How do Lung Cancer Patients Experience Stigma?: A Meta-synthesis of Qualitative Studies

Jeong, Jong Youn; Jeong, Gyeonghui; So, Hyang Sook

doi:10.7475/kjan.2016.28.1.116

Cited by 3 publications

(1 citation statement)

References 17 publications

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“…However, not all qualitative research on stigmatization occurs in the context of an intervention. There are many examples of qualitative studies conducted for the purposes of simply understanding a given population or community’s experience with stigma (for syntheses of qualitative studies on stigma, see e.g., Chambers et al, 2015; Coleman et al, 2017; Jeong et al, 2016; Malterud & Ulriksen, 2011; Wood et al, 2015), and while many qualitative studies do not formally intend to reduce stigma, inadvertently they do. In fact, Mazanderani and Paparini (2015) argue that qualitative research focusing on lived experiences plays a vital role in normalizing stigmatized identities and conditions.…”

Section: Stigma Reductionmentioning

confidence: 99%

Understanding and addressing stigma through qualitative research: Four reasons why we need qualitative studies.

Stutterheim¹,

Ratcliffe²

2021

Stigma and Health

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Section: Stigma Reductionmentioning

confidence: 99%

Understanding and addressing stigma through qualitative research: Four reasons why we need qualitative studies.

Stutterheim¹,

Ratcliffe²

2021

Stigma and Health

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Stigma in Early-Stage Lung Cancer

Bédard

Sasewich

Culling

et al. 2022

Annals of Behavioral Medicine

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Background The phenomenon of lung cancer stigma has been firmly established in the literature. However, studies have predominantly focused on patients with advanced disease, whose experiences may differ from patients with earlier stage, surgically resectable lung cancer and an improved prognosis. Purpose The objective of the study was to examine the stigma experienced in a Canadian population with early-stage, resectable lung cancer. Methods Patients with newly diagnosed lung cancer were enrolled at a tertiary thoracic surgery clinic. The 25-item Lung Cancer Stigma Inventory (LCSI) was self-administered by patients to quantitatively measure experiences of lung cancer stigma. LCSI results informed the development of a semi-structured focus group and individual interviews. Results Of the 53 participants completing the survey, 38 (72%) met established LCSI score threshold, indicating a clinically meaningful level of stigma. No significant relationship was found between total LCSI scores and any demographic variable. Analysis of qualitative data revealed multiple themes related to experiences of lung cancer stigma. The major themes were classified into four categories: impact of the association between lung cancer and smoking, societal attitudes and assumptions, personal choices in relation to diagnosis, and experiences related to care. Conclusions A surgical population of patients with predominantly early-stage lung cancer experienced lung cancer stigma at a high incidence and a level similar to previously studied populations with more advanced disease. The qualitative results support the quantitative findings that respondents experienced more internal stigma than either perceived stigma from others or constrained disclosure related to their diagnosis.

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Social isolation in adults with cancer: An evolutionary concept analysis

Liang

Hao

et al. 2022

Front. Psychol.

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BackgroundIn extant literature, the concept of social isolation has been explored primarily in the context of older adults. However, people with cancer may also experience social isolation, and there is a need for increased clarity regarding this phenomenon in this population.ObjectiveTo conceptualize social isolation in adult cancer care.MethodsPubMed, Web of Science, PsycINFO, CINAHL, China National Knowledge Infrastructure, Wanfang Data, and the Chinese Biomedical Literature Database were systematically searched using the key terms “cancer,” “social isolation,” “social alienation,” and “social exclusion” for studies (from the earliest date available to June 2022). The main disciplines involved were psychology, nursing, medicine, and public health. Rodgers’ evolutionary concept analysis was employed to clarify the antecedents, attributes, and consequences of social isolation in adults with cancer.ResultsA total of 60 eligible articles were reviewed entirely and the main findings were categorized into antecedents, attributes, and consequences. The antecedents of social isolation were classified into six categories: cancer-related physiological changes, cognitive beliefs, psychological wellbeing, unsatisfactory social supports or relationships, restrictions associated with receiving treatments, and social-level barriers. Attributes were characterized according to behavior or social avoidance and negative affective experiences, while consequences were attributed to low therapeutic compliance, poor health conditions and mental health problems, and low quality of life. White’s heuristic model is a potential theoretical context applicable to social isolation in adults with cancer.ConclusionThis concept analysis provides a basis for developing multidimensional assessment tools and measures to alleviate social isolation in adults with cancer, a complex and varied phenomenon. However, while this review contributes to the current knowledge on social isolation in people with cancer, studies should further investigate the relationships among attributes associated with social isolation.

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How do Lung Cancer Patients Experience Stigma?: A Meta-synthesis of Qualitative Studies

Cited by 3 publications

References 17 publications

Understanding and addressing stigma through qualitative research: Four reasons why we need qualitative studies.

Understanding and addressing stigma through qualitative research: Four reasons why we need qualitative studies.

Stigma in Early-Stage Lung Cancer

Social isolation in adults with cancer: An evolutionary concept analysis

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