A Culturally Targeted Website for Hispanics/Latinos About Living Kidney Donation and Transplantation

Gordon, Elisa J.; Feinglass, Joe; Carney, Paula; Vera, Karina; Oliveró, María Mercedes Balcells; Black, Arthur D.; O’Connor, Kate; MacLean, Jessica; Nichols, Shari; Sageshima, Junichiro; Preczewski, Luke; Caicedo, Juan C.

doi:10.1097/tp.0000000000000932

Cited by 68 publications

(76 citation statements)

References 55 publications

(62 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Also, very few attended to cultural beliefs, which have been found to be important determinants of living donation willingness in the Hispanic population. [19,39–41] Websites that do not consider racial/ethnic diversity or cultural relevance in the development process risk exacerbating existing disparities by disseminating information that may not be considered trustworthy because of its inattention to these issues.…”

Section: Discussionmentioning

confidence: 99%

Readability, content analysis, and racial/ethnic diversity of online living kidney donation information

Rodrigue

Feranil

Lang

et al. 2017

Clinical Transplantation

View full text Add to dashboard Cite

More than three-fourths of adults in the US use the internet to access health-related information. Adults exploring the possibility of living donation should have access to online content that is readable and comprehensive. We simulated a search of online information about living kidney donation and evaluated readability, topics covered, and racial/ethnic diversity of 21 websites meeting inclusion criteria (e.g., hosted by a non-profit or patient advocacy organization, English content, based in US). Using standard readability metrics, 62% of sites were classified as “Difficult to read” and none achieved the recommended reading level of 6th grade. On average, websites covered 18.5 (62%) of 30 recommended information topics (range: 7 to 28) and only 2.1 (23%) of 9 racial/ethnic diversity items (range: 0 to 6). Overall, the most common non-profit or patient advocacy organization websites do not meet the readability standards established by the National Institutes of Health and the American Medical Association, many lack fundamental information about living kidney donation, and most are not racially/ethnically diverse. We encourage the transplant community to consider playing a more active role in improving the overall quality of online information disseminated to the general public. Further, there is a need to more critically examine the accuracy of online living donation content in future investigations.

show abstract

Section: Discussionmentioning

confidence: 99%

Readability, content analysis, and racial/ethnic diversity of online living kidney donation information

Rodrigue

Feranil

Lang

et al. 2017

Clinical Transplantation

View full text Add to dashboard Cite

show abstract

“…Culturally targeted and tailored interventions have been studied among diverse groups to promote several health behaviors. [16][17][18][19][20][21] One study to increase FOBT uptake among rural African American women indicated that women in the culturally targeted and self-empowering group were significantly more likely to return an FOBT kit than individuals in the other intervention groups. 18 Women in the modified cultural group were also significantly more likely to complete an FOBT than those in the traditional group.…”

Section: Introductionmentioning

confidence: 99%

A community‐based trial of educational interventions with fecal immunochemical tests for colorectal cancer screening uptake among blacks in community settings

Christy

Davis

Williams

et al. 2016

Cancer

View full text Add to dashboard Cite

Background Intervention studies among individuals in diverse community settings are needed to reduce health disparities in colorectal cancer (CRC) screening and mortality rates. The current study compared the efficacy of two intervention conditions promoting CRC screening among Black individuals. Methods Black individuals (aged 50-75, N=330) were recruited in community settings in four Tampa Bay counties. Following consent and a baseline interview which assessed sociodemographic and health-related variables, participants received a culturally-targeted CRC photonovella booklet plus fecal immunochemical test (FIT) kit or a standard CRC screening brochure plus FIT kit. The primary outcome was FIT kit screening uptake. Results FIT screening uptake at 6 months was 86.7% overall (90.3% in the brochure group and 81.9% in the photonovella group). Controlling for baseline between group differences, there was no influence of intervention on FIT kit uptake (p=.756). Significant predictors of not returning a FIT kit included being unable to work (p=.010), having higher religious belief scores (p=.015), and living further from the cancer center (p=.015). Conclusions Providing FIT kits and educational print materials to Black individuals in community settings resulted in high rates of CRC screening. The study also identified subgroups of participants who were less likely to return a FIT kit and provides insight for future interventions.

show abstract

“…Although the rate of Internet usage is comparable between Hispanics and non-Hispanics [66], few websites about kidney transplantation address the Hispanic community’s specific needs with regard to treatment options [67]. Infόrmate : Living Kidney Donation for Hispanics/Latinos (http://informate.org) is a culturally targeted, bilingual decision aid website designed to increase knowledge about living donation and transplantation for Hispanic kidney disease patients and their families and potential living donors [46]. The website [68] was developed, in partnership with the National Kidney Foundation of Illinois, following IPDAS guidelines using Resnicow’s Two-Dimensional Model of Cultural Sensitivity in Public Health [62].…”

Section: Introductionmentioning

confidence: 99%

“…Infόrmate was prepared at the 5 th to 8 th grade reading level, and engages users through interactive graphics that the user can click through to expose current medical advice on frequently asked questions. The website offers a quiz to assess knowledge of transplant myths versus facts and provides PDFs to download summarizing the myths versus facts, and the risks and benefits to living donor kidney transplantation [46]. Infόrmate hosts 19 living donor and recipient testimonials, 2 telenovelas, and 3 drag-and-drop games [68].…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Decision Aids to Increase Living Donor Kidney Transplantation

2017

Self Cite

View full text Add to dashboard Cite

Purpose of review For the more than 636,000 adults with end-stage renal disease (ESRD) in the U.S., kidney transplantation is the preferred treatment compared to dialysis. Living donor kidney transplantation (LDKT) comprised 31% of kidney transplantations in 2015, an 8% decrease since 2004. We aimed to summarize the current literature on decision aids that could be used to improve LDKT rates. Recent findings Decision aids are evidence-based tools designed to help patients and their families make difficult treatment decisions. LDKT decision aids can help ESRD patients, patients’ family and friends, and healthcare providers engage in treatment decisions and thereby overcome multifactorial LDKT barriers. Summary We identified 12 LDKT decision aids designed to provide information about LDKT, and/or to help ESRD patients identify potential living donors, and/or to help healthcare providers make decisions about treatment for ESRD or living donation. Of these, 4 were shown to be effective in increasing LDKT, donor inquiries, LDKT knowledge, and willingness to discuss LDKT. Although each LDKT decision aid has limitations, adherence to decision aid development guidelines may improve decision aid utilization and access to LDKT.

show abstract

A Culturally Targeted Website for Hispanics/Latinos About Living Kidney Donation and Transplantation

Cited by 68 publications

References 55 publications

Readability, content analysis, and racial/ethnic diversity of online living kidney donation information

Readability, content analysis, and racial/ethnic diversity of online living kidney donation information

A community‐based trial of educational interventions with fecal immunochemical tests for colorectal cancer screening uptake among blacks in community settings

Decision Aids to Increase Living Donor Kidney Transplantation

Contact Info

Product

Resources

About