Identifying Patient‐Centered Quality Indicators for the Care of Adult Home Parenteral Nutrition (HPN) Patients

Dreesen, Mira; Foulon, Veerle; Vanhaecht, Kris; Pourcq, Lutgart De; Hiele, Martin; Willems, Ludo

doi:10.1177/0148607113495891

Cited by 18 publications

(21 citation statements)

References 21 publications

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“…A recent study sought patient views on safe and effective treatment for CIF patients receiving HPN. Participants across a number of countries scored highly the importance to them of discharge planning and education, care from the hospital doctor, dietitian and nurse together with ongoing medical review [84,85].…”

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confidence: 99%

ESPEN guidelines on chronic intestinal failure in adults

et al. 2016

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CIF management requires complex technologies, multidisciplinary and multiprofessional activity, and expertise to care for both the underlying gastrointestinal disease and to provide HPN support. The rarity of the condition impairs the development of RCTs. As a consequence, most of the recommendations have a low or very low grade of evidence. However, two-thirds of the recommendations are considered strong. Specialized management and organization underpin these recommendations.

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confidence: 99%

ESPEN guidelines on chronic intestinal failure in adults

et al. 2016

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“…Face‐to‐face interviews with HPN patients in Belgium resulted in the identification of 9 outcome indicators 5 . These outcome indicators were listed in a questionnaire, and participants in different centers were asked to rate the importance based on contribution to quality of care.…”

Section: Methodsmentioning

confidence: 99%

“…The most important indicators according to these healthcare professionals were incidence of catheter‐related infections, incidence of readmission and quality of life (shared second place), and incidence of dehydration 4 . The same indicators were mentioned by HPN patients in Belgium during face‐to‐face interviews 5 . However, it remains unclear whether these outcome indicators are also important for HPN patients in other countries and if these differ from the top 3 of the healthcare professionals.…”

Section: Introductionmentioning

confidence: 97%

Outcome Indicators for Home Parenteral Nutrition Care

Dreesen

Pironi

Wanten

et al. 2014

J Parenter Enteral Nutr

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Section: Methodsmentioning

confidence: 99%

“…A literature search was performed for guidance on existing quality indicators and standards of care relating to CIF and HPN management, as well as other chronic diseases (primarily inflammatory bowel disease) perceived to have transferable concepts of relevance. [7][8][9][10][11] Quality indicators were subsequently drafted from the review of the literature using the Donabedian model. 12 Outcome quality indicators were further refined in consultation with the AuSPEN working group to develop a minimum data set for the AuSPEN HPN registry and ensure integration between these complementary resources.…”

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confidence: 99%

A framework to support quality of care for patients with chronic intestinal failure requiring home parenteral nutrition

Osland

McGrath

Ali

et al. 2019

J of Gastro and Hepatol

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Background and Aim Chronic intestinal failure requiring home parenteral nutrition (HPN) is a disabling condition that is best facilitated by a multidisciplinary approach to care. Variation in care has been identified as a key barrier to achieving quality of care for patients on HPN and requires appropriate strategies to help standardize management. Method The Australasian Society for Parenteral and Enteral Nutrition (AuSPEN) assembled a multidisciplinary working group of 15 clinicians to develop a quality framework to assist with the standardization of HPN care in Australia. Obstacles to quality care specific to Australia were identified by consensus. Drafts of the framework documents were based on the available literature and refined by two Delphi rounds with the clinician work group, followed by a further two involving HPN consumers. The Oxford Centre for Evidence‐Based Medicine Levels of Evidence was used to assess the strength of evidence underpinning each concept within the framework documents. Results Quality indicators, standards of care, and position statements have been developed to progress the delivery of quality care to HPN patients. Conclusion The quality framework proposed by AuSPEN is intended to provide a practical structure for clinical and organizational aspects of HPN service delivery to reduce variation in care and improve quality of care and represents the initial step towards development of a national model of care for HPN patients in Australia. While developed for implementation in Australia, the evidence‐based framework also has relevance to the international HPN community.

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Identifying Patient‐Centered Quality Indicators for the Care of Adult Home Parenteral Nutrition (HPN) Patients

Abstract: Interviews with HPN patients revealed an interesting set of indicators that can be used to perform, evaluate, or improve current HPN care and are a starting point for a more patient-centered approach.

Cited by 18 publications

References 21 publications

ESPEN guidelines on chronic intestinal failure in adults

ESPEN guidelines on chronic intestinal failure in adults

Outcome Indicators for Home Parenteral Nutrition Care

A framework to support quality of care for patients with chronic intestinal failure requiring home parenteral nutrition

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