Impact of Pediatric Critical Illness and Injury on Families: An Updated Systematic Review

Abela, Karla; Wardell, Diane Wind; Rozmus, Cathy L; LoBiondo‐Wood, Geri

doi:10.1016/j.pedn.2019.10.013

Cited by 75 publications

(82 citation statements)

References 54 publications

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“…Similarly for paediatric ICU survivorship literature, positive aspects for the child relate to the social health domain and greater level of perceived resilience and prospective outlook on life 22 . For their parents/carers positive outcomes relate to a greater degree of expressiveness and lower degree of conflict, with siblings reporting enhanced kinship with the critically ill brother/sister 23 …”

Section: Survivorship Growth and Capacity For Changementioning

confidence: 98%

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Post intensive care syndrome across the life course: Looking to the future of paediatric and adult critical care survivorship

Flaws

Manning

2021

Nursing in Critical Care

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Section: Survivorship Growth and Capacity For Changementioning

confidence: 98%

“…Among children's families, one third of parents reported having an acute stress disorder, half have anxiety, and 30% have depression. Social disruptions are also reported with significant changes to family roles and functioning, loss of friends and acquaintances, and economic hardship 23 …”

Section: Health Education and Social Networkmentioning

confidence: 99%

Post intensive care syndrome across the life course: Looking to the future of paediatric and adult critical care survivorship

Flaws

Manning

2021

Nursing in Critical Care

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“…45 ► Patient Health Questionnaire-4. 46 ► The Post-Traumatic Stress Disorder Checklist (PCL- 5) for Diagnostic and Statistical Manual of Mental Disorders-5 (DSM-V). [47][48][49] Sibling-related measures: ► PedsQL 4.0 Generic Core Scales (2-17 years).…”

Section: Theoretical Frameworkmentioning

confidence: 99%

Study protocol for a multicentre longitudinal mixed methods study to explore the Outcomes of ChildrEn and fAmilies in the first year after paediatric Intensive Care: the OCEANIC study

et al. 2020

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IntroductionAnnually in the UK, 20 000 children become very ill or injured and need specialist care within a paediatric intensive care unit (PICU). Most children survive. However, some children and their families may experience problems after they have left the PICU including physical, functional and/or emotional problems. It is unknown which children and families experience such problems, when these occur or what causes them. The aim of this mixed-method longitudinal cohort study is to understand the physical, functional, emotional and social impact of children surviving PICU (aged: 1 month–17 years), their parents and siblings, during the first year after a PICU admission.Methods and analysisA quantitative study involving 300 child survivors of PICU; 300 parents; and 150–300 siblings will collect data (using self-completion questionnaires) at baseline, PICU discharge, 1, 3, 6 and 12 months post-PICU discharge. Questionnaires will comprise validated and reliable instruments. Demographic data, PICU admission and treatment data, health-related quality of life, functional status, strengths and difficulties behaviour and post-traumatic stress symptoms will be collected from the child. Parent and sibling data will be collected on the impact of paediatric health conditions on the family’s functioning capabilities, levels of anxiety and social impact of the child’s PICU admission. Data will be analysed using descriptive and inferential statistics. Concurrently, an embedded qualitative study involving semistructured interviews with 24 enrolled families at 3 months and 9 months post-PICU discharge will be undertaken. Framework analysis will be used to analyse the qualitative data.Ethics and disseminationThe study has received ethical approval from the National Health Services Research Ethics Committee (Ref: 19/WM/0290) and full governance clearance. This will be the first UK study to comprehensively investigate physical, functional, emotional and social consequences of PICU survival in the first-year postdischarge.Clinical Trials Registration Number: ISRCTN28072812 [Pre-results]

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“…La vivencia de la hospitalización como algo adverso y la falta de acciones para mitigar su impacto, pueden contribuir a la aparición de necesidades en los niños, las cuales pueden pasar desapercibidas durante la atención clínica, pero hacerse más evidentes a largo plazo, especialmente en los casos que por la condición clínica requieren hospitalizaciones frecuentes o prolongadas afectando la calidad de vida de los niños (8,9) la de sus cuidadores (10).…”

Section: Introductionunclassified

Necesidades percibidas en el paciente pediátrico hospitalizado

Cantor-Cruz¹,

Vargas

Álvarez

et al. 2020

Pediatria.

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Introducción: La hospitalización es una situación que los niños pueden experimentar como negativa, intimidante o adversa, contribuyendo a la aparición de necesidades que pueden pasar desapercibidas durante la atención médica y que en estancias hospitalarias largas son más evidentes. Objetivo: Describir la experiencia en la identificación y abordaje de las necesidades percibidas en niños hospitalizados, utilizando una estrategia basada en la lúdica durante el año 2018 en tres clínicas de Bogotá. Métodos: Se realizó un estudio de métodos mixtos, con análisis de datos retrospectivo sobre los registros de atención realizados en 2018. La selección de los pacientes fue consecutiva y a conveniencia. Para identificar las necesidades se realizaron entrevistas estructuradas, y se intervino mediante una estrategia psicopedagógica basada en la lúdica. Resultados: Los pacientes pediátricos hospitalizados independientemente de su edad o patología de ingreso, presentan durante las tres primeras semanas de hospitalización necesidades relacionadas con el estado de ánimo y la interacción con el cuidador. Los cuidadores también presentan necesidades relacionadas con el manejo de la incertidumbre por el diagnóstico y el pronóstico del niño, la interrupción en la dinámica y funcionamiento familiar, y preocupaciones por la atención médica y por aspectos psicosociales y educativos de los niños durante su estancia en el hospital Conclusiones: Las estrategias pedagógicas basadas en la lúdica son un recurso valioso con el que las instituciones prestadoras de servicios podrían mejorar la experiencia de los niños que requieren ser hospitalizados y de sus cuidadores.

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Impact of Pediatric Critical Illness and Injury on Families: An Updated Systematic Review

Cited by 75 publications

References 54 publications

Post intensive care syndrome across the life course: Looking to the future of paediatric and adult critical care survivorship

Post intensive care syndrome across the life course: Looking to the future of paediatric and adult critical care survivorship

Study protocol for a multicentre longitudinal mixed methods study to explore the Outcomes of ChildrEn and fAmilies in the first year after paediatric Intensive Care: the OCEANIC study

Necesidades percibidas en el paciente pediátrico hospitalizado

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