Engaging African Americans in Research: The Recruiter’s Perspective

Barrett, Nadine; Ingraham, Kearston L.; Hawkins, Tracey; Moorman, Patricia G.

doi:10.18865/ed.27.4.453

Cited by 47 publications

(65 citation statements)

References 18 publications

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“…There is a clear need for additional study to explore the use of products by non-Caucasian college women. Future studies should recruit participants from multi-cultural clubs and organizations using efforts that will gain trust, raise awareness of the study objectives, and reduce any perceptions of risk or lack of control [51,52], in order to help diversify the study sample.…”

Section: Study Limitationsmentioning

confidence: 99%

A characterization of personal care product use among undergraduate female college students in South Carolina, USA

Hart

Walker

Beckingham

et al. 2019

J Expo Sci Environ Epidemiol

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Some chemicals used in personal care products (PCPs) are associated with endocrine disruption, developmental abnormalities, and reproductive impairment. Previous studies have evaluated product use among various populations; however, information on college women, a population with a unique lifestyle, is scarce. The proportion and frequency of product use were measured using a self-administered survey among 138 female undergraduates. Respondents were predominately Caucasian (80.4%, reflecting the college's student body), and represented all years of study (freshman: 24.6%; sophomore: 30.4%; junior: 18.8%; senior: 26.1%). All respondents reported use of at least two PCPs within 24 h prior to sampling (maximum = 17; median = 8; IQR = 6-11). Compared with studies of pregnant and postpartum women, adult men, and Latina adolescents, college women surveyed reported significantly higher use of deodorant, conditioner, perfume, liquid soap, hand/body lotion, sunscreen, nail polish, eyeshadow, and lip balm (Chi Square, p < 0.05). More study is needed to understand the magnitude and racial disparities of PCP chemical exposure, but given the potential effects on reproduction and fertility, our findings of abundant and frequent product use among these reproductive-aged women highlight opportunities for intervention and information on endocrine disrupting chemical (EDC)-free alternative products and behaviors.

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Section: Study Limitationsmentioning

confidence: 99%

A characterization of personal care product use among undergraduate female college students in South Carolina, USA

Hart

Walker

Beckingham

et al. 2019

J Expo Sci Environ Epidemiol

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“…Prior studies regarding diversity in research participation have emphasized raising awareness and education, building community relationships, and implementing community‐based research to increase awareness, access, and ultimately participation in biomedical research . The diversity of the research participants in the current study, and the increased likelihood of participation in biomedical research among underrepresented racial and ethnic groups, may be due in part to each site's collaborations with local, well‐established, and long‐standing community partners and our ongoing outreach, engagement, and research programs …”

Section: Discussionmentioning

confidence: 99%

“…17,[31][32][33] The diversity of the research participants in the current study, and the increased likelihood of participation in biomedical research among underrepresented racial and ethnic groups, may be due in part to each site's collaborations with local, well-established, and long-standing community partners and our ongoing outreach, engagement, and research programs. 13,[34][35][36] The results of the current study also highlight opportunities for NCI-designated cancer centers to build on and leverage community and institutional relationships to better understand and enhance health communication and behavior around biomedical research participation. Such studies will have a meaningful impact on actual enrollment, thereby increasing diversity in research participation and improving population health.…”

Section: Discussionmentioning

confidence: 99%

Factors associated with biomedical research participation within community‐based samples across 3 National Cancer Institute–designated cancer centers

Barrett

Rodriguez

Iachan

et al. 2020

Cancer

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Background Engaging diverse populations in biomedical research, including biospecimen donation, remains a national challenge. This study examined factors associated with an invitation to participate in biomedical research, intent to participate in biomedical research in the future, and participation in biomedical research and biospecimen donation among a diverse, multilingual, community‐based sample across 3 distinct geographic areas. Methods Three National Cancer Institute–designated cancer centers engaged in community partnerships to develop and implement population health assessments, reaching a convenience sample of 4343 participants spanning their respective catchment areas. Data harmonization, multiple imputation, and multivariable logistic modeling were used. Results African Americans, Hispanic/Latinos, and other racial minority groups were more likely to be offered opportunities to participate in biomedical research compared to whites. Access to care, history of cancer, educational level, survey language, nativity, and rural residence also influenced opportunity, intent, and actual participation in biomedical research. Conclusions Traditionally underserved racial and ethnic groups reported heightened opportunity and interest in participating in biomedical research. Well‐established community partnerships and long‐standing community engagement around biomedical research led to a diverse sample being reached at each site and may in part explain the current study findings. However, this study illustrates an ongoing need to establish trust and diversify biomedical research participation through innovative and tailored approaches. National Cancer Institute–designated cancer centers have the potential to increase opportunities for diverse participation in biomedical research through community partnerships and engagement. Additional work remains to identify and address system‐level and individual‐level barriers to participation in both clinical trials and biospecimen donation for research.

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“…Findings from this study reinforce the importance of working to establish trust. Similar to vulnerable populations such as indigenous people [ 25 ], other minority populations [ 26 – 29 ], and frail elderly adults [ 30 ], due to a history of harassment, assault, or other trauma [ 7 ], trust and safety concerns are more prevalent among military Veterans, potentially making recruitment more challenging. For US Veterans to participate, they must perceive that the researchers are trustworthy and that the research is of value.…”

Section: Discussionmentioning

confidence: 99%

How can we get Iraq- and Afghanistan-deployed US Veterans to participate in health-related research? Findings from a national focus group study

Littman

True

Ashmore

et al. 2018

BMC Med Res Methodol

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BackgroundResearch participant recruitment is often fraught with obstacles. Poor response rates can reduce statistical power, threaten both internal and external validity, and increase study costs and duration. Military personnel are socialized to a specific set of laws, norms, traditions, and values; their willingness to participate in research may differ from civilians. The aims of this study were to better understand the views of United States (US) Veterans who served in Operation Enduring Freedom (OEF)/ Operation Iraqi Freedom (OIF) on research and motivators for participating in research to inform recruitment for a planned observational study of respiratory health in OEF/OIF Veterans.MethodsWe conducted 10 focus groups in a purposive sample of OEF/OIF Veterans (n = 89) in five US cities in 2015. Key topics included: reasons for participating or declining to participate in health-related research, logistics around study recruitment and conduct, compensation, written materials, and information sharing preferences for study results. Two authors independently coded the data using template analysis.ResultsParticipants identified three criteria that motivated a decision to participate in health-related research: 1) adequate compensation, 2) desire to help other Veterans, and 3) significance and relevance of the research topic. For many, both sufficient compensation and a sense that the study would help other Veterans were critical. The importance of transparency arose as a key theme; Veterans communicated that vague language about study aims or procedures engendered distrust. Lastly, participants expressed a desire for studies to communicate results of their specific health tests, as well as overall study findings, back to research participants.ConclusionsOEF/OIF Veterans described trust, transparent communication, and respect as essential characteristics of research in which they would be willing to participate. Additional studies are needed to determine whether our results generalize to other US Veterans; nevertheless, our results highlight precepts that have been reported as important for recruitment in other populations. Researchers may benefit from using community-engaged research methods to seek feedback on recruitment materials and strategies prior to initiating research. For costly studies targeting a large sample (i.e. in the thousands), it may be important to test a variety of recruitment strategies.Electronic supplementary materialThe online version of this article (10.1186/s12874-018-0546-2) contains supplementary material, which is available to authorized users.

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Engaging African Americans in Research: The Recruiter’s Perspective

Cited by 47 publications

References 18 publications

A characterization of personal care product use among undergraduate female college students in South Carolina, USA

A characterization of personal care product use among undergraduate female college students in South Carolina, USA

Factors associated with biomedical research participation within community‐based samples across 3 National Cancer Institute–designated cancer centers

How can we get Iraq- and Afghanistan-deployed US Veterans to participate in health-related research? Findings from a national focus group study

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