Impact of Orofacial Dysfunction on the Quality of Life of Adult Patients With Cleft Lip and Palate

Mariano, Natalia Cristina Reinaldo; Sano, M. N.; Curvêllo, Victor Prado; Almeida, Ana Lúcia Pompéia Fraga de; Neppelenbroek, Karin Hermana; Oliveira, Thaís Marchini de; Soares, Simone

doi:10.1177/1055665618760897

Cited by 12 publications

(5 citation statements)

References 51 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Such challenges may include a high anxiety disorder rate in adolescent patients and a decrease in the quality of their family life [1,2]. Conversely, in a cross-sectional study, adults with a cleft had a significantly higher quality of life when compared to adults without a cleft, possibly due to their resiliency [3]. Herein we describe a patient who faced sexual handicap secondary to cleft lip and its related psychosocial and anatomical issues.…”

Section: Introductionmentioning

confidence: 98%

Psychosocial and Sexual Implications of Repaired Cleft Lip in an Adult Male

Gandhi

Seyam

Liang

et al. 2020

Cureus

View full text Add to dashboard Cite

We describe the case of a 32-year-old man with repaired cleft lip complaining of sexual difficulties, which were determined to be multifactorial in origin. A negative body impression, anatomical difficulty in engaging in sexual acts, the indirect impact of secondary complications of cleft lip, and the negative perception of his dysmorphia from potential sexual partners led to his current state. Cleft lip and palate (CLP) are the most common malformations of the craniofacial region. The malformations of anatomical structures involved in CLP can manifest through several variations of clinical features and phenotypes, typically affecting hearing, social integration, speech, and feeding. From birth to the end of growth, a multidisciplinary approach involving orthodontists, speech therapists, psychologists, and social workers is essential for adequate management, even after surgical repair. This case report illustrates the critical importance of the functionality of normal lips essential for sexual function and psychosocial issues encountered in a patient with repaired cleft lip, as this issue likely has a higher prevalence than the literature actually suggests. Adding a psychiatrist on the panel for pediatric reconstructive surgery teams and post-repair rehabilitation would be essential to managing potential sexual and psychological issues into adulthood.

show abstract

Section: Introductionmentioning

confidence: 98%

Psychosocial and Sexual Implications of Repaired Cleft Lip in an Adult Male

Gandhi

Seyam

Liang

et al. 2020

Cureus

View full text Add to dashboard Cite

show abstract

“… 11 , 12 The biggest challenges with these cases include feeding, articulation, development of speech, hearing disorders, nutritional deficiencies, and mental and social integration. 13 – 15 Children with OFC also suffer dental abnormalities, which include the number, size, and shape of the teeth. 16 Children born with OFC and their families suffer psychological distress along with major economic burdens.…”

Section: Introductionmentioning

confidence: 99%

Prevalence and Patterns of Orofacial Clefts among Children from Different Regions of Saudi Arabia: A Systematic Review

Albalawi¹,

Alsaeed²,

Alalola³

et al. 2023

International Journal of Clinical Pediatric Dentistry

View full text Add to dashboard Cite

A bstract Aim and objective To report on the prevalence and patterns of orofacial clefts (OFC) among Saudi Arabian children by analyzing the results of the studies that have been reported in the literature. Materials and methods A data search was carried out for the articles that had reported on the prevalence of OFC among the Saudi Arabian population in databases like Web of Science, PubMed, Google Scholar, Scopus, and Saudi Digital Library. Articles that were published over the last 15 years were included in this study, following which 13 studies were assessed for qualitative data. Newcastle–Ottawa Quality Assessment Scales for cross-sectional studies were used for analyzing the methodological quality of these studies. Results The prevalence of OFC was within the range of 0.65–1.9/1,000 live births. The highest was witnessed in the Medina region. Parent's consanguinity was the most common risk factor in OFC cases in the included studies. OFC was found to be higher among the male population in comparison with the female. Conclusion The prevalence of OFC in Saudi Arabian children follows the global patterns of OFC. Isolated cleft lip (CL) and cleft palate (CP) are the most common forms of OFC. The prevalence of orofacial anomalies was reported more among children born to parents who had consanguineous marriages. Considering the higher rate of consanguinity among this population, there is an urgent need of developing educational and counseling programs to address the genetic consequences. How to cite this article Albalawi F Alsaeed S, Alalola B, et al. Prevalence and Patterns of Orofacial Clefts among Children from Different Regions of Saudi Arabia: A Systematic Review. Int J Clin Pediatr Dent 2023;16(1):124-130.

show abstract

“…Cleft lip and palate are a congenital anomaly that impairs orofacial form, function and appearance in patients 1 . Since facial appearance plays a crucial role in social interactions between individuals, it is understandable that these patients become more conscious due to the deviation from average.…”

Section: Introductionmentioning

confidence: 99%

Comparative evaluation of nasolabial appearance of unilateral cleft lip and palate patients by professional, patient and layperson using 2 aesthetic scoring systems: A cross sectional study

Duggal

Talwar

Duggal

et al. 2023

Orthod Craniofacial Res

View full text Add to dashboard Cite

ObjectiveTo compare the perspective of healthcare providers (orthodontists), cleft patients and laypersons in judging nasolabial aesthetics in patients with complete unilateral cleft lip, with or without cleft palate (UCL ± P) using 2 scoring systems.DesignThis cross‐sectional study was conducted in a tertiary care government hospital.PatientsPhotographic records of 100 patients with complete UCL ± P from the age group of 5‐18 years (mean age‐12.2 ± 3.93 years) were included in this study.MethodPhotographic records of 100 patients with complete UCL ± P from the age group of 5‐18 years were included. A panel of 3 orthodontists, 3 laypersons and 3 cleft patients rated nasolabial aesthetics using 2 scoring systems i.e. Asher‐McDade index (AMAI) and Cleft Aesthetic Rating Scale (CARS). Spearman's split‐half reliability, Intra‐class correlation coefficient and Cronbach's alpha were computed to measure internal consistency and reliability. Inter‐panel agreement between pair of groups was determined by means of Spearman correlation coefficient.ResultsEstimated reliability of CARS for 3 raters in each panel was in moderate agreement for orthodontists and cleft patients (0.849 and 0.810). Good repeatability and agreement were recorded with moderate to high intra‐panel reliability for all parameters of both AMAI and CARS. Overall inter‐panel agreement was moderate for both AMAI and CARS. Pair‐wise inter‐panel agreement showed a moderately positive correlation in both scales (AMAI and CARS) by cleft patients and professionals.ConclusionCARS index can be reliably used for assessment of nasolabial aesthetics by cleft patients, professionals and lay persons on 2D facial photographs. Patients were more critical than clinicians and laypersons using both indices (CARS and AMAI) as they are more self‐aware and conscious. Thus, a clear communication between clinician and patient regarding expectations, perception and satisfaction with surgical results is strongly recommended.

show abstract

Impact of Orofacial Dysfunction on the Quality of Life of Adult Patients With Cleft Lip and Palate

Cited by 12 publications

References 51 publications

Psychosocial and Sexual Implications of Repaired Cleft Lip in an Adult Male

Psychosocial and Sexual Implications of Repaired Cleft Lip in an Adult Male

Prevalence and Patterns of Orofacial Clefts among Children from Different Regions of Saudi Arabia: A Systematic Review

Comparative evaluation of nasolabial appearance of unilateral cleft lip and palate patients by professional, patient and layperson using 2 aesthetic scoring systems: A cross sectional study

Contact Info

Product

Resources

About