Informal caring for stroke survivors: Meta-ethnographic review of qualitative literature

Greenwood, Nan; Mackenzie, Ann

doi:10.1016/j.maturitas.2010.03.017

Cited by 92 publications

(112 citation statements)

References 30 publications

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“…There are often profound changes in roles, relationships and responsibilities, loss of autonomy, and disruption of "taken-for-granted" future goals and plans (Greenwood and Mackenzie, 2010). It is the diversity of challenges faced by those caring for a person affected by stroke that makes caregiver distress a complex and multilayered concept.…”

mentioning

confidence: 99%

Caring for caregivers after a stroke

Ski

Lautenschlager

Moore

2014

Int. Psychogeriatr.

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Stroke usually occurs in the latter years of life, is sudden and all too often unexpected and unforgiving. When non-fatal, stroke, the second leading cause of disability after dementia, is nearly always disabling (World Health Organization (WHO), 2011). Due to common ensuing physical and cognitive impairments, many stroke survivors are unable to care for themselves in the following weeks, months, and possibly years (Lutz et al., 2011). Thus, the caregiver role is instant and often long-term with no or very little time to adapt to the many, varied and immediate challenges.

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mentioning

confidence: 99%

Caring for caregivers after a stroke

Ski

Lautenschlager

Moore

2014

Int. Psychogeriatr.

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“…High levels of anxiety and stress are commonplace as carers deal on a long-term basis with change and uncertainty [19,23]. Carers also face major role and identity changes [24,25] and many spousal carers describe feeling trapped at home as they suppress their own needs, often adopting hyper-vigilant behaviours as a way to manage their caring situation [26]. Depression and exhaustion has been reported by one third of spousal carers, with some indication that this may increase as carers themselves age [27].…”

Section: Caring After Strokementioning

confidence: 99%

The human dimensions of post-stroke homecare: experiences of older carers from diverse ethnic groups

Pound

Greenwood

2016

Disability and Rehabilitation

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Purpose: Very little is known about how older people from black and minority ethnic (BME) groups caring for someone after a stroke access and engage with social care services. This paper explores both the experiences of carers whose relative was receiving social care services in their own home and the value of a theory of humanising care to understand and explain these experiences. Method Conclusions:Carers from BME and White British groups share many experiences of homecare although language and cultural difference may exacerbate common pressures and stresses. The framework for humanising care is a useful tool to evaluate aspects of home care that are responsive to dignity and diversity.

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“…[14] Furthermore, family members may experience uncertainty and feel great demands on them as a result of the changes and losses due to the disease. [15] Family members are worried about both the affected family member and themselves, of being trapped in a caring role and about their future. [14,16] They also suffer severe emotional stress [12,17] and high levels of distress.…”

Section: Living With Strokementioning

confidence: 99%

Responses after participating in Family Health Conversations in families with a family member who has suffered a stroke: A mixed methods research study

Sundin¹,

Bäckström²,

Lindh³

et al. 2016

Clinical Nursing Studies

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Background: It has been proposed that support for families in which a family member has suffered a stroke should involve the whole family system. Aim: The aim was to evaluate the responses of Family Health Conversation (FamHC) in families with a member under the age of 65 who has been diagnosed with stroke. Methods: In this mixed methods research study, families were included in an intervention group and in a control group. For both groups pre-and post-intervention quantitative data was collected and for the intervention group, qualitative data was collected post-intervention. Underlying theoretical propositions and the two data sets were then integrated. Results: Family health measured as "the general atmosphere of the interaction of the family" had improved in the intervention group when compared to the control group. The intervention families, moreover, described how they had become more cooperative, their communication had improved, they had become more confident with their situation and also when planning for the future when comparing to before the FamHC. Conclusions: Based on the empirical results supporting the theoretical proposition underlying FamHC, we conclude that it works as intended, and the evidence for the theoretical proposition is thereby strengthened. This paper contributes to the scientific evidence concerning FamHC. With the available evidence, RNs are suggested to consider changing practice so as to work in a more family-centred way to support families living with ill-health. Implementing FamHC can be one way of undertaking such supportive work.

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Informal caring for stroke survivors: Meta-ethnographic review of qualitative literature

Cited by 92 publications

References 30 publications

Caring for caregivers after a stroke

Caring for caregivers after a stroke

The human dimensions of post-stroke homecare: experiences of older carers from diverse ethnic groups

Responses after participating in Family Health Conversations in families with a family member who has suffered a stroke: A mixed methods research study

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