Inclusion of children's perspectives can be achieved, at varying levels, in each approach (on, with and by) examined here. Although claims to authority around including children's perspectives may appear to hold more credence when children have directly participated in the research, there may be times when this is neither possible nor appropriate. Researchers are challenged to be open and reflexive about ways in which children are engaged with, incorporated in and represented across the many stages of research. Whichever approach is taken, ethical issues and notions of equity remain problematic. This point holds particular resonance for ways in which ethics around children may be considered in National Health Service ethics governance processes.

This paper explores the impact of a new IT system on the knowledge claims and occupational boundaries made by professional groups within a hospital laboratory setting. Within organizational settings professional groups enjoy considerable power and status through the specialised knowledge claims they make, deploying a variety of material and discursive resources to secure these. However, when organizations introduce new technologies to manage information needs, professional boundaries and claims to expertise may be threatened. This paper examines the strategies deployed by two key professional groups -Medical Laboratory Scientific Officers and medics -to secure their knowledge claims and statuses within the new organizational context shaped in part by an IT system. Though medics were more successful here, they had to accommodate to new demands within the organization. The professional identity and organizational space of the MLSOs were also redefined but, in contrast, by being narrowed. The different experiences and strategies of the two groups reflect their unequal holding of cultural capital and their differential capacity to define their status relative to the organization itself

Recent HCI research has highlighted the potential afforded by maker technologies for supporting new forms of DIY Assistive Technology (DIY-AT) for people with disabilities. Furthermore, the popular discourse surrounding both the maker movement and disability is one of democratisation and empowerment. Despite this, critics argue that maker movement membership lacks diversity and that within DIY-AT, it is seldom the people with disabilities who are creating such designs. We conducted a qualitative study that explored how people with disabilities experience the empowering potential of making. We analysed online videos by makers with disabilities and conducted fieldwork at two makerspaces. These informed the design of DIY-Abilities, a series of workshops for people with disabilities in which participants could learn different maker technologies and complete their own maker project. Through analysis of participants' narratives we contribute a new perspective on the specific social and material capacities of accessible maker initiatives.

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There are many debates in the social sciences about the certain and uncertain nature of subjectivity and knowledge. Often these debates create competing theoretical camps, each hell bent on refuting the other (materialist-idealists; modernist-postmodernists; structuralists-post-structuralists; medical-social). These critiques often fail to engage with the social and material lives of human actors, particularly when those actors occupy positions of relative marginalization. This article pitches these debates in emerging accounts of parents of disabled babies, which have developed from a three-year ESRC research study. 1 We highlight the ways in which parents adaptively and strategically use and refuse forms of certainty and uncertainty in order to configure ways of living with their children.We suggest that parents are nomadic but also settlers in the journeys with their children, and that modernist and postmodernist analyses both allow us to make sense of parents' situated agency within particular social, cultural and material locations.

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Focus groups are an important element of qualitative health research, valued for the forms of knowledge and understanding that emerge from interactions among participants. Common advice for focus groups within health research is to limit the level of variation among respondents to generate comprehensive discussion and shared knowledge. In this article, the authors critically examine this advice, proposing instead that it is useful to acknowledge and, at times, consciously build in heterogeneity across categories of those present. The benefit of doing this is that the interaction thus generated can be used as a space within which to explore differing professional positions and interpretations of issues under discussion. Using research they have done, they explore the practical issues involved in getting different health and social care professionals together and go on to discuss the value and significance of using focus groups to explore the production of professional hierarchies and boundaries.

Stories about disability are heavily shaped by the narratives offered by medicine and society. Those narratives enact an 'anomalous' body that is constructed as distant from the norm and therefore 'damaged' but also fixable. In this paper we explore how such narratives, and the practices they encompass, influence the stories disabled young people tell about their bodies and impairment. We do so by drawing on narrative qualitative interviews and visual practices carried out with seventeen disabled young people in a project funded by the Economic and Social Research Council that took place between 2011 and 2012 in the North East of England. The findings discussed here focus on how medical and societal responses to bodily difference become part of the stories disabled young people tell about their bodies, and influence the way they work with the body as something which remains 'unfinished' and therefore both fixable and flawed. Our conclusion is that a narrative of an unfinished body is produced, as young people manage their bodies as something that is integral to their emerging identity, but also as a potential threat that could undermine and give away their labour in making an 'ordinary' functioning body and life. The paper contributes to medical sociology and sociology of the body by producing new knowledge about how disabled embodiment is lived and framed by disabled young people in the context of ongoing attempts to change the body.