<i>I Work Out, Who Cares if I’m Bigger</i>
            : What Matters to Youth with ASD regarding Weight and Their Bodies?

Walker, Meaghan; Nixon, Stephanie; Haines, Jess; McPherson, Amy C.

doi:10.1080/17518423.2019.1687596

Cited by 6 publications

(7 citation statements)

References 41 publications

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“…Ways in which HCPs speak about weight can impact parent's feelings of accomplishment or failure as a parent. This is also reflected in literature exploring how children with autism and obesity feel about weight and their bodies, with results suggesting HCPs should be shifting their conversations from size and weight alone to a focus on growth and health (Walker et al, 2020). This recommendation for a shift in language from focusing on weight to focusing on healthy growth and overall physical function may reduce parental anxiety and apprehension about conversations about weight in clinic.…”

Section: Discussionmentioning

confidence: 95%

“…In this paper, we report a secondary analysis of data collected for a broader study examining key priorities around weight management of boys with DMD, their parents and healthcare providers (HCPs) who treat them using qualitative semi-structured interviews (Walker et al, 2020). For the purpose of this paper, we solely focused on the parental experience.…”

Section: Methodsmentioning

confidence: 99%

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‘Our time is precious’: An exploration of parental feeding behaviours for boys with Duchenne muscular dystrophy

Walker

McAdam

Amin

et al. 2022

Child

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Introduction Due to the increased risk of obesity for boys with Duchenne muscular dystrophy (DMD), recent guidelines recommend that dietary intake is carefully managed. Parents play an important role in the development of their child's eating behaviours and patterns. However, despite what is known about the increased risk of obesity for children with DMD, little is known about parental feeding behaviours in this population. The objective of this study was to qualitatively explore the experiences of parents of children with DMD around their child's weight management and understand what influences their feeding behaviours. Methods This paper reports a secondary data analysis. Semi‐structured, individual interviews were conducted and analysed using qualitative description. Results Thirteen parents were interviewed for the study. Three themes were developed: (1) parent responses to healthcare provider interactions, (2) mixed emotions contributing to feeding approach and (3) variable parenting feeding styles. Within the third theme, two subthemes arose including (1) control and preoccupation and (2) striking a balance. Conclusion Given the potential impact of higher weights on the progression of DMD, it is important that healthcare providers explore feeding behaviours with families. However, it is essential that healthcare providers consider the impact of these conversations on parents, as well as the broader issues that may place additional pressure on the lives of families.

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Section: Discussionmentioning

confidence: 95%

Section: Methodsmentioning

confidence: 99%

‘Our time is precious’: An exploration of parental feeding behaviours for boys with Duchenne muscular dystrophy

Walker

McAdam

Amin

et al. 2022

Child

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“…Of the 8 studies, three were cross-sectional (Galvin et al, 2022;Krumm et al, 2017;Mansour et al, 2016), one experimental (Kuroki & Fukui, 2020), and four qualitative (Brede et al, 2020;Healy et al, 2021;Jachyra et al, 2019;Walker et al, 2020). Publication dates ranged from November 2016 to October 2022.…”

Section: Study Characteristicsmentioning

confidence: 99%

“…Across neurotypical samples, the mean AQ total scores ranged from 15.34 to 20.54, indicating that both men and women were within the 'normal' threshold (i.e., up to 32; Baron-Cohen et al, 2001). Three studies were conducted exclusively among children and/or adolescents, two of which were autistic samples (Jachyra et al, 2019;Walker et al, 2020). As such, participants were aged between 10 and 75 years.…”

Section: Study Characteristicsmentioning

confidence: 99%

Body image and autism: A scoping review

Longhurst

2023

Research in Autism Spectrum Disorders

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“…Qualitative studies with children/youth with disabilities and their parents highlighted that being able to discuss weight‐related concerns with their healthcare providers was important to them (McPherson, Swift, et al, 2017; McPherson et al, 2022). They also emphasised that they wanted conversations that were tailored to their individual context (Walker et al, 2022), went beyond a simplistic ‘eat less, move more’ approach (Jachyra et al, 2018) and focused on growth and health (Walker et al, 2020). A range of healthcare disciplines are considered to play a role in weight‐management, including doctors (Johnston et al, 2022), nurses (Registered Nurses' Association of Ontario, 2014), physiotherapists (PTs) (Allison et al, 2019; Setchell et al, 2015), and occupational therapists (OTs) (Canadian Association of Occupational Therapy, 2015; Jessen‐Winge et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Putting weight‐related conversations into practice: Lessons learned from implementing a knowledge translation casebook in a disability context

Provvidenza,

Bonder,

McPherson

2024

Child

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BackgroundDue to reported challenges experienced by healthcare providers (HCPs) when having weight‐related conversations with children with disabilities and their families, a knowledge translation (KT) casebook was developed, providing key communication principles with supportive resources. Our aim was to explore how the KT casebook could be implemented into a disability context. Study objectives were to develop and integrate needs‐based implementation supports to help foster the uptake of the KT casebook communication principles.MethodsA sample of nurses, physicians, occupational therapists and physical therapists were recruited from a Canadian paediatric rehabilitation hospital. Informed by the Theoretical Domains Framework, group interviews were conducted with participants to understand barriers to having weight‐related conversations in their context. Implementation strategies were developed to deliver the KT casebook content that addressed these identified barriers, which included an education workshop, simulations, printed materials, and a huddle and email strategy. Participant experiences with the implementation supports were captured through workshop evaluations, pre‐post surveys and qualitative interviews. Post‐implementation interviews were analysed using descriptive content analysis.ResultsTen HCPs implemented the KT casebook principles over 6 months. Participants reported that the workshop provided a clear understanding of the KT casebook content. While HCPs appreciated the breadth of the KT casebook, they found the abbreviated printed educational materials more convenient. Strategies developed to address participants' need for a sense of community and opportunities to learn from each other did not achieve their aim. Increased confidence in integrating the KT casebook principles into practice was not demonstrated, due, in part, to having few opportunities to practice. This was partly because of the increase in competing clinical demands at the onset of the COVID‐19 pandemic.ConclusionsDespite positive feedback on the product itself, changes in the organisational and environmental context limited the success of the implementation plan. Monitoring and adapting implementation processes in response to unanticipated changes is critical to the success of implementation efforts.

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I Work Out, Who Cares if I’m Bigger : What Matters to Youth with ASD regarding Weight and Their Bodies?

Cited by 6 publications

References 41 publications

‘Our time is precious’: An exploration of parental feeding behaviours for boys with Duchenne muscular dystrophy

‘Our time is precious’: An exploration of parental feeding behaviours for boys with Duchenne muscular dystrophy

Body image and autism: A scoping review

Putting weight‐related conversations into practice: Lessons learned from implementing a knowledge translation casebook in a disability context

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