In-depth knowledge of what it means to patients to receive health care services is crucial to the development of adequate protocols for nursing. Qualitative research allows us to gain important insight into what is experienced by and meaningful to patients. The French philosopher Paul Ricoeur’s thoughts have inspired qualitative researchers to conduct various forms of analysis and interpretation that increase our knowledge of ways of being-in-the-world. This article describes and discusses how a specific approach to derive in-depth knowledge of patients’ lived experiences can be taken. A combination of participant observations and interviews was used to generate data. Field notes and transcribed interviews were gathered as one collective text and analyzed and interpreted with inspiration from Ricoeur’s thoughts on narratives and interpretation. This approach is argued to be a significant way of developing in-depth knowledge of patients’ lived experiences. Such knowledge is important within nursing science.
Aims and objectives
To investigate attitudes towards family involvement in care among a broad sample of Danish nurses from all sectors and healthcare settings.
Background
Evidence suggests that nurses hold both supportive and less supportive attitudes about involvement of family members in the care of patients, and the existing findings are limited to specific healthcare contexts.
Design
A cross‐sectional study adhering to the Strengthening the Reporting of Observational Studies in Epidemiology for reporting observational studies.
Methods
Using snowball sampling, the Families' Importance in Nursing Care‐Nurses' Attitudes questionnaire was initially administered to a broad, convenience sample of Danish registered nurses through social media: Facebook interest groups and the homepage of the Danish Family Nursing Association. These nurses were encouraged to send the invitation to participate in their network of nursing colleagues. Complete data sets from 1,720 nurses were available for analysis.
Results
In general, the nurses considered the family as important in patient care. Nurses who held master's and doctorate degrees scored significantly higher than nurses with a basic nursing education. Nurses who had had experience with illness within their own families tended to score higher on the family as a conversational partner subscale than those without this experience. Nurses with the longest engagement within hospital settings scored significantly lower than those with the longest engagement within primary health care and/or psychiatry.
Conclusions
Families are considered important in nursing care. Younger nurses with a basic education, short‐term engagement at a hospital and no experiences with illness within their own families were predictors of less supportive attitudes towards including the family in nursing care.
Relevance to clinical practice
Clinical leaders and managers should promote education on the importance of active family involvement in patient care in clinical practice and undergraduate education. More focus on collaboration with families in the hospital setting is needed.
It is stated, that the sponsors had no involvement in the study.Patients' experiences during the first 12 weeks after discharge in fast-track hip and knee arthroplasty -a qualitative study
SUMMARY
Background
Chronic kidney disease in children is a complex medical and psychosocial disease with factors that differ from the adult disease in significant ways. Among parents, there is uncertainty about disease progression and lack of confidence in caring for the child. The disease has an impact on the emotional and social well‐being of the whole family.
Objectives
To investigate everyday life experiences from the perspectives of members of a family that includes a child with end stage renal disease.
Method
The study took a phenomenological‐hermeneutical approach. Semi‐structured individual interviews were conducted with seven fathers, seven mothers, five children with kidney disease and five siblings. The data were analysed using Ricoeur's theory of narrative and interpretation, on three levels: naïve reading, structural analysis, critical interpretation and discussion.
Results
It was significant that everyday life and caring for the child were structured around parents’ energy reserves. The disease left its mark and changes to daily life caused anxiety, especially for siblings. The search for normalcy was significant and, although the families coped with conditions around the disease, it could be a challenge.
Conclusion
Family members feel vulnerable and concerned and need attention, support and care. Limitations in everyday life cause a dilemma, and the well‐being of one family member has an impact on the well‐being of the family as a whole. Implications for practice: Health care professionals should focus on the impact of the family's experiences and needs, and the parents’ role in family relationships, to support the entire family unit.
The study provides insight and knowledge for the health care professionals to meet and involve donors' narratives in reflections about and modifications to clinical nursing practice. It is essential that health care professionals have an understanding and appreciation of the experiences and concerns among LKDs, and this can help in planning and providing individual nursing care and support to donors.
Background: Chronic kidney disease in children has an impact on all family members. Healthy siblings, in particular, may experience negative psychological and emotional symptoms. Little attention has been paid to how they experience everyday family life and the impact of their sibling's disease.Objectives: To explore perspectives on and experiences of everyday life among siblings of children with chronic kidney disease.Design: An explorative study with a qualitative method.Participants: Seven siblings (7-13 years) of children with chronic kidney disease (5-16 years) were included.
Approach:The study took a phenomenological-hermeneutical approach. Semistructured individual interviews were conducted. The data were analysed using Ricoeur's theory of narrative and interpretation, on three levels: naïve reading, structural analysis and critical interpretation and discussion.Findings: Three themes emerged: The illness is in the background or comes to the fore, being concerned for and taking care of the sick sibling and the importance of bonds with relatives or other significant adults.
Conclusion:In everyday life, participants experienced that their sick sibling's illness was either in the background or came to the fore. They needed to adapt to periods of hospitalisation. They felt a need to be attentive to, take care of and have concern for the sick brother or sister. Conflicts caused feelings of loneliness; however, having knowledge about the disease provided security and meaning. Being introduced to the healthcare professionals was significant. It was important to have close relationships with friends and other adults, which gave rise to feelings of selfconfidence and being supported.
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