Illness narratives: Discursive constructions of self in pediatric oncology

Kameny, Rebecca; Bearison, David J.

doi:10.1016/s0882-5963(99)80040-2

Cited by 16 publications

(12 citation statements)

References 11 publications

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“…Consistent with prior research on pronouns in illness narratives, use of the generic pronoun “you” is found in statements where the poster signals a strong lack of control and negative affect [23]. In Excerpt 9, an ovarian cancer survivor uses “you” when describing the experience of being in a “surreal place” upon receiving the news of a cancer diagnosis.…”

Section: Resultssupporting

confidence: 63%

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

Chou¹,

Hunt²,

Folkers³

et al. 2011

J Med Internet Res

173

135

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BackgroundAs evidenced by the increasing popularity of YouTube (www.youtube.com), personal narratives shared through social media are an area of rapid development in communication among cancer survivors. Identifying the thematic and linguistic characteristics of YouTube cancer stories can provide a better understanding of this naturally occurring communication channel and inform social media communication efforts aiming to use personal stories to reach individuals with serious illnesses. ObjectiveThe objective of our study was to provide an in-depth description of authentic personal cancer stories. Through a linguistically based narrative analysis of YouTube stories, the analysis explicates the common attributes of these narratives.MethodsInformed by narrative theories, we conducted an iterative, bottom-up analysis of 35 YouTube videos identified by the search terms “cancer survivor” and “cancer stories”. A list of shared thematic and linguistic characteristics was identified and analyzed.ResultsA subnarrative on the cancer diagnosis was present in 86% (30/35) of the stories under analysis. These diagnostic narratives were characterized by dramatic tension, emotional engagement, markers of the loss of agency or control, depersonalized reference to the medical personnel, and the unexpectedness of a cancer diagnosis. The analysis highlights the themes of story authenticity and emotional engagement in this online communication medium.ConclusionsInternet advances have enabled new and efficient exchange of personal stories, including the sharing of personal cancer experience among cancer survivors and their caregivers. The analytic results of this descriptive study point to the common characteristics of authentic cancer survivorship stories online. Furthermore, the results of this descriptive study may inform development of narrative-based communication, particularly in maintaining authenticity and emotional engagement.

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Section: Resultssupporting

confidence: 63%

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

Chou¹,

Hunt²,

Folkers³

et al. 2011

J Med Internet Res

173

135

View full text Add to dashboard Cite

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“…2005). A peculiar complexity seems to be present when the chronic illness is experienced by children, teenagers or young people: the balance between autonomy and parent's concerns, the development of a social life and the importance of both parents' and peers' confirmation represent a crucial issue in those patients and witness the struggle they experience to refine the self (Kameny & Bearison 1999; Karlsson et al. 2008; Newbould et al.…”

Section: Introductionmentioning

confidence: 99%

“…The study of narratives has become an interesting methodology to understand the inner experience of a patient (Pennebacker 1997) also in a paediatric setting (e.g. Kameny & Bearison 1999).…”

Section: Introductionmentioning

confidence: 99%

How individuals with phenylketonuria experience their illness: an age‐related qualitative study

Vegni

Fiori

Riva

et al. 2010

Child

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“…[15] II. RESEARCH METHOD Through an ethnographic approach, [16] in particular the phenomenological perspective (llness narrative) [17]- [19], this study reveals how construction of illness in poor families, especially when family members must be hospitalized. With in-depth interview techniques on patients and families of patients about when the doctor first decided to be hospitalized, the study described how social support, from relatives, neighbors and friends from the work environment, runs in helping patients and their families during hospitalization.…”

Section: Fig 1 Conceptual Framing Of Social Capital Roles For Healtmentioning

confidence: 99%

Social Capital or Social Debt in Healthcare?

Sadewo¹,

Pramono²,

Listyani³

2018

Proceedings of the 1st International Conference on Social Sciences (ICSS 2018)

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For the poor, subsidized health insurance does not fully meet the needs at the time of illness. In a sick condition, let alone be hospitalized, help from the environment around the family becomes important. They struggle to free themselves from illness, so as not to worsen poverty. Through ethnographic research using illness narrative, the results show that the aid proved to be a burden for the community. The aid which is social capital becomes social debt for poor families. This conclusion resulted from the findings of poor families treated in the Sampang and Bantul' public hospitals. Although different ethnic backgrounds differ (Java and Madura), the poor continue to take this into account as social debt.

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Illness narratives: Discursive constructions of self in pediatric oncology

Cited by 16 publications

References 11 publications

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

Cancer Survivorship in the Age of YouTube and Social Media: A Narrative Analysis

How individuals with phenylketonuria experience their illness: an age‐related qualitative study

Social Capital or Social Debt in Healthcare?

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