Informal Carers of Adolescents and Adults with Learning Difficulties from the South Asian Communities: Family Circumstances, Service Support and Carer Stress

Hatton, Chris; Azmi, Sabiha; Caine, Amanda; Emerson, Eric

doi:10.1093/oxfordjournals.bjsw.a011403

Cited by 52 publications

(52 citation statements)

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“…For instance, it is suggested that there is need to involve and employ more Korean professionals in mainstream health care fields in order to improve communication between carers and service users. A similar suggestion was raised in the study carried out by Hatton, Azmi, Caine, and Emerson (1998). They noted that, in order to improve services for Asian communities, there is a need to improve communication between Asian families and services.…”

Section: Looking To the Futurementioning

confidence: 53%

Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals

Choi¹,

Park²,

O'Brien³

2017

ANZSWJ

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INTRODUCTION:This article aims to provide an overview of the experiences of Korean immigrant parents raising children with disabilities in Aotearoa New Zealand, primarily focusing on their experience of disability services and systems. METHODS:As the present exploratory study aimed to gain a deeper understanding of immigrant parents' experiences and perceptions, a qualitative approach was employed to collect rich and lived information from participants. Ten participants were recruited and interviewed among Korean parents of children with disabilities and professionals working with those families. FINDINGS:Lack of trust among Korean parents living in Aotearoa New Zealand was frequently discussed by the participants in the present study. Lack of information around available services and alternative support and cultural barriers were often identified to have a significant impact on Korean parents' experiences with services. A sense of obligation to integrate into the host society and the services provided was also evident. Further, there was a contradictory perception between parents and associated professionals in relation to services' expectations of Korean parents. CONCLUSION:From analysis of the findings, three main themes emerged: experiences of services and its relations with trust, cultural values and expectations, and looking to the future. The study suggests that there is a need for professionals, service providers and government to consider ways to build trusting relationships with Korean parents and their children with disabilities, and makes a number of recommendations.

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Section: Looking To the Futurementioning

confidence: 53%

Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals

Choi¹,

Park²,

O'Brien³

2017

ANZSWJ

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“…In fact, studies show that these carers receive little support from their families, and that other types of informal support, such as that provided by support groups, temples or mosques play only a minor supporting role [31], [32], [33]. In addition, health professionals may hold negative or discriminatory attitudes towards this group.…”

Section: Discussionmentioning

confidence: 99%

Discrimination and Other Barriers to Accessing Health Care: Perspectives of Patients with Mild and Moderate Intellectual Disability and Their Carers

et al. 2013

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BackgroundPeople with intellectual disability have a higher prevalence of physical health problems but often experience disparities in accessing health care. In England, a number of legislative changes, policies and recommendations have been introduced to improve health care access for this population. The aim of this qualitative study was to examine the extent to which patients with intellectual disability and their carers experience discrimination or other barriers in accessing health services, and whether health care experiences have improved over the last decade years.Method and Main FindingsTwenty nine participants (14 patient and carer dyads, and one carer) took part in semi-structured interviews. The interviews were audio-taped and transcribed and analysed using thematic analysis. Eight themes were identified. Half the participants thought that the patient had been treated unfairly or had been discriminated against by health services. There were accounts of negative staff attitudes and behaviour, and failure of services to make reasonable adjustments. Other barriers included problems with communication, and accessing services because of lack of knowledge of local services and service eligibility issues; lack of support and involvement of carers; and language problems in participants from minority ethnic groups. Most participants were able to report at least one example of good practice in health care provision. Suggestions for improving services are presented.ConclusionDespite some improvements to services as a result of health policies and recommendations, more progress is required to ensure that health services make reasonable adjustments to reduce both direct and indirect discrimination of people with intellectual disability.

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“…Items were drawn from two previous UK studies involving the translation of survey questions into several South Asian languages; a study of 54 South Asian family carers of an adult with intellectual disabilities (Hatton, Azmi, Caine, & Emerson, 1998) and a survey of 587 parents of children with severe disabilities across a range of minority ethnic communities (Chamba, Ahmad, Hirst, Lawton, & Beresford, 1999). Information collected included the following: the main carer (age, gender, marital status, religion, ethnicity, relationship to child with disabilities, time in UK, language); the child with disabilities (age, gender); household composition; home ownership; suitability of house for looking after child with disabilities; employment status of interviewee and spouse/ partner; weekly take-home income (income bands 5$185; $185-$368; $370-$553; $555-$738; $740þ); family ownership of a car.…”

Section: (3) Previous Use In Research With Uk Southmentioning

confidence: 99%

“…(1) General parental distress was assessed using the 24-item Malaise Inventory (Rutter, Tizard, & Whitmore, 1970) using translated versions produced for a previous study of UK South Asian families with an adult with intellectual disabilities (Hatton et al, 1998). Total scores can also be converted into threshold scores (six or above), where the person is thought to be at risk of psychological disorder.…”

Section: (3) Previous Use In Research With Uk Southmentioning

confidence: 99%

Does socioeconomic position moderate the impact of child behaviour problems on maternal health in South Asian families with a child with intellectual disabilities?

Hatton

Emerson

2009

Journal of Intellectual & Developmental Disability

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Informal Carers of Adolescents and Adults with Learning Difficulties from the South Asian Communities: Family Circumstances, Service Support and Carer Stress

Cited by 52 publications

References 1 publication

Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals

Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals

Discrimination and Other Barriers to Accessing Health Care: Perspectives of Patients with Mild and Moderate Intellectual Disability and Their Carers

Does socioeconomic position moderate the impact of child behaviour problems on maternal health in South Asian families with a child with intellectual disabilities?

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