Information needs of men on androgen deprivation therapy.

Why do patients regret their prostate cancer treatment? A systematic review of regret after treatment for localized prostate cancer

“…Studies were included if they indicated that prostate cancer patients were included in the study, that those patients were primarily affected by localized disease, even if those who later developed recurrent disease were not separated. In one study [16] that focused on regret among patients receiving HT, patients with biochemical failure were also included, and one [30] included a small percentage of patients with recurrent disease. Purely qualitative studies were not included.…”

“…For example, Davison et al [15] commented that their sample of 130 patients had 'no regrets' about their choice to have surgery even though four men strongly agreed with the item 'I regret the choice that was made', and the overall score on the DRS was 16.65 (indicating about a 60% level of regret overall in the sample). Soeyongo et al [16] described a score of 7.9 out of 25 as both 'low' and 'minimal', but without any comparators.…”

“…Currently, there is no consensus over the length of time required for it to become established. Although many studies have measured it at 3 months, some authors have suggested not measuring it for 6 months after the decision has been made [16].…”

What do Canadian uro-oncologists believe patients should know about androgen deprivation therapy?

“…Patients and their partners know little about the side effects when they are first prescribed ADT 19 ; 67% want more information about the side effects of treatment and 64% wish to know about methods for managing them. 20,21 This lack of knowledge results in patients feeling inadequately prepared to cope with or manage the side effects of ADT. 20…”

“…18 Patients and their partners know little about the side effects when they are first prescribed ADT 19 ; 67% want more information about the side effects of treatment and 64% wish to know about methods for managing them. 20,21 This lack of knowledge results in patients feeling inadequately prepared to cope with or manage the side effects of ADT. 20 There are evidence-based strategies for managing many ADT side effects and reducing the risk of developing medical complications; however, given that almost two-thirds of patients request more information about these strategies, few are evidently well informed about them when beginning treatment.…”