“I am not a statistic” ovarian cancer survivors’ views of factors that influenced their long-term survival

Needs, preferences, and experiences of adult cancer survivors in accessing dietary information post‐treatment: A scoping review

“…Cancer survivors reported obtaining dietary information from social networks in 22 of the 45 studies (49%), across various geographical locations, cancer types, and time since diagnosis (Alimujiang et al, 2019; Balneaves et al, 2016; Beeken et al, 2016; Brown et al, 2016; Caughey et al, 2020; Ching & Mok, 2019; Hardcastle et al, 2017, 2018; Holmes et al, 2017; Kim et al, 2018; Koutoukidis et al, 2017; Van der Meer et al, 2017; Milosevic et al, 2020; Nissen et al, 2014; Scarton et al, 2018; Shaharudin et al, 2011; Tan et al, 2012; Tang et al, 2019; Tsay et al, 2017; Wanchai et al, 2012; Wang et al, 2015; Zaleta et al, 2017). Interpersonal sources of dietary information included family and friends (Alimujiang et al, 2019; Balneaves et al, 2016; Brown et al, 2016; Caughey et al, 2020; Ching & Mok, 2019; Kim et al, 2018; Koutoukidis et al, 2017; Van der Meer et al, 2017; Nissen et al, 2014; Scarton et al, 2018; Shaharudin et al, 2011; Tan et al, 2012; Tang et al, 2019; Wanchai et al, 2012), other cancer survivors (Balneaves et al, 2016; Beeken et al, 2016; Brown et al, 2016; Ching & Mok, 2019; Holmes et al, 2017; Milosevic et al, 2020; Nissen et al, 2014; Tsay et al, 2017; Wanchai et al, 2012), cancer support organisations (Anderson et al, 2013; Beeken et al, 2016; Ching & Mok, 2019; Holmes et al, 2017; Koutoukidis et al, 2017; Nissen et al, 2014), CAM practitioners (Alimujiang et al, 2019; Caughey et al,...…”

“…Telephone helplines of cancer support organisations were considered helpful for diet‐related information (Anderson et al, 2013; Beeken et al, 2016). Interpersonal contacts were a key source of CAM information, with several studies indicating that cancer survivors were introduced to CAM by family, friends, and other cancer survivors (Alimujiang et al, 2019; Caughey et al, 2020; Nissen et al, 2014; Scarton et al, 2018; Shaharudin et al, 2011; Wanchai et al, 2012). Social networks were also used to confirm information obtained from physicians regarding the risks and benefits of CAM products (Balneaves et al, 2016; Wanchai et al, 2012).…”

“…Factors that facilitated access to dietary information post‐treatment were identified in nine of the 57 included studies (16%) (Alimujiang et al, 2019; Balneaves et al, 2016; Brown et al, 2016; Caughey et al, 2020; Ching & Mok, 2019; des Bordes et al, 2016; Kim et al, 2018; Rabin et al, 2011; Tsay et al, 2017). Cancer survivors frequently reported seeking dietary information due to personal beliefs regarding the efficacy of diet and CAM for wellbeing (Alimujiang et al, 2019; Caughey et al, 2020; Ching & Mok, 2019; Kim et al, 2018), and a desire to be actively involved in post‐treatment care (Alimujiang et al, 2019; Caughey et al, 2020; Ching & Mok, 2019; des Bordes et al, 2016; Tsay et al, 2017).…”

“…Factors that facilitated access to dietary information post‐treatment were identified in nine of the 57 included studies (16%) (Alimujiang et al, 2019; Balneaves et al, 2016; Brown et al, 2016; Caughey et al, 2020; Ching & Mok, 2019; des Bordes et al, 2016; Kim et al, 2018; Rabin et al, 2011; Tsay et al, 2017). Cancer survivors frequently reported seeking dietary information due to personal beliefs regarding the efficacy of diet and CAM for wellbeing (Alimujiang et al, 2019; Caughey et al, 2020; Ching & Mok, 2019; Kim et al, 2018), and a desire to be actively involved in post‐treatment care (Alimujiang et al, 2019; Caughey et al, 2020; Ching & Mok, 2019; des Bordes et al, 2016; Tsay et al, 2017). Other motivations for seeking dietary information included the negative effect of bowel habits on social and emotional aspects of life (Brown et al, 2016), and a desire to reduce stress associated with decisions on what to eat (Rabin et al, 2011) and manage ongoing symptoms with nutritional intervention rather than further conventional treatment (Balneaves et al, 2016; Caughey et al, 2020).…”

“…This university (Blair et al, 2019;des Bordes et al, 2016;Koutoukidis et al, 2017;Nissen et al, 2014;Rabin et al, 2011;Robles et al, 2020;Wanchai et al, 2012) and government sources (Absolom et al, 2009;Alimujiang et al, 2019;Blair et al, 2019;Bours et al, 2015;Brems et al, 2013;Ching & Mok, 2019;Chua et al, 2020;Du et al, 2020;Haggstrom et al, 2009;Hawkins et al, 2015;Holla et al, 2016;Jarvandi et al, 2020;Kenzik et al, 2016;Kim et al, 2018;Klassen et al, 2018;Lawler et al, 2011;May et al, 2019;Nissen et al, 2014;Scarton et al, 2018;Wang et al, 2015;Weaver et al, 2013;Wright et al, 2017;Zaleta et al, 2017). EJ is supported by an Australian Government Research Training Program (RTP) Stipend.…”