‘I really feel I’ve let him down’: supporting family carers during long‐term care placement for elders

Nolan, Mike; Dellasega, Cheryl

doi:10.1046/j.1365-2648.2000.01346.x

Cited by 78 publications

(73 citation statements)

References 29 publications

(51 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…43,74,75 A number of authors have suggested a range of goals for carer support (see Table 1) but in relation to adopting the caregiving role, two aims appear pre-eminent: to enable family members to exercise a genuinely informed choice as to whether to become a carer or not; to ensure that those who opt to care are adequately supported and fully prepared from an early stage, and that they receive ongoing support sensitive to the changing demands they face.…”

Section: The Goals and Purpose Of Carer Supportmentioning

confidence: 99%

Working with family carers: towards a partnership approach

Nolan

2001

Rev. Clin. Gerontol.

View full text Add to dashboard Cite

The use of the term ‘family (informal) carer’, as it is currently conceptualized, is recent and is largely the product of increased attention in the academic and policy literature over the last two decades. Despite their fairly late arrival on the scene, family carers now occupy centre stage in UK government policy, having being described by the Prime Minister, Tony Blair, as the ‘unsung heroes’ of British life, who are essential to the fabric and character of Britain. Such recognition stems from the growing realization that family carers are the lynchpin of community care, providing 80% of all the care needed at an estimated saving to the UK government of some £40 billion annually.

show abstract

Section: The Goals and Purpose Of Carer Supportmentioning

confidence: 99%

Working with family carers: towards a partnership approach

Nolan

2001

Rev. Clin. Gerontol.

View full text Add to dashboard Cite

show abstract

“…3 Feelings of guilt, doubt, sadness, failure and betrayal (of marital commitment) are reported by informal caregivers of people with dementia in circumstances of decision making, such as the need for institutional long-term care. [3][4][5][6] The percentage of people with dementia being admitted to institutional long-term care differs between countries, which might in part be explained by country differences in the organization of dementia care. Care systems across Europe vary, e.g.…”

Section: Introductionmentioning

confidence: 99%

Reasons for Institutionalization of People With Dementia: Informal Caregiver Reports From 8 European Countries

Afram¹,

Stephan

Verbeek³

et al. 2014

Journal of the American Medical Directors Association

181

146

View full text Add to dashboard Cite

Objectives:To explore reasons for institutionalization of people with dementia according to informal caregivers as well as variation in reasons between countries.Design: An explorative cross-sectional study was conducted in eight European countries. Setting:Per country a minimum of three long-term care facilities, offering care and accommodation as a package, participated in this study. Participating countries were selected to represent different geographic areas in Europe. Participants:Of the 791 informal caregivers involved in the RightTimePlaceCare project of people with dementia who were recently admitted to a long-term care facility, 786 were included for this study. Measurements:As part of a semi-structured interview, informal caregivers were asked the main reason for institutionalization in an open-ended question. Answers were categorized according to a conventional coding approach. All reasons were then quantified and tested. Results:Mainly patient related reasons were stated, such as neuropsychiatric symptoms (25%), care dependency (24%) and cognition (19%). Neuropsychiatric symptoms were among the most often mentioned reasons in the majority of countries. Beside patient related reasons, caregiver burden and the inability of the informal caregiver to care for the patient were stated as reasons (both 15%). Further analyses showed countries differ significantly in reasons according to informal caregivers. Additionally, reasons were analysed for spouses and child-caregivers, showing that spouses more often stated reasons related to themselves compared to child-caregivers. Conclusion:Multiple reasons contribute to the institutionalization for people with dementia, with several factors that may influence why there were country differences. Variation in the organization of dementia care and cultural aspects, or the relationship between the informal caregiver and person with dementia may be factors influencing the reasons. Because of a wide variation in reasons between countries, no one-size-fits-all approach can be offered to guide informal caregivers when facing the possibility of institutionalization of the person with dementia.

show abstract

“…En este sentido, ciertos estudios incluyen la perspectiva familiar para indagar aspectos puntuales de la atención, tales como los problemas durante el periodo de transición al cuidado residencial 11,12,13,14 , los beneficios de los programas institucionales orientados a la família 15,16 , y otras cuestiones relacionadas con la prestación de servicios residenciales (servicios hoteleros, atención individualizada...) 10 , aunque la mayoría de estos estudios se han realizado en el ámbito anglosajón.…”

Section: Introductionunclassified

Conceptualizaciones sobre la atención a personas con demencia en residencias de mayores

et al. 2016

View full text Add to dashboard Cite

A pesar de la importancia de las percepciones familiares en el análisis de la atención en residencias de mayores, apenas se han indagado estos ascpetcos. El objetivo de este estudio es conocer las preferencias y las áreas de mejora percibidas por los familiares sobre los cuidados a personas con demencia. Se realizó un estudio cualitativo, a partir de la Teoría Fundamentada, combinando dos técnicas de recogida de datos (observación participante y entrevistas en profundidad) en una muestra teórica de familiares de personas con demencia institucionalizadas. El modelo de atención óptima a personas con demencia, percibido por los participantes, se basó en una atención especializada e individualizada y en la participación de la familia en el cuidado. Entre las áreas de mejora se incluyeron aspectos relacionados con una mayor formación específica en Geriatría, relaciones humanas y con la cultura del trabajo institucional. Frente a la vigente tendencia de tecnificación del cuidado, las familias exigen una atención personalizada y en pequeña escala, donde ellas mismas sean parte activa del proceso de atención.

show abstract

‘I really feel I’ve let him down’: supporting family carers during long‐term care placement for elders

Cited by 78 publications

References 29 publications

Working with family carers: towards a partnership approach

Working with family carers: towards a partnership approach

Reasons for Institutionalization of People With Dementia: Informal Caregiver Reports From 8 European Countries

Conceptualizaciones sobre la atención a personas con demencia en residencias de mayores

Contact Info

Product

Resources

About