Home-Based Family Intervention Increases Knowledge, Communication and Living Donation Rates: A Randomized Controlled Trial

Ismail, Sohal; Luchtenburg, A.E.; Timman, Reinier; Zuidema, Wilij; Boonstra, Charlotte; Weimar, Willem; Busschbach, Jan J. V.; Massey, Emma K.

doi:10.1111/ajt.12751

Cited by 84 publications

(103 citation statements)

References 35 publications

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“…35 Studies show that increasing knowledge about LDKT significantly increases potential living donors' inquiries with transplant centers by 18.7% to 74.0%, donor evaluations by 25.5% to 63.9%, and actual LDKTs by 22%-43.5%. 57,58 Thus, when considered at the population level, the website could have a significant clinical impact on Hispanics' donation behaviors in this underserved population disproportionately affected by kidney diseases.…”

Section: Discussionmentioning

confidence: 99%

A Culturally Targeted Website for Hispanics/Latinos About Living Kidney Donation and Transplantation

Gordon¹,

Feinglass

Carney

et al. 2016

Transplantation

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Section: Discussionmentioning

confidence: 99%

A Culturally Targeted Website for Hispanics/Latinos About Living Kidney Donation and Transplantation

Gordon¹,

Feinglass

Carney

et al. 2016

Transplantation

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“…[26][27][28] Less common are interventions focusing on Hispanics' and their sociocultural concerns, 18 such as increasing awareness of LKD as a treatment option, 18,24 and willingness to be a LKD through mass media campaigns. 18 Two system-based programs delivered in patients' homes have been developed 29 ; the US program was targeted to African Americans. 25 Transplant centers are an optimal venue for delivering interventions to increase LDKT rates because they reach patients and their family members who may be key decision makers (e.g., elders), attending transplant education sessions.…”

mentioning

confidence: 99%

Hispanic/Latino Disparities in Living Donor Kidney Transplantation

Gordon

Lee

Kang

et al. 2015

Transplantation Direct

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“…Effective approaches include culturally competent education, home visits, web-based portals, and family-centered approaches [32][33][34][35][36]. However, few data support specific methods to communicate, and assess, a medically cleared potential LD's understanding of his/her risk profile and expected outcomes.…”

Section: Methods Of Assessing Understandingmentioning

confidence: 99%

Informed Consent of Living Kidney Donors: Pitfalls and Best Practice

Hays

2015

Curr Transpl Rep

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Informed consent is clearly considered the ethical bedrock fundamental to living organ donation, a procedure lacking medical benefits for its participants. Recent guidelines have focused on strengthening content components of living kidney donor informed consent, including Organ Procurement and Transplantation Network (OPTN)/United Network for Organ Sharing (UNOS) policies that prescribe key components, and integration of the Independent Living Donor Advocate (ILDA), as mandated by Centers for Medicare and Medicaid Services (CMS) and the OPTN/UNOS. The European Union member states' Working Group on Living Donation provided recommendations for care standardization in the "Toolbox Living Kidney Donation," including integration of an independent clinician advocate. However, even with these changes, studies suggest inconsistency in informed consent elements across transplant programs, and retrospective studies show that although the vast majority of living donors (LDs) reflect back positively on the experience of donation, some describe lacking complete knowledge of risks (or process) before donation. Processes to assure achievement of informed consent remain in the purview of individual transplant centers to implement and measure. Herein, methods to assess prospective LD intentionality, voluntariness, and understanding of risks/benefits are described, with promising techniques highlighted and recommendations for best practice outlined. Specific clinical challenges are addressed, including ambivalence, risk of secondary gain, and difficulty integrating understanding of risks. Finally, additional content elements are proposed to improve validity of informed consent in specific clinical circumstances.

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Home-Based Family Intervention Increases Knowledge, Communication and Living Donation Rates: A Randomized Controlled Trial

Cited by 84 publications

References 35 publications

A Culturally Targeted Website for Hispanics/Latinos About Living Kidney Donation and Transplantation

A Culturally Targeted Website for Hispanics/Latinos About Living Kidney Donation and Transplantation

Hispanic/Latino Disparities in Living Donor Kidney Transplantation

Informed Consent of Living Kidney Donors: Pitfalls and Best Practice

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