Hematopoietic Cell Transplantation in 2020: Summary of Year 2 Recommendations of the National Marrow Donor Program's System Capacity Initiative

Denzen, Ellen M.; Majhail, Navneet S.; Ferguson, Stacy Stickney; Anasetti, Claudio; Bracey, Arthur W.; Burns, Linda J.; Champlin, Richard E.; Chell, Jeffrey W.; Leather, Helen; Lill, Michael; Maziarz, Richard T.; Medoff, Erin; Neumann, Joyce; Schmit-Pokorny, Kim; Snyder, Edward L.; Wiggins, L. F.; Raley, Deborah S. Yolin; Murphy, Elizabeth A.

doi:10.1016/j.bbmt.2012.10.005

Cited by 34 publications

(29 citation statements)

References 2 publications

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“…[12][13][14][15] Good knowledge of HSCT and stem cell donation in health care professionals can increase the numbers of unrelated donors. 11 Numerous studies that have evaluated knowledge and attitudes among students in Turkey about organ and blood donation. 19,[21][22][23] However, a literature search showed no such information available about donation for HSCT.…”

Section: Discussionmentioning

confidence: 99%

“…The gap between need and donation is especially wide for unrelated HSCT in many developing countries. [6][7][8][9][10][11] The main reason for the insufficient number of donors for HSCT is insufficient public awareness about the importance of HSCT. Increasing public knowledge and sensitivity about solid-organ transplantation has accelerated donor recruitment in many countries.…”

Section: Introductionmentioning

confidence: 99%

“…[16][17][18] University students may play an important role in promoting donation for HSCT because greater knowledge about this procedure in the university population may increase awareness in young people about the need. 11 The purpose of this study was to evaluate the effect of targeted HSCT-related education on knowledge and attitudes in first-year university students in Turkey about HSCT and donation.…”

Section: Introductionmentioning

confidence: 99%

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Kaya

Gültekin²,

Demirtaş³

et al. 2015

Exp Clin Transplant

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Objectives: Hematopoietic stem cell transplantation is a life-saving treatment, but donor numbers are lacking in Turkey and elsewhere. Increased awareness of hematopoietic stem cell transplantation among university students might help expand donation. We evaluated the effect of a brief targeted educational intervention on knowledge and attitudes about hematopoietic stem cell transplantation and donation among first-year university students in Turkey. Materials and Methods: There were 301 first-year university students (median age, 18 y) who volunteered: 163 medical students (54%) and 138 law students (46%). Before and after a brief lecture about hematopoietic stem cell transplantation, students answered a 5-item yes-or-no questionnaire regarding (1) knowledge about health benefits of hematopoietic stem cell transplantation; (2) knowledge about stem cell banking and donation in Turkey; (3) knowledge about the transplantation procedure; (4) prior experience and/or willingness to donate blood; and (5) willingness to donate stem cells. Reasons for motivation to donate blood and/or stem cells were categorized. Results before and after the lecture were evaluated with univariate and multivariate analyses. Results: The response rate was 100%. Significantly greater proportions of students had knowledge about hematopoietic stem cell transplantation and willingness to donate blood and stem cells after the lecture. There were no differences between medical and law students before the lecture. After the lecture, a significantly greater proportion of medical students indicated knowledge about health benefits of hematopoietic stem cell transplantation, stem cell banking and donation in Turkey, and the transplantation procedure. Conclusions: Brief education about hematopoietic stem cell transplantation for university students can increase knowledge and awareness about hematopoietic stem cell transplantation and cause more positive attitudes about stem cell donation.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Untitled

Kaya

Gültekin²,

Demirtaş³

et al. 2015

Exp Clin Transplant

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“…5,6 Use of hematopoietic cell transplantation (HCT) as a treatment modality for many hematologic malignancies and some solid tumors has continued to grow, highlighting areas for further development and unmet need. [7][8][9][10] In this article, we review coordination problems unique to patients treated with HCT and identify pertinent stakeholders throughout the continuum of care. We describe the existing care coordination models and propose a framework for a coordination model for HCT using components from existing models to appropriately meet the complex needs of these patients.…”

Section: Introductionmentioning

confidence: 99%

Patient-centered care coordination in hematopoietic cell transplantation

Khera

Martín

Edsall³

et al. 2017

Blood Advances

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Hematopoietic cell transplantation (HCT) is an expensive, resource-intensive, and medically complicated modality for treatment of many hematologic disorders. A well-defined care coordination model through the continuum can help improve health care delivery for this high-cost, high-risk medical technology. In addition to the patients and their families, key stakeholders include not only the transplantation physicians and care teams (including subspecialists), but also hematologists/oncologists in private and academic-affiliated practices. Initial diagnosis and care, education regarding treatment options including HCT, timely referral to the transplantation center, and management of relapse and late medical or psychosocial complications after HCT are areas where the referring hematologists/ oncologists play a significant role. Payers and advocacy and community organizations are additional stakeholders in this complex care continuum. In this article, we describe a care coordination framework for patients treated with HCT within the context of coordination issues in care delivery and stakeholders involved. We outline the challenges in implementing such a model and describe a simplified approach at the level of the individual practice or center. This article also highlights ongoing efforts from physicians, medical directors, payer representatives, and patient advocates to help raise awareness of and develop access to adequate tools and resources for the oncology community to deliver well-coordinated care to patients treated with HCT. Lastly, we set the stage for policy changes around appropriate reimbursement to cover all aspects of care coordination and generate successful buy-in from all stakeholders.

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“…8, 9 The symposia have used a deliberative process model to collaboratively develop creative options for complex issues affecting the delivery of HCT. Participants have included professionals, academic organizations, experts and other important stakeholders.…”

Section: System Capacity Barriers To the Anticipated Growth Of Hctmentioning

confidence: 99%