Improving Communication on Hope in Palliative Care. A Qualitative Study of Palliative Care Professionals' Metaphors of Hope: Grip, Source, Tune, and Vision

Olsman, Erik; Duggleby, Wendy; Nekolaichuk, Cheryl; Willems, Dick L.; Gagnon, Judith; Kruizinga, Renske; Leget, C.J.W.

doi:10.1016/j.jpainsymman.2014.02.008

Cited by 29 publications

(21 citation statements)

References 24 publications

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“…However, the results of our study suggest that palliative care patients may hope for cure while acknowledging that they are approaching death, which has also been found in other previous work (Robinson, 2012). The metaphor of a singing choir may support healthcare professionals in attuning to hope, Hope, hopelessness, despair in palliative care patients hopelessness, and despair in their patients (Olsman et al, 2014a;Penz & Duggleby, 2011).…”

Section: Discussionmentioning

confidence: 99%

A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study

et al. 2015

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Section: Discussionmentioning

confidence: 99%

A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study

et al. 2015

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“…Although it is sometimes difficult to find the balance between providing hope and being realistic, reassurance provided by oncologists and pulmonologists could decrease patients' uncertainty and anxiety and could also increase their self-efficacy and satisfaction [34]. According to Olsman et al [35], there are three perspectives of hope that could improve HCPs' communication: the realistic, the functional and the narrative perspectives. Hope could not only be given about the outcomes of the illness itself, but also about side effects or someone's wellbeing.…”

Section: Discussionmentioning

confidence: 99%

Instrumental and affective communication with patients with limited health literacy in the palliative phase of cancer or COPD

et al. 2020

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Background Patients have a ‘need to know’ (instrumental need) and a ‘need to feel known’ (affective need). During consultations with patients with limited health literacy (LHL) in the palliative phase of their disease, both the instrumental and the affective communication skills of healthcare providers are important. The study aims to explore instrumental and affective communication between care providers and LHL patients in the palliative phase of COPD or cancer. Methods In 2018, consultations between LHL patients in the palliative phase of cancer or COPD and their healthcare providers were video-recorded in four hospitals in the Netherlands. As there was no observation algorithm available for this setting, several items were created to parameterize healthcare providers’ instrumental communication (seven items: understanding, patient priorities, medical status, treatment options, treatment consequences, prognosis, and information about emotional distress) and affective communication (six items: hope, support, reassurance, empathy, appreciation, and emotional coping). The degree of each item was recorded for each consultation, with relevant segments of the observation selected and transcribed to support the items. Results Consultations between 17 care providers and 39 patients were video-recorded and analyzed. Care providers primarily used instrumental communication, most often by giving information about treatment options and assessing patients’ care priorities. Care providers assessed patients’ understanding of their disease less often. The patients’ prognosis was not mentioned in half the consultations. Within the affective domain, the care providers did provide support for their patients; providing hope, reassurance, empathy, and appreciation and discussing emotional coping were observed less often. Conclusions Care providers used mostly instrumental communication, especially treatment information, in consultations with LHL patients in the palliative phase of cancer or COPD. Most care providers did not check if the patient understood the information, which is rather crucial, especially given patients’ limited level of health literacy. Healthcare providers did provide support for patients, but other expressions of affective communication by care providers were less common. To adapt the communication to LHL patients in palliative care, care providers could be less wordy and reduce the amount of information, use ‘teach-back’ techniques and pay more attention to affective communication.

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“…Spiritual advice is recommended among BMT patients. 24,25 Communication skills between providers and patients in PC setting have been reviewed. In a descriptive study, Olsman et al reviewed perceptions of hope of PC physicians in relation to patients, families, and themselves.…”

Section: Spiritual and Emotional Symptomsmentioning

confidence: 99%

“…Researchers found that physicians understand hope more as a safety compared to other health professionals. 25 In another review, Busolo and Woodgate described how cultural background affects communication of emotional and spiritual symptoms and treatment decisions. This may affect understanding and increase misperceptions about spiritual and emotional symptoms.…”

Section: Spiritual and Emotional Symptomsmentioning

confidence: 99%

“…23 Factors associated with a decreased quality of life includes significant infections, female gender, and transplantation with stem cells from a sibling donor. 25,29 In a recent study, a group of young adults utilizes religious spiritual endeavors far more than adults. 30,31 The authors suggested that professionally prepared chaplains should help patients to be proactive in asking young patients about their understanding and use of faith.…”

Section: Spiritual and Emotional Symptomsmentioning

confidence: 99%

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Role of Early Palliative Care Interventions in Hematological Malignancies and Bone Marrow Transplant Patients: Barriers and Potential Solutions

Ruiz

Reynolds

Marranzini

et al. 2018

Am J Hosp Palliat Care

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Improving Communication on Hope in Palliative Care. A Qualitative Study of Palliative Care Professionals' Metaphors of Hope: Grip, Source, Tune, and Vision

Abstract: Our findings help to increase the understanding of hope and contribute to improving communication skills in palliative care professionals.

Cited by 29 publications

References 24 publications

A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study

A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study

Instrumental and affective communication with patients with limited health literacy in the palliative phase of cancer or COPD

Role of Early Palliative Care Interventions in Hematological Malignancies and Bone Marrow Transplant Patients: Barriers and Potential Solutions

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