Impacto de un programa educativo a los padres de niños con cáncer en el aumento del conocimiento de la enfermedad de sus hijos y la disminución de la ansiedad

Abstract

An educational program provided by nurses to parents of children recently diagnosed with cancer, increased the knowledge of their children's disease. However there was no effect on the levels of anxiety. A feasible educational intervention is proposed that could be implemented at other cancer centers for children.

Tecnologias Educacionais Para Cuidadores No Contexto De Unidades Hospitalares De Oncologia Pediátrica: Revisão De Escopo

“…Através da utilização de recursos como os vídeos educativos e jogos foi possível ter uma redução significativa da ansiedade 7,23 . Todavia, quando aplicados materiais impressos não houve efeito significativo no nível de ansiedade dos cuidadores 26 .…”

Impact of a structured educational programme for caregivers of children with cancer on parental knowledge of the disease and paediatric clinical outcomes during the first year of treatment

“…The education programme included topics related with cancer pathophysiology, diagnosis and treatment of cancer, medication side effects, infection prevention, CVC care, awareness of febrile neutropenia (FN) and understanding when an ED visit is necessary (De la Maza et al., 2015). The education was provided through individual sessions with a nurse specialised in paediatric cancer.…”

“…We compared caregivers who participated in a structured education programme with parents receiving standard care. Caregivers who received the education intervention had significantly more knowledge of their child's disease (De la Maza et al., 2015). Furthermore, a user satisfaction survey indicated that the majority of caregivers felt that this education programme empowered them to take on a more active role in their child's care.…”

“…Caregivers who received the education intervention had significantly more knowledge of their child's disease (De la Maza et al, 2015).…”

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“…The results indicated that parents who received the intervention had greater knowledge of their child's disease than the control group. Furthermore, user satisfaction surveys suggested that parents were grateful for the program, stating that the information allowed them to assume a more active role in their child's care [9]. After this study was completed and the evidence was presented, facility administrators decided to create a new permanent position: a nurse educator who would provide information to the parents of pediatric cancer patients.…”