Home Programme to Improve Hand Function for Children with Bilateral Cerebral Palsy: Beneficial but Challenging

Parents’ experiences with a home-based upper limb training program using a video coaching approach for infants and toddlers with unilateral cerebral palsy: a qualitative interview study

“…Adding a video coaching approach to our home-based program contributed to keeping the parents motivated during the whole program. Especially the possibility to observe their child’s progression over time was a motivating factor as also described by others [ 12 , 14 , 20 , 26 , 27 ] which was most relevant when only very small steps in their child’s upper limb function development were achieved. When parents framed the training as playtime instead of therapy, this had a positive influence on their perseverance in the program and their efforts in creating enjoyable training sessions.…”

“…These observations are in line with other studies [ 9 , 21 ]. To facilitate parents’ need for creativity, a list of activities and toys matching the child-specific goals may be useful to offer to the parents similar as in the study of Smidt et al [ 14 ]. Additionally, an (online) platform could be installed that enables the exchange of experiences and suggestions between parents for toys and tasks that could be integrated into training sessions.…”

“…Video coaching appears to be supportive as it increases the flexibility in planning the training sessions as parents do not have to travel to the rehabilitation center and no additional home visits by the therapist have to be planned. However, giving priority to the training program in busy family lives remained challenging for most parents as also reported by Smidt et al [ 14 ], in particular when other issues (e.g. the child’s health-related issues or development of other motor milestones such as independent sitting or crawling) demanded parents’ full attention.…”

“…Coaching and follow-up support from a therapist at regular intervals were identified as important by parents [ 12 ]. Yet, difficulties with incorporating a home-based program in daily life routines [ 13 ] and finding enough time for the training in busy family life [ 14 ] have also been reported. In-depth understanding of parents’ experiences with intensive upper limb home-based training programs for very young children remains limited, but it is important to consider these experiences when determining the effectiveness of implementation of these programs.…”

A Learning Media Based on Hands-on Activity in Mathematics for Students Special School

“…One example of an extraordinary school is a school that focuses on children with mental disability and cerebral palsy (Kraemer & Blacher, 2020;Sudarto & Sasongko 2020), which is commonly called SLB C in Indonesia. The mental achievements of children with mental disability and cerebral palsy can be developed if their potential is well cultivated (Jazim et al, 2018;Smidt et al, 2020). The potential for children with mental disability and cerebral palsy can be found by teachers in the educational activities they get in special schools or inclusive schools.…”