Post intensive care syndrome across the life course: Looking to the future of paediatric and adult critical care survivorship

Flaws, Dylan; Manning, Joseph C

doi:10.1111/nicc.12605

Cited by 6 publications

(10 citation statements)

References 24 publications

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“…What has been shown for adults ( 2 ) has also been observed in children after critical care; 6 months after discharge 72% suffer from sleep disorders and 38% from chronic fatigue. In 75% of pediatric patients negative consequences for the health-related quality of life are observed; the PTSD rate is given at about 30% ( 4 , 12 , 18 – 20 ). About one third of the respondents stated that they lacked knowledge from follow-up to be able to make statements about long-term consequences.…”

Section: Discussionmentioning

confidence: 99%

“…In addition to the more frequently discussed functional impairments, pediatric patients also suffer from other long-term consequences such as post-traumatic stress disorder (PTSD), anxiety disorders, developmental deficits, and cognitive impairments ( 9 , 10 ). The above-mentioned limitations are often accompanied by reductions in health-related quality of life and participation ( 9 , 11 , 12 ). The pathophysiology is multifactorial, due to the different modalities of intensive care treatment and partly unexplained.…”

Section: Introductionmentioning

confidence: 99%

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Current Knowledge Regarding Long-Term Consequences of Pediatric Intensive Care: A Staff Survey in Intensive Care Units in German-Speaking Countries

et al. 2022

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BackgroundThe Post Intensive Care Syndrome (PICS) describes new impairments of physical, cognitive, social, or mental health after critical illness. In recent years, prevention and therapy concepts have been developed. However, it is unclear whether and to what extent these concepts are known and implemented in hospitals in German-speaking countries.MethodsWe conducted an anonymous online survey in German-speaking pediatric intensive care units on the current state of knowledge about the long-term consequences of intensive care treatment as well as about already established prevention and therapy measures. The request to participate in the survey was sent to the heads of the PICUs of 98 hospitals.ResultsWe received 98 responses, 54% of the responses came from nurses, 43% from physicians and 3% from psychologist, all working in intensive care. As a main finding, our survey showed that for only 31% of the respondents PICS has an importance in their daily clinical practice. On average, respondents estimated that about 42% of children receiving intensive care were affected by long-term consequences after intensive care. The existence of a follow-up outpatient clinic was mentioned by 14% of the respondents. Frequent reported barriers to providing follow-up clinics were lack of time and staff. Most frequent mentioned core outcome parameters were normal developmental trajectory (59%) and good quality of life (52%).ConclusionOverall, the concept of PICS seems to be underrepresented in German-speaking pediatric intensive care units. It is crucial to expand knowledge on long-term complications after pediatric critical care and to strive for further research through follow-up programs and therewith ultimately improve long-term outcomes.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Current Knowledge Regarding Long-Term Consequences of Pediatric Intensive Care: A Staff Survey in Intensive Care Units in German-Speaking Countries

et al. 2022

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“…As has been recently pointed out, perhaps the focus on measures should shift to positive as well as negative outcomes following critical illness. 19…”

Section: Pics Outcome Measuresmentioning

confidence: 99%

“…The Coronavirus-2019 (COVID- 19) global pandemic is exacerbating the already heavy burden of intensive care unit (ICU) capacity.…”

mentioning

confidence: 99%

Post‐intensive care syndrome: Time for a robust outcome measure?

Yuan

Timmins

Thompson

2022

Nursing in Critical Care

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“…Recent studies indicated that after discharge from the PICU, many children may experience physical and cognitive impairment that affects their daily life 2 3. Furthermore, both children and their parents experienced emotional symptoms consistent with post-traumatic stress disorder (PTSD), anxiety and depression 4–6. After PICU discharge, families of PICU hospitalised children demonstrated decreased quality of life due to impaired family functioning, and interruption in employment and social life 7–10.…”

Section: Introductionmentioning

confidence: 99%

Post Intensive Care Syndrome in Swiss Paediatric survivors and their Families (PICSS-PF): a national, multicentre, longitudinal study protocol

Rahmaty,

Manning,

Perez

et al. 2023

BMJ Open

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IntroductionPaediatric intensive care units (PICUs) survivors and their families often experience widespread morbidity and psychosocial consequences after discharge, known as post-intensive care syndrome in paediatrics (PICS-p). In Switzerland, more than 5000 children are admitted to PICUs each year, and despite the high survival rate, there are no data on post-PICU recovery. This study aims to investigate PICS in children and families and identify its associated factors.Methods and analysisThis is a national, multicentre, longitudinal, observational study that includes PICU survivors, main family caregivers and siblings (n=1300) recruited from the eight Swiss accredited PICUs with follow-up at discharge, 1, 3 and 6 months after discharge from the PICU. Data will be collected on the domains of physical, emotional, social and cognitive health, as well as factors affecting the outcome related to demographics, clinical specification, PICU and family environment, as well as community and social resources. Structural equation models and growth mixture models will analyse the outcomes, and the heterogeneity of recovery that shed light on the diverse recovery experiences of children and their families. The study identifies risk and protective factors with a focus on the influence of social and familial resources. It will also explore the mutual impact of the child’s recovery and parent/sibling psychosocial health.Ethics and disseminationThe protocol is approved by the CER-VD ethics committee. Participants will be provided with verbal and written explanations of the study, and their privacy and anonymity will be protected throughout the process. The results will be presented at local and international conferences.Approval numberSwiss ethics committees ID: 2022-02128, representing the eight cantons for both French and German-speaking parts of Switzerland.

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Post intensive care syndrome across the life course: Looking to the future of paediatric and adult critical care survivorship

Cited by 6 publications

References 24 publications

Current Knowledge Regarding Long-Term Consequences of Pediatric Intensive Care: A Staff Survey in Intensive Care Units in German-Speaking Countries

Current Knowledge Regarding Long-Term Consequences of Pediatric Intensive Care: A Staff Survey in Intensive Care Units in German-Speaking Countries

Post‐intensive care syndrome: Time for a robust outcome measure?

Post Intensive Care Syndrome in Swiss Paediatric survivors and their Families (PICSS-PF): a national, multicentre, longitudinal study protocol

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