How Young People Cope With Chronic Kidney Disease: Literature Review

Abstract

More qualitative research is vital to retrieve 'real-life' perceptions from young people coping with kidney disease to identify how care should be made more explicit for them.

A triangulated evaluation of a youth clinic for patients with kidney disease

“…Several studies have found that peer support increases self‐efficacy amongst young people with chronic disease (Muhammad et al . ; Rhee et al . ; Sattoe et al .…”

“…Being together with other young people with kidney disease in the youth clinic contributed to higher self-efficacy by believing in own abilities to deal with life with kidney disease. Several studies have found that peer support increases self-efficacy amongst young people with chronic disease (Muhammad et al 2012;Rhee et al 2012;Sattoe et al 2013;Kohut et al 2014). Most of these studies are quantitative; together with our findings, it is shown that peer support is a positive contribution to the way young patients meet challenges.…”

“…In addition to general teenage problems, these young people will need to adhere to fixed medication times, visits to outpatient clinics and perhaps hospitalisation, fatigue and worries about future health and life (Bregnballe & Boisen 2014). Not all young people can manage this transition, which increases the risk of non-adherence, denial of the disease and kidney rejection (Watson et al 2011;Muhammad et al 2012;Tong et al 2013).…”

Coping in Young People With Chronic Kidney Disease (Ckd)

“…However, young people with CKD are also subject to feelings of helplessness, a perceived lack of control and a negative health outlook, resulting in failure of coping strategies. Personal perspectives from this population would help fill a gap in knowledge and inform future care (Muhammad et al 2012a).…”

“…The interview guide was developed from previously published literature (Muhammad et al 2012a(Muhammad et al , 2012b, and included questions on living and coping, family and friends, plus coping and planning. Supplemental Table S1 outlines the interview guide and the semi-structured questions.…”