Impact of a temporary stoma on patients' everyday lives: feelings of uncertainty while waiting for closure of the stoma

Danielsen, Anne Kjærgaard; Soerensen, Erik Elgaard; Burcharth, Kirsten; Rosenberg, Jacob

doi:10.1111/jocn.12011

Cited by 47 publications

(37 citation statements)

References 57 publications

(73 reference statements)

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“…Via qualitative research studies, it can be possible to access in‐depth information regarding the psychosocial problems of individuals with stomas. In this literature review, 11 of the studies were qualitative . These studies examined the relationship between stoma and psychological problems such as adaptation problems, feelings of uncertainty and stigma, and identified the effects of stomas on body image, sexuality, and social life, and showed the necessity to provide individualised training, consultancy, and psychosocial support.…”

Section: Discussionmentioning

confidence: 99%

Overview of psychosocial problems in individuals with stoma: A review of literature

Ayaz‐Alkaya

2018

International Wound Journal

141

126

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This literature review was conducted to summarise empirical evidence relating to psychosocial health following ostomy surgery during hospitalisation and after discharge. Both qualitative and quantitative studies were searched from 2000 to 2017 using PubMed, CINAHL, Ebrary, Elsevier, Science Direct, and Scopus. Twenty‐seven articles were included that examined the patient's psychosocial health following colostomy or ileostomy surgery. Among the 27 included studies, 11 adopted qualitative research methods and 16 used quantitative designs. Most of the studies were conducted to determine psychosocial problems and emotions of the individuals, their adaptation to the stoma, and their quality of life. Most of the psychosocial problems identified in these studies were poor body image perception and self‐respect, depression, sexual problems, and lower psychosocial adaptation. This literature review has illustrated the patient's psychosocial health following stoma surgery. Further studies exploring the effect of psychosocial interventions could be planned.

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Section: Discussionmentioning

confidence: 99%

Overview of psychosocial problems in individuals with stoma: A review of literature

Ayaz‐Alkaya

2018

International Wound Journal

141

126

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“…This might indicate that patient education should also focus on concerns and questions that are less plain and evident, and maybe involving lay teachers with a stoma may support this [12], [13].…”

Section: Discussionmentioning

confidence: 99%

“…Patient education sessions were set up after hospital discharge and were organized according to issues that were identified as relevant and central for patients after stoma creation [12], [13]. The educational approach was inspired by theories of self-management, and self-efficacy, and was based on principles of adult learning and health education [14].…”

Section: Methodsmentioning

confidence: 99%

Health Related Quality of Life May Increase when Patients with a Stoma Attend Patient Education – A Case-Control Study

Danielsen

Rosenberg

2014

PLoS ONE

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IntroductionAdaptation to living with a stoma is complex, and studies have shown that stoma creation has a great impact on patients' health related quality of life. The objective was to explore the effect of a structured patient education program on health related quality of life. Therefore, we implemented interventions aimed at increasing health related quality of life during and after hospital admission.Materials and MethodsWe designed a case/control study aimed at adult patients admitted to the surgical ward for stoma creation, irrespective of type of stoma or reason for creation of stoma. We included 50 patients in the study. Health related quality of life was measured before hospital discharge, three months and six months after stoma creation. The program included educational interventions involving lay-teachers, alongside health professional teachers.ResultsWe found a significant rise in health related quality of life in the intervention group (P<0.001) and no significant change in the control group (P = 0.144). However, we found no significant differences when comparing between groups at 3 and 6 months (p = 0.12 and p = 0.63, respective). Additionally, there were differences in scores in health related quality of life baseline (p = 0.045) with lower scores in the intervention group compared with the intervention group. However, there were no significant differences in the demographic variables at baselineConclusionsEducational activities aimed at increase in knowledge and focusing on patients' psychosocial needs may lead to a rise in patients' health related quality of life. When patients with a stoma attend a structured patient education program it is possible to improve their health related quality of life compared with patients with a stoma, who do not attend the program.Trial RegistrationClinicalTrials.gov NCT01154725

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“…Interviews were set-up with a descriptive phenomenological approach to grasp the central understanding of the participants [13,14] and to create discussions among them. We deemed that the use of focus groups would enhance the descriptive phenomenological approach [15], rather than considering the two incompatible [16]. We used purposive sampling [17], including all participants in the first of the three Writing for publication courses.…”

Section: Methodsmentioning

confidence: 99%

A feeling of flow: exploring junior scientists’ experiences with dictation of scientific articles

et al. 2013

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BackgroundScience involves publishing results, but many scientists do not master this. We introduced dictation as a method of producing a manuscript draft, participating in writing teams and attending a writing retreat to junior scientists in our department. This study aimed to explore the scientists’ experiences with this process.MethodsFour focus group interviews were conducted and comprised all participating scientists (n = 14). Each transcript was transcribed verbatim and coded independently by two interviewers. The coding structure was discussed until consensus and from this the emergent themes were identified.ResultsParticipants were 7 PhD students, 5 scholarship students and 2 clinical research nurses. Three main themes were identified: ‘Preparing and then letting go’ indicated that dictating worked best when properly prepared. ‘The big dictation machine’ described benefits of writing teams when junior scientists got feedback on both content and structure of their papers. ‘Barriers to and drivers for participation’ described flow-like states that participants experienced during the dictation.ConclusionsMotivation and a high level of preparation were pivotal to be able to dictate a full article in one day. The descriptions of flow-like states seemed analogous to the theoretical model of flow which is interesting, as flow is usually deemed a state reserved to skilled experts. Our findings suggest that other academic groups might benefit from using the concept including dictation of manuscripts to encourage participants’ confidence in their writing skills.

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Impact of a temporary stoma on patients' everyday lives: feelings of uncertainty while waiting for closure of the stoma

Cited by 47 publications

References 57 publications

Overview of psychosocial problems in individuals with stoma: A review of literature

Overview of psychosocial problems in individuals with stoma: A review of literature

Health Related Quality of Life May Increase when Patients with a Stoma Attend Patient Education – A Case-Control Study

A feeling of flow: exploring junior scientists’ experiences with dictation of scientific articles

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