Improving anxiety in Parkinson's disease: A cautionary tale about mobile health technologies

Lingaiah, Anushree; Mohanty, Diksha; Marchbank, Jessica; Jacob, Alexandra; Castellanos, Ricardo; Holiday, Victoria; Espay, Alberto J.; LaFaver, Kathrin

doi:10.1016/j.parkreldis.2020.03.010

Cited by 3 publications

(2 citation statements)

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“…It can be acquired by clinicians and is used for monitoring patients, mainly with COPD. A small ( n = 13) randomised study evaluating the device in the context of mindfulness training for anxiety in PD reported challenges with study recruitment and retention, acceptability of the device, and technical difficulties [ 38 ]. The conclusion was that in future studies, PwP need to be involved already in the early planning stages.…”

Section: Current State Of Digital Health For Pdmentioning

confidence: 99%

A Long Way to Go: Patient Perspectives on Digital Health for Parkinson’s Disease

Riggare

Stamford

Hägglund

2021

JPD

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Digital health promises to improve healthcare, health, and wellness through the use of digital technologies. The purpose of this commentary is to review and discuss the field of digital health for Parkinson’s disease (PD) focusing on the needs, expectations, and wishes of people with PD (PwP). Our analysis show that PwP want to use digital technologies to actively manage the full complexity of living with PD on an individual level, including the unpredictability and variability of the condition. Current digital health projects focusing on PD, however, does not live up to the expectations of PwP. We conclude that for digital health to reach its full potential, the right of PwP to access their own data needs to be recognised, PwP should routinely receive personalised feedback based on their data, and active involvement of PwP as an equal partner in digital health development needs to be the norm.

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Section: Current State Of Digital Health For Pdmentioning

confidence: 99%

A Long Way to Go: Patient Perspectives on Digital Health for Parkinson’s Disease

Riggare

Stamford

Hägglund

2021

JPD

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“…Hence, the expert Movement Disorders Society panel continues to call for the development of technology platforms that can be integrated into clinical workflows ( 13 ). Previous technology often times is valid and reliable; however, the focus has been on technology development with little regard to feasibility of clinical integration ( 14 , 15 ). If the true value of technological approaches to quantifying motor and non-motor aspects of PD are to be realized, a fundamental shift in the approach to technology development and integration is necessary.…”

Section: Introductionmentioning

confidence: 99%

The Parkinson’s disease waiting room of the future: measurements, not magazines

Alberts,

Shuaib,

Fernandez

et al. 2023

Front. Neurol.

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Utilizing technology to precisely quantify Parkinson’s disease motor symptoms has evolved over the past 50 years from single point in time assessments using traditional biomechanical approaches to continuous monitoring of performance with wearables. Despite advances in the precision, usability, availability and affordability of technology, the “gold standard” for assessing Parkinson’s motor symptoms continues to be a subjective clinical assessment as none of these technologies have been fully integrated into routine clinical care of Parkinson’s disease patients. To facilitate the integration of technology into routine clinical care, the Develop with Clinical Intent (DCI) model was created. The DCI model takes a unique approach to the development and integration of technology into clinical practice by focusing on the clinical problem to be solved by technology rather than focusing on the technology and then contemplating how it could be integrated into clinical care. The DCI model was successfully used to develop the Parkinson’s disease Waiting Room of the Future (WROTF) within the Center for Neurological Restoration at the Cleveland Clinic. Within the WROTF, Parkinson’s disease patients complete the self-directed PD-Optimize application on an iPad. The PD-Optimize platform contains cognitive and motor assessments to quantify PD symptoms that are difficult and time-consuming to evaluate clinically. PD-Optimize is completed by the patient prior to their medical appointment and the results are immediately integrated into the electronic health record for discussion with the movement disorder neurologist. Insights from the clinical use of PD-Optimize has spurred the development of a virtual reality technology to evaluate instrumental activities of daily living in PD patients. This new technology will undergo rigorous assessment and validation as dictated by the DCI model. The DCI model is intended to serve as a health enablement roadmap to formalize and accelerate the process of bringing the advantages of cutting-edge technology to those who could benefit the most: the patient.

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