Information needs, decisional regret and satisfaction of older and younger adults with acute myeloid leukemia

Mohamedali, Hassanabbas Z.; Breunis, Henriette; Panju, Abbas H.; Alibhai, Shabbir M.H.

doi:10.1016/j.jgo.2010.06.002

Cited by 11 publications

(8 citation statements)

References 23 publications

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“…Our results confirm the findings of recent studies indicating that the great majority of HM patients prefer SDM . In contrast, studies of Ernst and Yogaparan reported that fewer patients prefer SDM, which can probably be explained by the overall increase of SDM preference the past few years .…”

Section: Discussionsupporting

confidence: 90%

Shared decision‐making and providing information among newly diagnosed patients with hematological malignancies and their informal caregivers: Not “one‐size‐fits‐all”

et al. 2017

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Section: Discussionsupporting

confidence: 90%

Shared decision‐making and providing information among newly diagnosed patients with hematological malignancies and their informal caregivers: Not “one‐size‐fits‐all”

et al. 2017

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“…), but in another study with patients with AML, no differences were found regarding age (Mohamedali et al . ). Furthermore, members of a patient association had a higher need for general information and detailed information and showed a higher involvement in decision‐making (Broeren ).…”

Section: Resultsmentioning

confidence: 97%

“…, Mohamedali et al . , Tariman ). Another important information source was printed material (Turner et al .…”

Section: Resultsmentioning

confidence: 99%

Perceived need for information of patients with haematological malignancies: a literature review

Rood

Eeltink

Zuuren

et al. 2014

Journal of Clinical Nursing

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Aims and objectives. To provide insight into the perceived need for information of patients with haematological malignancies. Background. Providing timely and accurate information to patients diagnosed with a haematological malignancy is a challenge in clinical practice; treatment often has to start promptly, with little time to inform patients. Design. Literature review. Methods. A comprehensive literature search was conducted from all available literature to May 2013 in the databases: Cumulative Index to Nursing and Allied Health Literature, PsycINFO and PubMed (Medline). Relevant studies were reviewed regarding the perceived need for information on various topics, sources of information and satisfaction with information provided. Results. The initial search revealed 215 articles, fourteen of which were relevant. Patients need basic information on the disease (diagnosis and diagnostics), treatment (various treatment options, side effects and duration), prognosis (curability and prolonging life) and all other topics (recovery, self-care and psychosocial functioning). Need for detailed information varied between studies. Patients expressed a higher need for medical than for psychosocial information. Patients preferred to receive information from their doctors the most, followed by nurses. Most studies described patients' satisfaction with the information provided. Conclusion. Based on the limited number of data available, medical information is for patients of higher priority compared to psychosocial information. Patients need basic information on diagnosis, treatment, prognosis and all other topics. Need for detailed information varied between studies. Patients were satisfied with the provided information, preferably offered by doctors and nurses. Relevance to clinical practice. The perceived need for information and satisfaction with the information provided differs strongly between patients. In clinical practice, more attention is needed for information tailored to the patient, taking into account important moderating factors such as age, type of cancer, time since diagnosis, treatment modality and coping style.What does this paper contribute to the wider global clinical community?• Patients diagnosed with haematological malignancies expressed a higher priority for medical than for psychosocial information.• Patients with haematological malignancies have a more passive coping style that may result in a lower need for information seeking and shared treatment decision-making.• Patients preferred to receive information from their doctors the most, followed by nurses, emphasising the importance of this topic in healthcare professionals.

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“…We also found that PHMs’ communication with all HCPs, including physicians and nurses, is important, whereas many past studies have focused only on physicians, and little attention has been given to other HCPs (Baile & Aaron, 2005; Graugaard, Holgersen, Eide, & Finest, 2005; Thornton, Powe, Roter, & Cooper, 2011). There have been reports on the importance of various HCPs in terms of the human factor of communication (Zamanzadeh et al, 2014) and as a source of information (Mohamedali, Breunis, Panju, & Alibhai, 2010; Throne, Hislop, Kuo, & Armstrong, 2006). Our study clearly shows that a poor attitude to communication in some HCPs could lead to PHMs’ dissatisfaction, even if other HCPs delivered compassionate communication to them.…”

Section: Discussionmentioning

confidence: 99%

The Experience of Persons With Hematological Malignancy When Communicating With Health Care Professionals

et al. 2017

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This study aimed to elucidate the experiences of Japanese persons with hematological malignancy (PHMs) in communicating with health care professionals (HCPs), from diagnosis to the end of life, as recalled by their families. We interviewed 14 bereaved families and analyzed the data using the basic techniques of grounded theory. We found that PHMs lived to the fullest possible when they experienced ownership of their illness process despite their disease. The ownership was made possible by active communication from HCPs: first, acknowledging the PHM's way of life, including reaching out from the HCPs and appreciating sincerely PHMs' hopes and will; and second, paving the way ahead, including giving prospects and offering choices. The study underlines that rather than just providing information about the disease, HCPs need to actively ask about and show respect for the PHM's way of life. Only after achieving this can HCPs communicate possible future pathways with PHMs.

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Information needs, decisional regret and satisfaction of older and younger adults with acute myeloid leukemia

Cited by 11 publications

References 23 publications

Shared decision‐making and providing information among newly diagnosed patients with hematological malignancies and their informal caregivers: Not “one‐size‐fits‐all”

Shared decision‐making and providing information among newly diagnosed patients with hematological malignancies and their informal caregivers: Not “one‐size‐fits‐all”

Perceived need for information of patients with haematological malignancies: a literature review

The Experience of Persons With Hematological Malignancy When Communicating With Health Care Professionals

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