"I Eat Chocolate Milk for Dinner Because We Just Have Nothing in Our Fridge": The Invisible Burden and Dire Consequences of Food Insecurity for People With Cystic Fibrosis in the United States

Oates, Gabriela R.; Niranjan, Soumya J.; Brown, George Bosworth; Bailey, Julianna; Geurs, R.; Robinson, Kristen L.; Powers, Kate E.; Clemm, Cristen; Schechter, M.S.

doi:10.1164/ajrccm-conference.2023.207.1_meetingabstracts.a2488

A94. Advances in Health Services Research Focused on Interstitial Lung Disease and Cystic Fibrosis 2023

DOI: 10.1164/ajrccm-conference.2023.207.1_meetingabstracts.a2488

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"I Eat Chocolate Milk for Dinner Because We Just Have Nothing in Our Fridge": The Invisible Burden and Dire Consequences of Food Insecurity for People With Cystic Fibrosis in the United States

Gabriela R. Oates

Soumya J. Niranjan

George Bosworth Brown

et al.

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2024

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Empowering minoritized Alabamians screened for lung cancer—The Alabama Lung Cancer Awareness Screening and Education (ALCASE) project

Niranjan,

Tipre,

Hardy

et al. 2024

Cancer Medicine

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BackgroundIn Alabama only 4% of those eligible have been screened for lung cancer. The ALCASE project focused on navigating eligible individuals to lung cancer screening.MethodsTrained local staff enrolled screen eligible individuals from seven rural counties and one urban county. Demographics and knowledge of and barriers to lung cancer screening were collected using questionnaires. Education was provided and individuals were navigated to undergo screening. Descriptive statistics for enrolled and screened participants were computed using SAS 9.4. Debriefing interviews were conducted with the ALCASE staff regarding facilitators/barriers to implementing this project and lessons learned. Using NVivo, themes were identified through a combined deductive and inductive process.ResultsIn total, 447 people were contacted of which 257 were enrolled. Participants were predominantly African American (86.8%), female (56.8%), and 86.4% had health insurance. Study participants acknowledged the need for more education of lung cancer/screening procedures; help navigating clinics for screening services and having healthcare facilities close to home. The top five barriers to getting screened were transportation, financial issues, emotional concerns, healthcare insurance, and COVID‐19. Of the 257, 106 participants (41%) completed a primary care referral and were screened for lung cancer. Debriefing interviews revealed: (i) Overall impressions of implementing ALCASE were positive. (ii) Barriers in implementing ALCASE were identified predominantly at the physician and institutional level. (iii) Facilitators in implementing ALCASE were identified at multiple levels. (iv) Suggestions on improving lung cancer screening leaned toward mitigating barriers at the institutional and structural level.ConclusionAbility to get screened is severely challenged by both personal and structural barriers.

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Empowering minoritized Alabamians screened for lung cancer—The Alabama Lung Cancer Awareness Screening and Education (ALCASE) project

Niranjan,

Tipre,

Hardy

et al. 2024

Cancer Medicine

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"I Eat Chocolate Milk for Dinner Because We Just Have Nothing in Our Fridge": The Invisible Burden and Dire Consequences of Food Insecurity for People With Cystic Fibrosis in the United States

Cited by 1 publication

References 0 publications

Empowering minoritized Alabamians screened for lung cancer—The Alabama Lung Cancer Awareness Screening and Education (ALCASE) project

Empowering minoritized Alabamians screened for lung cancer—The Alabama Lung Cancer Awareness Screening and Education (ALCASE) project

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