Health‐related quality‐of‐life treatments for severe haemophilia: utility measurements using the Standard Gamble technique

Vs, Naraine; Na, Risebrough; P, Oh; Vs, Blanchette; S, Lee; Stain, AM; Hedden, Douglas; Jm, Teitel; Bm, Feldman

doi:10.1046/j.1365-2516.2002.00591.x

Cited by 50 publications

(63 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…315,330 In contrast, Kuppermann and colleagues used the TTO method to ask parents how much time off their life expectancy they would be willing to trade to avoid their child experiencing particular outcomes after different childhood vaccinations. 312 Other researchers do not explicitly state the perspective taken, 303,306,331 but appear to assume they are measuring an adult (parent or other) perspective on children's health outcomes. We could not identify any comparative study that investigated the relative importance of different perspectives.…”

Section: Discussion Of Methodsmentioning

confidence: 99%

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

Knowles¹,

Griebsch²,

Dezateux

et al. 2005

Health Technol Assess

213

143

View full text Add to dashboard Cite

Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per monograph and for the rest of the world £3 per monograph.You can order HTA monographs from our Despatch Agents:-fax (with credit card or official purchase order) -post (with credit card or official purchase order or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you either to pay securely by credit card or to print out your order and then post or fax it. NHS libraries can subscribe free of charge. Public libraries can subscribe at a very reduced cost of £100 for each volume (normally comprising 30-40 titles). The commercial subscription rate is £300 per volume. Please see our website for details. Subscriptions can only be purchased for the current or forthcoming volume. Contact details are as follows: Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to Direct Mail Works Ltd and drawn on a bank with a UK address. Paying by credit cardThe following cards are accepted by phone, fax, post or via the website ordering pages: Delta, Eurocard, Mastercard, Solo, Switch and Visa. We advise against sending credit card details in a plain email. Paying by official purchase orderYou can post or fax these, but they must be from public bodies (i.e. NHS or universities) within the UK. We cannot at present accept purchase orders from commercial companies or from outside the UK. How do I get a copy of HTA on CD?Please use the form on the HTA website (www.hta.ac.uk/htacd.htm). Or contact Direct Mail Works (see contact details above) by email, post, fax or phone. HTA on CD is currently free of charge worldwide.The website also provides information about the HTA Programme and lists the membership of the various committees. HTANewborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis NHS R&D HTA ProgrammeT he research findings from the NHS R&D Health Technology Assessment (HTA) Programme directly influence key decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC) who rely on HTA outputs to help raise standards of care. HTA findings also help to improve the quality of the service in the NHS indirectly in that they form a key component of the 'National Knowledge Service' that is being developed to improve the evidence of clinical practice throughout the NHS.The HTA Programme was set up in 1993. Its role is to ensure that high-quality research information on the costs, effectiveness and broader impact of health technologies is produced in the most efficient way for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined to include all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care, rather than settings of care.The HTA Programme commissions research only on topics where it has identified key gaps in the evi...

show abstract

Section: Discussion Of Methodsmentioning

confidence: 99%

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

Knowles¹,

Griebsch²,

Dezateux

et al. 2005

Health Technol Assess

213

143

View full text Add to dashboard Cite

show abstract

“…They conclude that hemophilia and its treatment affect HRQoL. They emphasized that prophylaxis is preferable to ondemand therapy (5). HRQoL may be better for hemophilia patients treated prophylactically.…”

Section: Introductionmentioning

confidence: 99%

An examination of the symptoms of anxiety and parental attitude in children with hemophilia

Abali

Zulfikar²,

Demirkaya³

et al. 2014

Turk J Med Sci

View full text Add to dashboard Cite

Background/aim: Hemophilia is an inherited disease with serious repercussions. Psychiatric symptoms are frequently seen in children and adolescents with hemophilia. The aim of this study was to assess symptoms of anxiety in children with hemophilia and parental attitude towards children with hemophilia.Materials and methods: 42 boys were assessed according to child and adolescent psychiatry. Anxiety symptoms and parental attitude were obtained by the State-Trait Anxiety Scale, the Self-Report for Childhood Anxiety Related Disorders (SCARED) and the Parent Attitude Research Instrument (PARI). Results:The mean age was 11.6 ± 2.5 (range; 7-16). State anxiety scores (44.02 ± 6.9) were higher than trait anxiety scores (32.7 ± 7.5). The most interesting results were high scores related to overprotective mothering (47.9 ± 9.7) and the application of strict discipline (39.4 ± 9.1). The total SCARED scores obtained were (23.25 ± 11.3). Conclusion:Assuring a high quality of life is important for children and adolescents with chronic illness. Quality of life is negatively affected by psychiatric symptoms (e.g. anxiety symptoms, depression, intra-familial stress symptoms) in children with hemophilia. This study suggests that high anxiety scores and problems related to parental attitude can be seen in children and adolescents with hemophilia. These problems caused by parental attitude and anxiety symptoms should be considered in the treatment of hemophilia.

show abstract

“…For example, parents of children with type 2 diabetes mellitus, hemophilia, and severe mental retardation were all willing to give up 3% to 49% of their child's survival time in order to achieve perfect health [4,21,24]. The results of this study may be used in several ways.…”

Section: Discussionmentioning

confidence: 99%

Perspectives toward oral mucositis prevention from parents and health care professionals in pediatric cancer

Ethier

Regier

Tomlinson

et al. 2011

Support Care Cancer

View full text Add to dashboard Cite

show abstract

Health‐related quality‐of‐life treatments for severe haemophilia: utility measurements using the Standard Gamble technique

Cited by 50 publications

References 27 publications

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

Newborn screening for congenital heart defects: a systematic review and cost-effectiveness analysis

An examination of the symptoms of anxiety and parental attitude in children with hemophilia

Perspectives toward oral mucositis prevention from parents and health care professionals in pediatric cancer

Contact Info

Product

Resources

About