Identifying Youth Nonadherence in Clinical Settings: Data-based Recommendations for Children and Adolescents with Inflammatory Bowel Disease

Abstract

The current findings provide evidence that clinicians who work with children and adolescents with IBD may benefit from modifying their approach to nonadherence screening. Asking about youth involvement in remembering daily medications may be more informative than asking them to recall their medication-taking behavior over the last week in identifying those at highest risk for nonadherence.

An Exploration of Family Problem-Solving and Affective Involvement as Moderators Between Disease Severity and Depressive Symptoms in Adolescents with Inflammatory Bowel Disease

“…Youth were evenly distributed across both genders (51.6 % male) and the majority was Caucasian (86.7 %). The composition of our sample across disease diagnosis and sociodemographic characteristics is similar to that reported by other studies (Greenley et al, 2012; Mackner, Bickmeier, & Crandall, 2012). Participating adults were predominantly mothers (86 %), as well as some fathers (12.2 %) and other legal guardians (1.8 %).…”

Feeling Fine

“…[22][23][24] Participants provided consent/assent during an outpatient pediatric gastroenterology appointment. In the first study, data collection occurred through questionnaire completion in clinic or at home, whereas, in the second study, data collection was completed in-person during home visits.…”

“…Patients were excluded from this analytic sample if they were not fluent in English or if they had significant cognitive or communicative impairments that would interfere with completion of study procedures. [22][23][24] Although it was not a specific exclusion criterion, no patients in the parent studies were prescribed corticosteroids at the time of study enrollment.…”

Can You Teach a Teen New Tricks? Problem Solving Skills Training Improves Oral Medication Adherence in Pediatric Patients with Inflammatory Bowel Disease Participating in a Randomized Trial

“…7,8 In addition, enhancing adherence improves physical and mental health outcomes and reduces health care utilization in IBD populations. [9][10][11][12][13][14][15][16][17][18][19] Problem solving skills training (PSST) is an intervention approach in which individuals learn skills to take on a more positive and rational approach to solving problems, clearly define a problem, generate an action plan that has a high likelihood of resolving the problem, and implement and evaluate the utility of this plan. 3,5,20 PSST is an ideal approach for addressing nonadherence among youth with IBD because this modality has the flexibility to address a variety of medication adherence barriers, focuses on resolving the barriers most salient to a given individual, can be implemented in the context of a family-based intervention, and yields a skill set that is applicable to other adherence barriers, both current and future.…”