Impact of the Children's Epilepsy Program on Parents

Lewis, Mary Ann; Hatton, Corrine Loing; Salas, I. Alonso; Leake, Barbara; Chíofalo, N

doi:10.1111/j.1528-1157.1991.tb04665.x

Cited by 84 publications

(75 citation statements)

References 21 publications

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“…In order to help parents to overcome the difficulties related with epilepsy of their children, several educational programs focused on them have been developed and carried out. Lewis et al reported on the efficacy of an epilepsy program leading to a significant reduction of anxiety among parents of CWE [39] .…”

Section: A C a D E M I C A C H I E V E M E N T A N D Academic Self-comentioning

confidence: 99%

Specifics of Children With Epilepsy in School Environment

Brabcová

Kohout

2015

International Journal of Neurology Research

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Our editorial focuses on specifics of children with epilepsy in school environment. Epilepsy and its common co-morbidities (learning disabilities, intellectual disability etc.) are introduced as a highlyrisk factor for school-life and academic achievement of the affected children. Attention is devoted to policy relevance of this topic and to important documents addressing it in this context. The state-ofart of three important aspects of the topic (the academic achievement and academic self-concept of children with epilepsy, the knowledge of, familiarity with and attitudes towards epilepsy among teachers and the role of classmates and parents of children with epilepsy) is thoroughly discussed in this editorial. Finally, a complex approach to this topic based on conceptual and structural modelling is promoted and any recommendations for a further research in this field are briefly outlined.

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Section: A C a D E M I C A C H I E V E M E N T A N D Academic Self-comentioning

confidence: 99%

Specifics of Children With Epilepsy in School Environment

Brabcová

Kohout

2015

International Journal of Neurology Research

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“…The diagnosis of a chronic disease like epilepsy, generates a series of feelings in the parents, that almost always include: fear, anger, guilt, sadness, anxiety, confusion, denial, concern, fear of the epilepsy coming on accompanied by personality disorders and fear of the effects of medications 2 . These feelings usually provoke inappropriate behavior in the parents, such as: overprotection, permissiveness, rejection and low expectation in relation to their children.…”

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confidence: 99%

“…The group is an opportunity to share ideas, to express the fears and to exchange experiences with other people living in similar situations. This group intervention possesses a strong potential to provide wellbeing, reducing the parents' anxiety, helping them see their children in a more positive way and help with the child's adjustment and his family 2,4 .…”

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confidence: 99%

Identification of family variables in parents' groups of children with epilepsy

Fernándes

Souza

2001

Arq. Neuro-Psiquiatr.

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-Objective: To verify the effectiveness of the support group in the identification of family variables linked to epilepsy. Method: Pre-test were applied to parents of 21 children with benign epilepsy of childhood recently diagnosed, from 5 to 15 years, who participated in the groups at HC/Unicamp. There was a presentation of an educational video, discussion and application of the post-test 1. After six months, the post-test 2 was applied. Results: The beliefs were: fear of swallowing the tongue during the seizures (76.19%) and of a future mental disease (66.67%). Facing the epilepsy, fear and sadness appeared. 76.19% of the parents presented overprotection and 90.48%, expected a new seizure. In the post-test 1, the parents affirmed that the information offered had modified the beliefs. In the post-test 2, 80.95% didn't report great doubts about epilepsy and 90.48% considered their relationship with their children better. Conclusions: The demystification of beliefs supplied from the groups influenced the family positively, prevented behavior alterations and guaranteed effective care in the attendance to the child with epilepsy.KEY WORDS: childhood epilepsy, family variables. Epilepsy is a common chronic neurological disease in childhood with high incidence of psycho-social difficulties that affect the social adjustment and the quality of child's life and his family 1 . The diagnosis of a chronic disease like epilepsy, generates a series of feelings in the parents, that almost always include: fear, anger, guilt, sadness, anxiety, confusion, denial, concern, fear of the epilepsy coming on accompanied by personality disorders and fear of the effects of medications 2 . These feelings usually provoke inappropriate behavior in the parents, such as: overprotection, permissiveness, rejection and low expectation in relation to their children. The parents treat them as sick, believing that any activity can precipitate a seizure 3 . Many times, the excess of care leads the parents to end up forgetting about the other members of the family. From these reactions, the children learn quickly that there is something wrong with them and consequently they begin to present inadequate behavior of dependence, insecurity, irritability, immaturity. The parents, in this way, perpetuate the stigma, influencing their children to feel apprehensive and full of prejudice in relation to epilepsy. In this context, the family begins to have less proximity and more restrictions of behavior, activities and communication 3 . As the seizures are unexpected and they happen in an unexpected frequency, the parents use inap- Identificação de variáveis familiares em grupos de pais de crianças com epilepsia RESUMO -

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“…Pais percebem seus filhos como imaturos e com várias dificuldades em habilidades psicológicas diversas. Eles falam de sentimentos de culpa, do medo 10 gerados por crenças irracionais e desinformação 10,16 .Os sentimentos de medo, ansiedade, raiva, mágoa, culpa e as reações de superproteção, permissividade, superindulgência dos pais -expressas nas excessivas restrições às atividades infantis …”

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Sentimentos e reações de pais de crianças epilépticas

Souza

Nista²,

Scotoni³

et al. 1998

Arq. Neuro-Psiquiatr.

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RESUMO -Objetivos: Identificar as crenças e os sentimentos dos pais frente à epilepsia e relacioná-los com os comportamentos de seus filhos. Avaliar a eficácia dos grupos de pais na diminuição da ansiedade, esclarecimento sobre a doença e comportamentos. Método: Foram aplicados 18 protocolos que avaliaram sentimentos, crenças e comportamento dos pais e filhos, respondidos antes e depois das sessões de grupos de apoio. Resultados: Diante do diagnóstico foram observados mágoa (94,4%), medo (72,2%), susto (27,8%), tristeza (33,3%) e rejeição (38,9%). Estes sentimentos foram associados a superproteção (83,3%) e falta de limites (38,9%). Segurança foi associada a percepção do controle de crise. Depois do grupo, 94,4% dos pais relatam menos ansiedade e 77,8% associam muitas das dificuldades a falta de informação e a presença de crenças irracionais. Conclusão: Grupos de apoio desmistificam crenças, ajudam na identificação das relações parentais e previnem dificuldades comportamentais.PALAVRAS-CHAVE: epilepsia infantil, grupo de pais, comportamento. Feelings and behaviors of parents of children with epilepsyABSTRACT -Purpose: To assess the efficacy of support groups in identifying parents feelings and behaviors facing the diagnosis of epilepsy in their children. Methods: Protocols were applied to 18 parents before and after the sessions. Each protocol consisted of questions concerning feelings and beliefs toward epilepsy as well as children-parent interactions. Results: The following feelings were observed: disappointment (94.4%), fear (72.2%), frightening (27.8%), sadness (33.3%), anxiety (27.8%) and rejection (38.9%). These feelings were associated with overprotection (83.3%) and a lack of limits (38.9%). Parents reported feeling of safety after seizure control and 77.8% associate major of difficulties to the lack of information and the inadequated beliefs involved. After support sessions, 94.4% of the parents reported less anxiety. Conclusion: Support groups dispel misconception, clarify child parent relationships and prevent behavioral difficulties.KEY WORDS: infantile epilepsy, support groups, behavior.A epilepsia é considerada como uma experiência frustante para a família 5 . Seu diagnóstico gera nos familiares um desajuste emocional, mobilizando-os no sentido de se adaptarem a uma doença crônica. O ajustamento familiar, por sua vez, tem profundo impacto em como as crianças reagem. Crianças e adolescentes epilépticos reconhecem que têm uma condição que os diferencia de outras crianças 4 . Pais percebem seus filhos como imaturos e com várias dificuldades em habilidades psicológicas diversas. Eles falam de sentimentos de culpa, do medo 10 gerados por crenças irracionais e desinformação 10,16 .Os sentimentos de medo, ansiedade, raiva, mágoa, culpa e as reações de superproteção, permissividade, superindulgência dos pais -expressas nas excessivas restrições às atividades infantis

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Impact of the Children's Epilepsy Program on Parents

Cited by 84 publications

References 21 publications

Specifics of Children With Epilepsy in School Environment

Specifics of Children With Epilepsy in School Environment

Identification of family variables in parents' groups of children with epilepsy

Sentimentos e reações de pais de crianças epilépticas

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