Information and professional support: key factors in the provision of family‐centred early childhood intervention services

Fordham, Loraine; Gibson, Frances; Bowes, Jennifer

doi:10.1111/j.1365-2214.2011.01324.x

Cited by 69 publications

(78 citation statements)

References 22 publications

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“…One way to understand more about FCS is to examine the results from studies that reported MPOC data. We looked at results from studies reporting both MPOC‐56 data and MPOC‐20 data . In all but two of those studies, ‘respectful and supportive care’ was ranked highest by parents.…”

Section: Resultsmentioning

confidence: 99%

Measure of Processes of Care: a review of 20 years of research

Cunningham

Rosenbaum

2013

Develop Med Child Neuro

113

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Aim This article reviews literature on findings from the Measure of Processes of Care (MPOC) to assess family‐centred services. Method Systematic searches for papers citing MPOC in both PubMed and Web of Science identified 107 articles. Fifty‐five met the criterion for inclusion in this review in that they reported MPOC data. Results Over the past 20 years MPOC has been used in settings additional to the children's treatment centres for which it was designed; used in 11 countries and translated into 14 languages; and used to measure change in respondents' perceptions over time. MPOC findings have also informed our understanding of the provision of family‐centred services. Overall, parents report that service providers do a good job of providing respectful, comprehensive services in partnership with families, but that there remain limitations in the provision of general information, an area for improvement. Finally, MPOC has been shown to correlate with various other measures related to the provision of family‐centred services. Interpretation The MPOC ‘family’ of measures can be used to assess both families' and service providers' experiences and perceptions of the family‐centredness of services received/provided. Opportunities abound for further research enquiries.

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Section: Resultsmentioning

confidence: 99%

Measure of Processes of Care: a review of 20 years of research

Cunningham

Rosenbaum

2013

Develop Med Child Neuro

113

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“…These outcomes should include child developmental outcomes and parental outcomes, such as parents' satisfaction with service delivery, reduced stress and worry, and adherence to the therapy programme (King et al, ). Fordham stated that one should also investigate whether the services delivered influence the feelings of empowerment, levels of support, and parenting stress (Fordham, Gibson, & Bowes, ). It is known that parents of a child with a disability are more likely to be depressed and to experience stress than other parents (King, King, Rosenbaum, & Goffin, ).…”

Section: Discussionmentioning

confidence: 99%

There is no place like @home!: The value of home consultations in paediatric rehabilitation

Maren-Suir

Brouns

Sanden

et al. 2018

Child

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“…Restraining forces include the lack of integration across jurisdictions, and the lack of clarity about which departments are responsible for the intersection of children, disabilities, and leisure; these represent a challenge for the development of leisure policies that support social justice. The lack of clear information and jurisdiction is indeed one of the main barriers identified by families of children with disabilities in relation to service provision in different areas, including leisure (Shikako-Thomas et al 2009;Fordham, Gibson, and Bowes 2012). The need to design coordinated action in horizontal issues (i.e.…”

Section: Challenges In Leisure Policiesmentioning

confidence: 99%

Policies supporting participation in leisure activities for children and youth with disabilities in Canada: from policy to play

Shikako‐Thomas

Law

2015

Disability & Society

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Children with disabilities are at risk for lower participation in leisure. This study maps and analyzes disability-related leisure policies in Canada. Policy mapping and analysis were performed based on scope, social justice, disability models, and use of evidence. Few policies use scientific evidence, and their scope in supporting participation is often limited to organized sports, transportation, and financial incentives/exemptions. Few policies exist to support leisure promotion for children with disabilities. Action plans, benchmarking, and uptake measurement are rarely identified. Research-based evidence can be used to support socially-just policies to promote participation in leisure. Families should be able to identify mechanisms to guarantee access to their rights. Researchers, service providers, and families can use this framework of policy mapping and analysis to identify gaps where evidence can support policy development, to use these policies where services are needed, and to foster participation of children with disabilities in leisure. Points of interestSeveral policies supporting participation in leisure for children with disabilities exist in Canada and include promotion of adapted sports, accessibility to the built environment and to intellectual information, transportation, companions for leisure activities, and tax and income supports. While most policies outline general concepts about disabilities and the limiting opportunities for social participation of individuals with disabilities, few policies have specific mechanisms and action plans to support participation in leisure for children with disabilities. Few mechanisms for measuring results and disseminating information are encountered in the policies. In order to improve participation, families and health and social service providers should be informed about existing policies, and should be able to monitor the implementation through benchmarking and public reports.

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Information and professional support: key factors in the provision of family‐centred early childhood intervention services

Abstract: The provision of general information and professional support are key components of family-centred early childhood intervention services.

Cited by 69 publications

References 22 publications

Measure of Processes of Care: a review of 20 years of research

Measure of Processes of Care: a review of 20 years of research

There is no place like @home!: The value of home consultations in paediatric rehabilitation

Policies supporting participation in leisure activities for children and youth with disabilities in Canada: from policy to play

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