Information Needs and Decisional Preferences among Women with Ovarian Cancer

Deciding what information is necessary: do patients with advanced cancer want to know all the details?

“…38,68 In a study of Australian women with metastatic breast cancer, Butow and colleagues summarized that when these women do request prognostic information "they are rarely seeking statistics on life expectancy, but rather reassurance and hope, forewarnings concerning the impact of side effects and symptoms on their lives, and/ or guidance regarding practical decisions they may need to make". 69 Evidence suggests that female patients, 47,66 those with better education, 70 and those in the first six decades of life may desire more information than their counterparts. 36,47 Certain types of cancer may also correlate with higher informational needs; for example, ovarian as compared to breast.…”

“…36,47 Certain types of cancer may also correlate with higher informational needs; for example, ovarian as compared to breast. 70 Higher depression scores are associated with wanting to know the shortest time to live without treatment. 64 Despite these trends, it is important to note that demographics do not reliably predict individual informational preferences, and studies have found contradicting results.…”

Investigation of Cancer Patients’ Information Sources, Information Needs and Expectations of Health Professionals

“…[7][8][9] Kanser hastaları bu süreçte yeterince bilgilendirilmek ve karar verme sorumluluğunu almak istemelerine rağmen yeterli bilgi ve yanıt alamamaktadırlar. [10,11] Hastalar en fazla tanı, tedavi, [8,10,12,13] testler, [10,14] cerrahi, [10] hastalığın etkileri [12,15,16] hastalık, prognoz, [10,17,18] duygusal ve sosyal konular, [14] fiziksel bakım, [14] bakım alabilecekleri yer ve gelecekteki bakım kararları, [17] hakkında bilgi almak istemektedirler. Tedaviyle ilişkili fiziksel ve sosyal sorunları, tekrarlama riskinden dolayı korku, anksiyete ve depresyon gibi duygusal sıkıntıları bilmek istemektedirler.…”

“…[18,19] Bu aşamada hastaların baş etme stratejilerini öğrenmeleri önemlidir. [13,16] Birey olarak sağlık profesyonelleri tarafından hatırlanmak anksiyetelerinin azalmasına yardımcı olabilir. [12] Ayrıca hastaların eğlence aktiviteleri, aile konuları ve tatiller gibi sosyal konular hakkında bilgi ve desteğe gereksinimleri vardır.…”

« Avoir le moral » après l’annonce d’un cancer : une étude auprès de personnes atteintes d’une tumeur cérébrale de haut grade

“…Parmi les études qui se sont intéressées aux pré-férences des individus en matière de participation aux déci-sions médicales, la plupart révèlent un intérêt prédominant pour un partage de la décision [9,11,18,27,29], certaines pour un rôle plutôt passif [2,5,20], et plus rarement pour un rôle actif dans le processus décisionnel [17]. L'état de santé semble influencer cette préférence, à savoir celle d'un rôle plus actif chez ceux qui sont en meilleure santé [20], d'un partage de la décision lorsque l'état est jugé plus sévère [27,29] ou de vouloir moins d'implication à mesure que l'état se dégrade [6]. Le degré d'implication dans le processus décisionnel aurait aussi un impact différentiel selon l'état d'avancement de la maladie.…”