Independent validation of SCOPA–psychosocial and metric properties of the PDQ‐39 Brazilian version

Abstract

The objective of this study was to perform an independent validation of the Scales for Outcomes in Parkinson's Disease-Psychosocial questionnaire (SCOPA-PS) and assessment of the Parkinson's Disease Questionnaire (PDQ-39), Brazilian version. Patients were evaluated by means of the Unified Parkinson's Disease Rating Scale, Hoehn and Yahr staging (HY), Schwab and England scale, Mini-Mental State Examination, and Hospital Anxiety and Depression Scale. Health-related quality of life was evaluated using the MOS-Short Form 36 (SF-36), PDQ-39, and SCOPA-PS. One hundred forty-four patients were included (mean age, 62 years; 53.5% males; mean duration of illness, 6.6 years; HY, 1-4). Mean SCOPA-PS and PDQ-39 Summary Index (SI) were 39.2 and 40.7, respectively. The internal consistency of SCOPA-PS (Cronbach's alpha = 0.84; item-total correlation, 0.44-0.73) and PDQ-39 dimensions (alpha = 0.61-0.85; item-total correlation, 0.46-0.82) were satisfactory. Concerning the stability of the questionnaires, intraclass correlation coefficient (ICC) values were 0.71 for the SCOPA-PS and 0.86 for the PDQ-39 SI. ICC for PDQ-39 dimensions ranged from 0.52 (social support) to 0.80 (stigma). Standard error of measurement (SEM) values for each PDQ-39 dimension ranged from 0.49 (emotional well-being) to 17.52 (social support). SEM values for SCOPA-PS and PDQ-39 SI were 11.84 and 6.72, respectively. A significant correlation of SCOPA-PS and PDQ-39 SI with the SF-36 physical (-0.42 and -0.52, respectively) and mental components (-0.41) was found. Correlation between SCOPA-PS and PDQ-39 SI was 0.73 (all coefficients, P < 0.0001). The SCOPA-PS and PDQ-39, Brazilian versions, have satisfactory metric attributes.

Efeitos do tratamento com realidade virtual não imersiva na qualidade de vida de indivíduos com Parkinson

“…No entanto, apenas o primeiro alcançou significância estatística. Para Carod-Artal, Martinez-Martin & Vargas, 28 essas dimensões são quase constantes durante a progressão da doença, atribuindo isto à maior divulgação de informações sobre a DP. Todavia, o ambiente em que a pesquisa foi realizada ofertou aos pacientes um espaço de trocas de informações, a fim de estimular a troca de saberes e oportunizar a construção de relações interpessoais.…”

“…Os jogos que foram utilizados não exigiam dos pacientes esforços para melhor se comunicarem oralmente, muito menos trabalhar quaisquer aspectos fonoaudiológicos mais específicos, o que pode ter sido a causa do resultado obtido na análise dos escores do domínio "comunicação", que não obteve significância estatística no estudo. 30 Como no estudo de Carod-Artal, MartinezMartin & Vargas, 28 a presente pesquisa também obteve, na análise dos escores, baixo escore total no PDQ-39, o que poderia indicar boa percepção da QV por parte dos pacientes. Considerando a amostra do presente estudo, isto pode ter ocorrido pelo fato de a mesma ter a maioria dos pacientes em estágios menos avançados da doença, conforme a Escala de Hoehn & Yahr.…”

Health-Related Quality of Life of Australians with Parkinson Disease: A Comparison with International Studies

“…To compare the HRQOL of Australians with PD and people with PD from other countries, 95% CIs were constructed around the estimates. Secondary subgroup analyses were undertaken by combining the studies into five regions: North America, 3,27 South America, 12,14,15,24,29,30 Western Europe, 2,13,16,25,26,[31][32][33][34] Eastern Europe, 17,35,36 and Asia-Pacific. 4,21,22,[37][38][39][40][41] The ratings for each dimension of HRQOL by people with PD living in Australia and other countries were also examined to determine the comparability of these estimates.…”

“…23 Data from multiple reports of a single study were extracted separately and collated. 14,24 For longitudinal, intervention, and randomized controlled trials, only the baseline data were extracted. [25][26][27] Details of the study design, participant characteristics, and recruitment procedures were also recorded.…”

Depressive symptoms and perception of quality of life in Parkinson's disease

“…The Parkinson's Disease Quality of Life Questionnaire (PDQ-39) is a well-validated, disease-specific questionnaire for PD and is one of the most used instruments 15 . A Brazilian version of PDQ-39 has been validated recently 16 .…”