Identity and social challenges for persons with bleeding disorders: a gender and sex comparative approach

Diesen, Plata Sofie; Grut, Lisbet

doi:10.1080/15017419.2015.1091034

Cited by 4 publications

(4 citation statements)

References 46 publications

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“…He explained that the disorder caused frustration because it restricted the activities he could do with his wife. This is in line with Diesen and Grut (2015) who emphasized that the masculinity of men with hemophilia can be compromised by the inability to participate in physical activities. A 48-year-old concurred about the drawback of not being able to walk very far but described it as a fact of life that he had to accept.…”

Section: Resultssupporting

confidence: 87%

“…Park (2000) was the first to discuss that masculinity played a significant role in men’s experience and management of hemophilia. Other research has emphasized that men’s masculinity can be compromised by the reduced ability to participate in sports and other risk-taking activities (Diesen & Grut, 2017; Kalmar, 2014; Kalmar, Oliffe, Currie, Jackson, & Gue, 2016). Likewise, studies reveal that men with severe hemophilia often value and protect their personal independence and are ambivalent toward support from society, because they, so to speak, have too much masculinity to lose by being patients (Forman, Søgaard, & Mentzler, 2018; Rolstad, 2015).…”

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confidence: 99%

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Masculinity Challenges for Men With Severe Hemophilia

2019

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Hemophilia is a congenital bleeding disorder that mainly affects men. Men with severe hemophilia experience stigma because they are unable to live up to various ideals of masculinity. This study involves a qualitative analysis of how nine Danish men aged 40–54 years with severe hemophilia manage life as functionally impaired relative to their masculine identity. The analytical focus is on how the men manage on a daily basis, how they construct their identity as a result of the disorder, and the body’s importance in these identity negotiations. The source of their biggest defeat is that the disorder often prevents them from living up to social expectations about men as fathers. This results in a variety of management strategies that they apply to neutralize the stigma, allowing them to (a) distance themselves from the disorder in various practical and verbal ways and to (b) assume primary responsibility for managing the disorder, including internalizing being experts on the disorder. The results identify that men with severe hemophilia are frustrated by the lack of advice provided by the health sector. The article proposes initiatives that can be taken to address the lack of knowledge and to create a broader network of peers for men with hemophilia across varying age groups.

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Section: Resultssupporting

confidence: 87%

mentioning

confidence: 99%

Masculinity Challenges for Men With Severe Hemophilia

2019

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“…Enfermedades: Trastornos hemorrágicos. Diesen & Grut (2017) establece que los hombres con trastornos hemorrágicos se enfrentan a una serie de ideas erróneas e implicaciones que pueden comprometer su identidad de género y, por tanto, funcionar como barreras discapacitantes en su vida social. Estas implicaciones deben considerarse a la luz de las expectativas estructuradas y hegemónicas hacia las categorías de género, así como de las premisas biológicamente dadas.…”

Section: Método Femenino De Prevención Del Vih: Microbicidas Vaginalesunclassified

Masculinidades hegemónicas y emergentes, repercusiones en la pareja: satisfacción sexual y calidad de vida

Aguirre Toledo,

Heras Benavides,

Jaramillo Oyervide

2023

ConcienciaDigital

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Las masculinidades hegemónicas promulgan la subordinación de la mujer en relación al hombre, mientras que las emergentes presentan subjetividades donde tensionan diferentes modelos. El objetivo del estudio se basa en analizar las repercusiones de las masculinidades hegemónicas en la satisfacción sexual y calidad de vida, versus las masculinidades emergentes con iguales categorías, a través de una revisión sistemática. Para ello se aplicó el método PRISMA, hallándose once registros que ponen de manifiesto la repercusión sexual de la masculinidad hegemónica en la virginidad de la mujer, el sexo por paga y el método femenino de prevención del VIH; mientras que las repercusiones en la calidad de vida, corresponden al autoestima, salud mental, suicidio, enfermedades, actividad física y conflicto de rol. Por otro lado, las masculinidades emergentes traen Este estudio encontró que las masculinidades hegemónicas tienen un impacto negativo en la satisfacción sexual, particularmente asociadas a ideas prejuiciadas en áreas como la virginidad femenina, el trabajo sexual y los métodos femeninos de prevención del VIH. Además, las masculinidades hegemónicas tienen un impacto negativo en la calidad de vida, incluida la autoestima, la salud mental, la actividad física y el conflicto de roles. Las masculinidades emergentes tienen que enfrentarse a los atávicos criterios de las generaciones antecesoras que los discriminan por ser “hombres igualitarios” lo que afecta a su calidad de vida; en referencia al ámbito sexual, este criterio igualitario considera el placer mutuo como una necesidad de la vida en pareja, lo que revierte en mayor estabilidad y funcionalidad en las relaciones. Es importante destacar que, con respecto a la investigación pertinente de las masculinidades emergentes, los artículos originales desarrollados según los parámetros de búsqueda son parcialmente escasos siendo una temática poco explorada. Área de la ciencia: Psicología.

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“…We have seen work examining aspects of self-understanding among disabled people, including the challenges this can create to identity-formation and dilemmas around disclosure practices/strategies (Asbjørnslett et al, 2014). Such work also considers how other aspects of people's social position and identity influences the relationship between illness and self-identity, in particular gender (Diesen & Grut, 2017). Research in this area is also looking at self-management in relation to the demands of everyday life (Asbjørnslett et al, 2014).…”

Section: Where We Are Nowmentioning

confidence: 99%