lambert et al., ), “crisis” (Beaver et al., ), “breaking point” (Lambert et al., ), “catastrophic” and “last resort” (Mosher et al., ). This overwhelming deficit appeared influenced by a number of factors including symptom severity, multiple concurrent stressors, successive losses and exhaustion of coping strategies.…”
Many individuals affected by cancer who experience emotional distress report not wanting help. This review aims to understand why individuals affected by cancer seek, accept or decline help for emotional distress and what influences these actions. A systematic review and thematic synthesis of the qualitative literature was conducted. Using pre-defined search terms, four electronic databases were searched from January 2000 to May 2016. Pre-determined inclusion and exclusion criteria were then applied. Identified papers were quality appraised. In total, 32 papers were included in the synthesis. Four themes emerged from data synthesis: attaining normality-the normality paradox; being emotionally literate; perceptions of help; needs-support gap. Attaining normality is ideographic, context dependent and temporally situated; some individuals maintain normality by not seeking/declining help whereas others seek/accept help to achieve a new normality. Thus, attaining normality paradoxically functions to explain both why individuals sought/accepted help or did not seek/declined help. Data indicate that a context dependent, systems thinking approach is merited to enhance psychosocial care. In particular, clinicians must actively explore the personal context of an individual's distress to ensure that help desired and help offered are mutually understood. Further research must address the limitations of the current evidence base to advance theoretical understanding.
“…Participants who sought or accepted help described doing so as a means to normalise emotions and to seek “others’ ‘wisdom’ to navigate the path ahead or re‐envision their future” (Wenger & Oliffe, , p. 117) to create a “new normal” after cancer (Beaver, Williamson & Briggs, , p. 83). Seeking help enabled some participants to share and benchmark their distress and coping strategies through a variety of formal support services; for some this led to a sense of empowerment, improved outlook and a perception of wellness:While the types of services varied, they were generally perceived as helpful for reducing uncertainty, fear and loneliness, normalising patients’ experiences and in some cases encouraging a more positive outlook on their illness.…”
Section: Resultsmentioning
confidence: 99%
“…The depiction of an overwhelming deficit in the needs‐support gap sanctioning engagement with services was described by some individuals. This tipping point was sometimes clearly demarcated and conveyed by the use of emotive terms such as “desperate” (Harley et al., ; Steele & Fitch, ), “overwhelmed” (Lambert et al., ), “crisis” (Beaver et al., ), “breaking point” (Lambert et al., ), “catastrophic” and “last resort” (Mosher et al., ). This overwhelming deficit appeared influenced by a number of factors including symptom severity, multiple concurrent stressors, successive losses and exhaustion of coping strategies.…”
Many individuals affected by cancer who experience emotional distress report not wanting help. This review aims to understand why individuals affected by cancer seek, accept or decline help for emotional distress and what influences these actions. A systematic review and thematic synthesis of the qualitative literature was conducted. Using pre-defined search terms, four electronic databases were searched from January 2000 to May 2016. Pre-determined inclusion and exclusion criteria were then applied. Identified papers were quality appraised. In total, 32 papers were included in the synthesis. Four themes emerged from data synthesis: attaining normality-the normality paradox; being emotionally literate; perceptions of help; needs-support gap. Attaining normality is ideographic, context dependent and temporally situated; some individuals maintain normality by not seeking/declining help whereas others seek/accept help to achieve a new normality. Thus, attaining normality paradoxically functions to explain both why individuals sought/accepted help or did not seek/declined help. Data indicate that a context dependent, systems thinking approach is merited to enhance psychosocial care. In particular, clinicians must actively explore the personal context of an individual's distress to ensure that help desired and help offered are mutually understood. Further research must address the limitations of the current evidence base to advance theoretical understanding.
“…Kiecolt-Glaser, McGuire, Robles, & Glaser (2002) pointed out that the importance of social support lies in its ability to compensate the health-destroying psychological effects of negative emotions with positive emotional influence (acceptance, love, reassurance, emotional support and hope). Necessity and positive effects of social support have been proven by statistical tools in several studies: prevalence of certain diseases is significantly higher among those who live lonely and isolated with no or smaller families, fewer friends and who contact less people during work (Beaver, Williamson, & Briggs, 2015;Foxwell & Scott, 2011;Garssen, 2004;House, Umberson, & Landis, 1988;Saita, Acquati, & Kayser, 2015). Necessity and positive effects of social support have been proven by statistical tools in several studies: prevalence of certain diseases is significantly higher among those who live lonely and isolated with no or smaller families, fewer friends and who contact less people during work (Beaver, Williamson, & Briggs, 2015;Foxwell & Scott, 2011;Garssen, 2004;House, Umberson, & Landis, 1988;Saita, Acquati, & Kayser, 2015).…”
Section: Social Supportmentioning
confidence: 99%
“…This kind of "mental tuning" influences the neuroendocrine-and immune functions as well. Necessity and positive effects of social support have been proven by statistical tools in several studies: prevalence of certain diseases is significantly higher among those who live lonely and isolated with no or smaller families, fewer friends and who contact less people during work (Beaver, Williamson, & Briggs, 2015;Foxwell & Scott, 2011;Garssen, 2004;House, Umberson, & Landis, 1988;Saita, Acquati, & Kayser, 2015).…”
Tumour-related peer support groups (PSGs) show long-term development in quality of life and coping, and decrease distress in cancer care. To clarify channels of social support in oncologic rehabilitation by combined exercise and psychosocial therapy, individual semi-structured interviews were conducted after 1 year additional belly dance rehabilitation in a closed PSG among 51 patients with malignant tumour diagnosis in Budapest, Hungary. Interview data were transcribed and analysed using qualitative content analysis (ATLAS.ti 6 Win). Results suggest that group experience provides emotional-, practical- and informational support. We could point out specific social effects of "role model" function and extend the coping model. The group dispose all the features of effective suggestion and may be effectively applied as additional therapy for patients with malignancies. The extended coping model and the introduction of "role model" function could be useful for PSGs' efficacy assessment.
“…Resources that can be exploited and influential one of which is the family (Beaver, Williamson, & Briggs, 2016). Family assistance can be a support to optimize the condition of breast cancer patients.…”
Introduction: Breast cancer occupies the first position in Asia's women cancer cases in recent years. Signs and symptoms experienced by the patient affect the stress condition of the patient as well as the family as a caregiver. The condition changes to deal with problems during patient assistance as a major problem in an outpatient setting. The demands of adaptation to through the needs during the period of assistance by the family is more complex. The study aimed to determine the experience of stress and adaptation of breast cancer patient's family. Methods: The qualitative method used with in-depth interviews on seven respondents who were the family caregiver of breast cancer patients. Setting carried out at the shelter house in Bandung. The analysis process used thematic analysis based on Braun & Clarke. Results: The results found five main themes are: 1) Stressor on breast cancer patients, 2) Crisis fulfillment of companion needs, 3) Crisis accompaniment, 4) Coping mechanisms of caregiver, and 5) Ability in adaptation. Conclusions: Family experience in assisting breast cancer patients who undergo outpatient also impact families tension who traversed with a subjective effort optimally to adapt in accompanying patients and the needs of other resource support system. Suggestions for future step are early recognition of stress by health workers especially nurses to be able to provide targeted interventions to develop positive adaptation to clients. The development through research is needed in applying family center care both the outpatient and inpatient care in an integrated manner.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.
