Coping in Young People With Chronic Kidney Disease (Ckd)

Muhammad, Shahid; Milford, David V.; Carson, Amanda; Young, Harry; Martin, Colin R.

doi:10.1111/jorc.12131

Cited by 7 publications

(7 citation statements)

References 54 publications

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“…One study found how young people with ESKD developed problem-focused coping and emotion-focused coping to manage challenging situations in daily life (Muhammad et al, 2016). In our study, one way to cope with school was the possibility to be picked up before the end of the school day as an alternative to being off school on long-term sick leave.…”

Section: Author Manuscriptmentioning

confidence: 70%

Everyday life experiences in families with a child with kidney disease

2019

Journal of Renal Care

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Section: Author Manuscriptmentioning

confidence: 70%

Everyday life experiences in families with a child with kidney disease

2019

Journal of Renal Care

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“…One study furthermore found that children and adolescents had to accept restrictions to activities, as a result of symptoms, pain and undesirable treatment procedures (Nicholas et al, 2011). However, young people with ESKD also seemed to be able to employ problem-focused and emotion-focused coping strategies and develop resilience (Muhammad, Milford, Carson, Young, & Martin, 2016).…”

Section: Backg Rou N Dmentioning

confidence: 99%

The significance of relationships and dynamics in families with a child with end‐stage kidney disease: A qualitative study

Agerskov

Thiesson

Pedersen

2020

Journal of Clinical Nursing

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Aim and objectives To explore experiences and the significance of relationships and dynamics among family members living with a child with severe kidney disease. Background Chronic kidney disease (CKD) in children is often incurable, leading to irreversible kidney damage. End‐stage kidney failure in a child impacts daily life and routines, requiring significant social adaptation for all family members. However, little is known about how individual family members experience relationships, interactions and dynamics within the family. Design A qualitative exploratory study taking a phenomenological–hermeneutic approach. Method Data were collected through semi‐structured individual interviews with seven fathers, seven mothers, five children with end‐stage kidney disease and five siblings. The data were analysed using Ricoeur's theory of narrative and interpretation, on three levels: naïve reading; structural analysis; and critical interpretation and discussion. The Consolidated Criteria for Reporting Qualitative Research checklist has been used (see Supporting Information). Results All family members experienced relationships within and outside the family as a significant part of everyday life. The well‐being of the sick child had an impact on the dynamics and emotional well‐being of all family members. Siblings were in need of support; however, being fair could be challenging for parents. Conclusion CKD in a child has an impact on family dynamics and on the relationships between family members. Family members are vulnerable and in need of practical help and emotional support from close relatives, friends, health professionals and other individuals around them. Relevance to clinical practice In clinical practice, the ability to reflect on, or interpret, a range of situations by initiating a dialogue is essential to shape both an individual perspective and the perspective of the entire family unit.

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“…2 Coping strategies also have a large role to play living with a LTC, especially for young people with CKD. 4,15…”

Section: According To Article 1 Of the United Nations Convention On Tmentioning

confidence: 99%

“…This relationship would aim to help with understanding, sharing experiences/coping strategies, helping towards autonomy and self-determination. 15 In addition, peer counselling also aids in providing sources of information, advice, support, referral and assistance. Peer counselling is important; it promotes support and mentoring between those who are egalitarian with each other.…”

Section: The Kidney Disease and Renal Support (Kdars) Group For Youngmentioning

confidence: 99%

Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely

Muhammad¹,

Zahra²,

Leicester³

et al. 2016

Patient Experience Journal

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Long Term Conditions (LTCs) are increasing in prevalence and cost in Western healthcare. Patients with such conditions are often classed as "disabled", because of impacts of self-care on "activities of daily life" or secondary consequences of conditions (impairments) affecting factors such as mobility, concentration and communications. Disability needs are often ignored in the design of services and treatment of individuals. It manifests as services which some find difficult to use and lack of personal respect (discrimination) often based on lack of understanding by the healthcare profession itself (ignorance). This paper explores how Social Media (SM), an example "Assistive Technology" in an increasingly digital age, might help. The focus is Chronic Kidney Disease with two, specific illustrations in the UK beginning to spread worldwide. Support mechanisms now emerging may go well beyond healthcare, and even beyond kidney problems. They may also find additional assistance via the new, English Accessible Information Standard.

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Coping in Young People With Chronic Kidney Disease (Ckd)

Cited by 7 publications

References 54 publications

Everyday life experiences in families with a child with kidney disease

Everyday life experiences in families with a child with kidney disease

The significance of relationships and dynamics in families with a child with end‐stage kidney disease: A qualitative study

Can social media reduce discrimination and ignorance towards patients with long term conditions? A chronic kidney disease example in the UK and more widely

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