Implementation of a Health Disparities &amp; Equity Program at the Duke Cancer Institute

Barrett, Nadine; Hawkins, Tracey; Wilder, Julius; Ingraham, Kearston L.; Boyce, Xiomara; Reyes, Rebecca; Chirinos, Maritza; Wigfall, Patricia M.; Robinson, William S.; Patierno, Steven R.

doi:10.1080/10463356.2016.11884124

Cited by 9 publications

(28 citation statements)

References 10 publications

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“…It also highlights the need and, whenever possible, the opportunity for academic health and cancer centers to conduct community‐based biomedical research in the communities that they serve and not just in the clinic . This requires strong community partners who together with academic health centers and cancer centers can develop, implement, and test innovative strategies around outreach and engagement to bolster awareness and diversity in biomedical research participation, advance research, and reduce cancer disparities …”

Section: Discussionmentioning

confidence: 97%

“…Prior studies regarding diversity in research participation have emphasized raising awareness and education, building community relationships, and implementing community‐based research to increase awareness, access, and ultimately participation in biomedical research . The diversity of the research participants in the current study, and the increased likelihood of participation in biomedical research among underrepresented racial and ethnic groups, may be due in part to each site's collaborations with local, well‐established, and long‐standing community partners and our ongoing outreach, engagement, and research programs …”

Section: Discussionmentioning

confidence: 98%

“…17,[31][32][33] The diversity of the research participants in the current study, and the increased likelihood of participation in biomedical research among underrepresented racial and ethnic groups, may be due in part to each site's collaborations with local, well-established, and long-standing community partners and our ongoing outreach, engagement, and research programs. 13,[34][35][36] The results of the current study also highlight opportunities for NCI-designated cancer centers to build on and leverage community and institutional relationships to better understand and enhance health communication and behavior around biomedical research participation. Such studies will have a meaningful impact on actual enrollment, thereby increasing diversity in research participation and improving population health.…”

Section: Discussionmentioning

confidence: 99%

“…27 This requires strong community partners who together with academic health Cancer March 1, 2020 centers and cancer centers can develop, implement, and test innovative strategies around outreach and engagement to bolster awareness and diversity in biomedical research participation, advance research, and reduce cancer disparities. 35…”

Section: Personal or Family Historymentioning

confidence: 99%

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Factors associated with biomedical research participation within community‐based samples across 3 National Cancer Institute–designated cancer centers

Barrett

Rodriguez

Iachan

et al. 2020

Cancer

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Background Engaging diverse populations in biomedical research, including biospecimen donation, remains a national challenge. This study examined factors associated with an invitation to participate in biomedical research, intent to participate in biomedical research in the future, and participation in biomedical research and biospecimen donation among a diverse, multilingual, community‐based sample across 3 distinct geographic areas. Methods Three National Cancer Institute–designated cancer centers engaged in community partnerships to develop and implement population health assessments, reaching a convenience sample of 4343 participants spanning their respective catchment areas. Data harmonization, multiple imputation, and multivariable logistic modeling were used. Results African Americans, Hispanic/Latinos, and other racial minority groups were more likely to be offered opportunities to participate in biomedical research compared to whites. Access to care, history of cancer, educational level, survey language, nativity, and rural residence also influenced opportunity, intent, and actual participation in biomedical research. Conclusions Traditionally underserved racial and ethnic groups reported heightened opportunity and interest in participating in biomedical research. Well‐established community partnerships and long‐standing community engagement around biomedical research led to a diverse sample being reached at each site and may in part explain the current study findings. However, this study illustrates an ongoing need to establish trust and diversify biomedical research participation through innovative and tailored approaches. National Cancer Institute–designated cancer centers have the potential to increase opportunities for diverse participation in biomedical research through community partnerships and engagement. Additional work remains to identify and address system‐level and individual‐level barriers to participation in both clinical trials and biospecimen donation for research.

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Section: Discussionmentioning

confidence: 97%

Section: Discussionmentioning

confidence: 98%

Section: Discussionmentioning

confidence: 99%

Section: Personal or Family Historymentioning

confidence: 99%

See 2 more Smart Citations

Factors associated with biomedical research participation within community‐based samples across 3 National Cancer Institute–designated cancer centers

Barrett

Rodriguez

Iachan

et al. 2020

Cancer

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“…19,20 Although not stated in the context of community-engaged research, many of the strategies recommended by the recruiters to improve participation mirror those described by Wallerstein et al, namely acknowledging past and current trust issues, recognizing and respecting cultural differences, empowering study participants and being truly involved in the community. 21…”

Section: Importance Of Clinic and Community Engagementmentioning

confidence: 99%

Engaging African Americans in Research: The Recruiter’s Perspective

et al. 2017

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Evolution of a longitudinal, multidisciplinary, and scalable patient navigation matrix model

et al. 2020

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This Longitudinal patient navigation Matrix Model was developed to overcome barriers across the cancer care continuum by offering prepatients, patients, and their families with support services. The extraordinary heterogeneity of patient needs during cancer screening, risk assessment, treatment, and survivorship as well as the vast heterogeneity of oncology care settings make it nearly impossible to follow a static navigation model. Our model of patient cancer navigation is unique as it enhances the traditional model by being highly adaptable based on both patient and family needs and scalable based on institutional needs and resources (eg, clinical volumes, financial resources, and community-based resources). This relatively new operational model for system-wide and systematic navigation incorporates a carefully cultivated supportive care program that evolved over the last decade from a bottom up approach that identified patient and family needs and developed appropriate resources. A core component of this model includes shifting away from department-centric operations.This model does not require a patient to opt in or independently be able to report their needs or ask for services-it is an opt out model. The multidisciplinary "crosstraining" model can also facilitate reimbursement and sustainability by clarifying the differentiating actions that define navigation services: identification of barriers to quality care and specific actions taken to overcome those barriers, across the full continue of cancer care from community engagement to survivorship or end-of-life care. K E Y W O R D Spatient navigation,

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Implementation of a Health Disparities & Equity Program at the Duke Cancer Institute

Cited by 9 publications

References 10 publications

Factors associated with biomedical research participation within community‐based samples across 3 National Cancer Institute–designated cancer centers

Factors associated with biomedical research participation within community‐based samples across 3 National Cancer Institute–designated cancer centers

Engaging African Americans in Research: The Recruiter’s Perspective

Evolution of a longitudinal, multidisciplinary, and scalable patient navigation matrix model

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