“I'm not the woman I was”: Women's perceptions of the effects of fibromyalgia on private life

Briones-Vozmediano, Érica; Vives‐Cases, Carmen; Goicolea, Isabel

doi:10.1080/07399332.2016.1178265

Cited by 24 publications

(23 citation statements)

References 59 publications

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“… 1 Over time, individuals work hard to negotiate new identities to manage this unwanted disruption to their lives. Yet for many adults (and women in particular), such changes in identity generation relate to their altered caring roles as parents and/or spouses, 3 roles that adolescents who experience chronic pain rarely adopt during adolescence. Moreover, adolescents are typically experiencing the normative processes associated with identity development in addition to the specific challenges imposed on identity development due to living with chronic pain, highlighting a very different experience to that of adults with chronic pain.…”

Section: Discussionmentioning

confidence: 99%

A developmental arrest? Interruption and identity in adolescent chronic pain

Jordan

Noel

Caes

et al. 2018

PR9

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Introduction:Although the pediatric pain literature has explored the role of developmental factors in young children's acute pain, relatively less is known about specific developmental challenges in adolescents with chronic pain.Objectives:To meet this knowledge gap, this study sought to adopt an idiographic phenomenological approach to examine how adolescents make sense of their own development in the context of living with chronic pain.Methods:Semistructured interviews were conducted with ten adolescents (12–17 years; 7 females) recruited from a tertiary care pain treatment programme. Interview data were transcribed verbatim and analysed using Interpretative Phenomenological Analysis.Results:Study findings identified 2 themes: “An externally imposed lens on identity” and “Paradoxes of developmental progress.” The first theme highlighted an understanding of how adolescent identity is perceived. Some adolescents perceived identity as distinct from pain, whereas others perceived identity as part of their chronic pain condition. This theme also detailed how identity was negotiated by adolescents and others through engagement with valued activities. The second theme represented an understanding of how chronic pain disrupts and alters adolescent developmental trajectories at an individual level, suggesting possibilities of enhanced and delayed trajectories. Enhanced trajectories were associated with increased management of emotionally difficult situations and resulted in mastery of complex interpersonal skills.Conclusion:Findings provided a nuanced understanding of developmental progress in the context of adolescent chronic pain and suggested challenges with drawing normative comparisons. Future research could extend findings by adopting a longitudinal approach to studying adolescent development and eliciting accounts from broader social groups.

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Section: Discussionmentioning

confidence: 99%

A developmental arrest? Interruption and identity in adolescent chronic pain

Jordan

Noel

Caes

et al. 2018

PR9

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“…They believe that the tasks have to be performed by them and perfectly, so they do not ask for help from the partner. Several studies have analysed female gender identity and its association with FM (Briones‐Vozmediano, Vives‐Cases, & Goicolea, ; Valls, ).…”

Section: Discussionmentioning

confidence: 99%

Problems and solutions for patients with fibromyalgia: Building new helping relationships

Montesó‐Curto

García-Martínez

Romaguera

et al. 2017

Journal of Advanced Nursing

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The majority of patients' problems were associated with their previous history and the onset of fibromyalgia; which may be related to trauma in adolescence, early adulthood or later. The solutions provided during the groups appeared to be accepted by the participants. These findings can improve the self-management of fibromyalgia patients by helping to enhance adaptive behaviours and incorporating the female gender approach.

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“…Although the findings of the study remain applicable (MCS is the least common of the three diseases, and the majority of afflicted people are female), a larger and more diverse sample would have allowed a more in-depth examination of some relevant issues to understand subjective construction processes. Some authors, for example, have identified gender as a key element in the analysis of these diseases (Briones-Vozmediano et al, 2018; Briones-Vozmediano et al, 2016; Muraleetharan et al, 2018), but a comparative analysis is not possible with our one male sample.…”

Section: Discussionmentioning

confidence: 97%

“…This study shows the difficulties faced by people with FM, CFS/ME, and MCS, both in their daily lives and in their relationships with health care professionals. According to other authors (Ashe, Furness, Taylor, Haywood-Small, & Lawson, 2017; Briones-Vozmediano, Vives-Cases, & Goicolea, 2016; Reibel & Pearson, 2017), they must face the consequences of the stigmatization associated with these diseases in addition to dealing with the functional limitations these diseases can cause. Studies in the literature show similar stigmas to those found in this study: (a) mental illness (Dennis, Larkin, & Derbyshire, 2013; McInnis, McQuaid, Bombay, Matheson, & Anisman, 2015; Muraleetharan, Fadich, Stephenson, & Garney, 2018) and (b) moral offense (Briones-Vozmediano, Öhman, Goicolea, & Vives-Cases, 2018; Dickson, Knussen, & Flowers, 2007; McInnis et al, 2015).…”

Section: Discussionmentioning

confidence: 99%

Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

et al. 2019

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Fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity can be considered contested illnesses. The questioning of the status of these conditions as real diseases reduces feelings of legitimacy in those affected. The purpose of this study was to analyze subjectivity construction processes in people with these diseases. A qualitative exploratory study was conducted from the perspective of hermeneutic phenomenology and ethnosociology. We used life stories for compiling data (13 informants were interviewed face-to-face), and sociological discourse analysis was developed. Three main categories were identified: (a) self and grieving; (b) images and practices relating to fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity; and (c) relationships with health professionals. This study shows that daily experiences of people living with these diseases are marked by stigmatization processes. The ultimate purpose of nursing care for people with these conditions should be to reduce their vulnerability and exclusion.

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“I'm not the woman I was”: Women's perceptions of the effects of fibromyalgia on private life

Cited by 24 publications

References 59 publications

A developmental arrest? Interruption and identity in adolescent chronic pain

A developmental arrest? Interruption and identity in adolescent chronic pain

Problems and solutions for patients with fibromyalgia: Building new helping relationships

Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

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