Illness uncertainty and illness intrusiveness as predictors of depressive and anxious symptomology in college students with chronic illnesses

Mullins, Amy; Gamwell, Kaitlyn L.; Sharkey, Christina; Bakula, Dana M.; Tackett, Alayna P.; Suorsa, Kristina I.; Chaney, John M.; Mullins, Larry L.

doi:10.1080/07448481.2017.1312415

Cited by 64 publications

(53 citation statements)

References 52 publications

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“…daily routines to time-consuming treatments (between 2 or 3 hours a day) can also have a negative impact on emotional well-being, leading to the appearance of a depressive clinical profile, as shown in our results and those of previous studies [10]. We found no differences between patients with PCD and their healthy peers, as compared to other studies [12,13,15], and observed that depressive symptomatology is more present in healthy people and anxious symptomatology in PCD.…”

Section: Discussionsupporting

confidence: 76%

“…Nevertheless, this vital period of changes can have a negative impact on their image of themselves, since approximately 40% of the whole sample showed low levels of self-esteem. Second, with regard to emotional symptomatology, the predominant psychopathological clinical feature is anxiety in PCD, which is most characteristic in respiratory diseases [10,16]. Uncertainty about the future, fears (of deterioration, respiratory exacerbations, fertility problems in adulthood, etc.)…”

Section: Discussionmentioning

confidence: 99%

“…In paediatrics, research on the psychological aspects (well-being, internalizing-externalizing problems, self-esteem) of chronic respiratory diseases is scarce, especially as related to rare diseases such as PCD. Uncertainty about the prognosis and evolution of the disease, ongoing medical care, as well as a lack of symptom control, often negatively impact these patients' emotional well-being [10][11][12]. Infertility is also an important characteristic associated with PCD, which can lead to frustration or negative emotions in them and their families due to its possible consequences for the patient's future plans [13].…”

Section: Introductionmentioning

confidence: 99%

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Primary ciliary dyskinesia and psychological well-being in adolescence

et al. 2020

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Primary ciliary dyskinesia (PCD) is a rare autosomal recessive disease with low prevalence in pediatrics. Health studies have not sufficiently analyzed the role of psychological variables in rare diseases such as PCD. This paper studies the psychological characteristics of a group of pediatric patients diagnosed with PCD compared to their healthy peers. The sample consisted of 48 preadolescents-adolescents, aged 9-18 years (M = 12.96; SD = 2.71), with similar distribution by sex, and 25% of the patients having dyskinesia. Clinical anxiety-depression, self-esteem and psychological well-being were evaluated using questionnaires: the Adolescent Psychological Well-being Scale (BIEPS-J), the Hospital Anxiety and Depression Scale (HADS) and the Rosenberg Self-Esteem Scale (RSE). Data were analysed using descriptive, mean comparison (t-test) and diffuse comparative qualitative analysis (QCA). The results show no differences were found between healthy and PCD patients in the variables analyzed, except for social ties showing the latter greater well-being in this aspect. In QCA models, the variables that best explained the high or low levels of well-being were depression and selfesteem, and primary ciliary dyskinesia was not a necessary condition for presenting low levels of well-being. In conclusion, our results highlight the need to explore psychological aspects in pediatric patients with rare diseases.

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Section: Discussionsupporting

confidence: 76%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Primary ciliary dyskinesia and psychological well-being in adolescence

et al. 2020

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“…Future research should consider and address these inconsistencies in an attempt to establish a firm understanding and grounding knowledge of grit’s applications to certain success-related outcomes. It is identified that the mental well-being may influence not only factors determining our perceptions, thoughts, and behaviors, but also our physiological wellbeing (Huppert, 2009; Mullins et al, 2017). This study aims to include a mental well-being measure as a variable which will address the need of exploring the relationship between grit and psychological outcomes.…”

Section: Introductionmentioning

confidence: 99%

All That Glitters Is Not Grit: Three Studies of Grit in University Students

et al. 2018

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The present research looked at the importance of the concept of grit in University students based on a mixed-method approach. Study 1 comprised 440 University students. All were given the Grit Scale, the Perceived Stress Scale, the short Warwick–Edinburgh Mental Well-being Scale, the Office of National Statistics Well-being items and the Self-Control Scale. Levels of grit were significantly higher in female students, older students and postgraduates. Grit correlated highest with self-control. Study 2 looked at 340 University students. In addition to measuring self-control, mental well-being and grit, measures of resilience and mindsets were also added. A construct validity test of the Grit Scale showed that high grit scorers had significantly higher levels of self-control and mental well-being, were more resilient and were more likely to have a more growth oriented mindset. Grit varies with age and is most closely associated with the concept of self-control. The third study was a qualitative investigation with 10 successful graduates. Semi-structured interviews were coded using thematic analysis. Three broad themes emerged. The first, Passion and Perseverance, included themes of having short and long terms goals, resilience, dedication, and endurance. The second, Self-Control, included time management, self-awareness, prioritizing tasks and knowing strengths and weaknesses. The third theme identified was Positive Mindsets. This included having a positive attitude toward learning, the importance of feedback and constructive criticism and that success is not materialistic. The qualitative research has helped “unpack” concepts from the grit research and may enable University tutors to guide students better. Though these studies were only conducted in one English University, they have been stepping stones in our quest to discover what are the most important factors in determining student academic success? The development and piloting of our new Uni-Stride Scale, is the next step in this process.

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“…Some students who suffer from a chronic illness have anxiety [27]. For example, a student who suffers diabetes is required to take daily insulin injections and go to Anxiety Disorders the health center, and some may experience dizziness while at the university campus.…”

Section: Illnessmentioning

confidence: 99%